The 20 Best Trisomy 13 Doctors Near Me in Portland, OR

Find the Top Trisomy 13 Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Trisomy 13 near Portland, OR. Of these, 9 are Experienced, 1 are Advanced and 1 are Elite.

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11 providers found
    Elite in Trisomy 13
    Neonatology | Obstetrics and Gynecology
    Elite in Trisomy 13
    Neonatology | Obstetrics and Gynecology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Aaron Caughey is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Portland, Oregon. Dr. Caughey is rated as an Elite provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Gestational Diabetes, Endometritis, Preeclampsia, Intrauterine Device Insertion, and Hysterectomy.

    Experienced in Trisomy 13
    Reproductive Medicine
    Experienced in Trisomy 13
    Reproductive Medicine

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English

    Sacha Krieg is a Reproductive Medicine provider practicing medicine in Portland, Oregon. Dr. Krieg is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her clinical expertise encompasses Infertility, Chromosome 13q Duplication, Trisomy 13, and Ovarian Cysts.

    Experienced in Trisomy 13
    Pediatric Cardiology
    Experienced in Trisomy 13
    Pediatric Cardiology

    Oregon Health Sciences University

    707 SW Gaines St, 
    Portland,, OR 
     (1.4 miles away)
    Languages Spoken:
    English

    Erin Madriago is a Pediatric Cardiologist practicing medicine in Portland,, Oregon. Dr. Madriago is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Tetralogy of Fallot, Chromosome 13q Duplication, and Trisomy 13.

    Learn about our expert tiers
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    Advanced in Trisomy 13
    Pediatric Cardiology | Pediatrics
    400 Northeast Mother Joseph Place, 
    Vancouver, WA 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Peter Chang is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Vancouver, Washington. Dr. Chang is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Ventricular Septal Defects, Kawasaki Disease, Bicuspid Aortic Valve, Myocarditis, and Aneurysm Repair. Dr. Chang is currently accepting new patients.

    Experienced in Trisomy 13
    Obstetrics and Gynecology
    Experienced in Trisomy 13
    Obstetrics and Gynecology

    University Andrology Lab LLC

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English

    Molly Kornfield is an Obstetrics and Gynecologist practicing medicine in Portland, Oregon. Dr. Kornfield is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her clinical expertise encompasses Infertility, Chromosome 13q Duplication, Trisomy 13, and Hormone Replacement Therapy (HRT).

    Experienced in Trisomy 13
    Medical Genetics
    Experienced in Trisomy 13
    Medical Genetics
    3181 Sw Sam Jackson Park Rd, Mp350, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Susan Olson is a Medical Genetics provider practicing medicine in Portland, Oregon. Dr. Olson is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Congenital Aplastic Anemia, Chromosome 13q Duplication, Trisomy 13, and Turner Syndrome.

    Experienced in Trisomy 13
    Palliative Medicine
    Experienced in Trisomy 13
    Palliative Medicine

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Sara Taub is a Palliative Medicine provider practicing medicine in Portland, Oregon. Dr. Taub is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her clinical expertise encompasses Chromosome 13q Duplication and Trisomy 13.

    Experienced in Trisomy 13
    Medical Genetics
    Experienced in Trisomy 13
    Medical Genetics

    Legacy Good Samaritan Hospital And Medical Center

    1040 Nw 22nd Ave, Suite 30, 
    Portland, OR 
     (1.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dana Simpson is a Medical Genetics provider practicing medicine in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Incontinentia Pigmenti, Increased Head Circumference, Smith-Magenis Syndrome, and Miller-Dieker Syndrome. Dr. Simpson is currently accepting new patients.

    Experienced in Trisomy 13
    Neonatology | Pediatrics
    Experienced in Trisomy 13
    Neonatology | Pediatrics

    Oregon Health Sciences University

    707 SW Gaines St, 
    Portland, OR 
     (1.4 miles away)
    Languages Spoken:
    English

    Ladawna Gievers is a Neonatologist and a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Gievers is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. Her clinical expertise encompasses High Blood Pressure in Infants, Chromosome 13q Duplication, Trisomy 13, and Premature Infant.

    Experienced in Trisomy 13
    Pediatric Pulmonology
    Experienced in Trisomy 13
    Pediatric Pulmonology

    Randall Children's Infectious Diseases

    501 N Graham St Ste 330A, 
    Portland, OR 
     (2.0 miles away)
    Languages Spoken:
    English

    Gordon Still is a Pediatric Pulmonologist practicing medicine in Portland, Oregon. Dr. Still is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Periodic Limb Movement Disorder, Sleepwalking (Somnambulism), Vocal Cord Dysfunction, and Trisomy 13.

    Experienced in Trisomy 13
    Medical Genetics | Obstetrics and Gynecology | Neonatology
    Experienced in Trisomy 13
    Medical Genetics | Obstetrics and Gynecology | Neonatology
    2525 Ne 139th St, 
    Vancouver, WA 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Dukhovny is a Medical Genetics specialist and an Obstetrics and Gynecologist practicing medicine in Vancouver, Washington. Dr. Dukhovny is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Hydrops Fetalis, Fetal Edema, Hemolytic Disease of the Newborn, and Alpha Thalassemia. Dr. Dukhovny is currently accepting new patients.

    Showing 1-11 of 11

    Last Updated: 04/28/2026

    What is the definition of Trisomy 13?

    Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

    When should I see a Trisomy 13 doctor near Portland, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Trisomy 13 doctor near Portland, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Trisomy 13 doctors near Portland, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Trisomy 13 doctors near Portland, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Trisomy 13 doctor near Portland, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

    Why is it important to get a second opinion from a different Trisomy 13 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Trisomy 13 doctor near Portland, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Trisomy 13 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Trisomy 13 doctors near Portland, OR?

    Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Trisomy 13 doctor that offers video calls?

    Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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