The 20 Best Tuberous Sclerosis Doctors Near Me

Find Doctors who have experience with SIrolimus

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 132 doctor with experience in Tuberous Sclerosis.

Location
LocationClose
132 providers found
    Elite in Tuberous Sclerosis
    Neurology | Pediatrics | Pediatric Neurology
    Elite in Tuberous Sclerosis
    Neurology | Pediatrics | Pediatric Neurology
    Referral may be required

    PCH Neurology

    1919 E Thomas Rd, Ambulatory Bldg 3rd Fl, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Angus Wilfong is a Neurologist and a Pediatrics provider practicing medicine in Phoenix, Arizona. Dr. Wilfong is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypothalamic Hamartomas, Status Epilepticus, Epilepsy, and Seizures. Dr. Wilfong is board certified in Psychiatry & Neurology (Sub: Clinical Neurophysiolog, Psychiatry & Neurology CSQ In Child Neurology, and Psychiatry & Neurology (Sub: Epilepsy). Dr. Wilfong is currently accepting new patients.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Groupement Hospitalier Est, 
    Lyon, FR 

    Vincent Cottin practices practicing medicine in Lyon, France. Mr. Cottin is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Pulmonary Fibrosis, Interstitial Lung Disease, Acute Interstitial Pneumonia, Lung Transplant, and Angioplasty.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Tokyo, JP 

    Kazuhisa Takahashi practices practicing medicine in Tokyo, Japan. Takahashi is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. They are also highly rated in 55 other conditions, according to our data. Their clinical expertise encompasses Lymphangioleiomyomatosis, Birt-Hogg-Dube Syndrome, Lung Cancer, Spinal Fusion, and Osteotomy.

    Learn about our expert tiers
    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    No. 1 East Jianshe Road, 
    Zhengzhou, CN 

    Jie Liu practices practicing medicine in Zhengzhou, China. Mr. Liu is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 239 other conditions, according to our data. His clinical expertise encompasses Cerebral Hypoxia, Type 2 Diabetes (T2D), Diarrhea, Endoscopy, and Gallbladder Removal.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Paris, FR 

    Rima Nabbout practices practicing medicine in Paris, France. Ms. Nabbout is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and West Syndrome.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Neyagawa, JP 

    Yoshikazu Inoue practices practicing medicine in Neyagawa, Japan. Mr. Inoue is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Pulmonary Alveolar Proteinosis, Interstitial Lung Disease, Acute Interstitial Pneumonia, Hepatectomy, and Mastectomy.

    Elite in Tuberous Sclerosis
    Pediatric Neurology
    Elite in Tuberous Sclerosis
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Mustafa Sahin is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Sahin is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Spastic Paraplegia Type 7.

    Elite in Tuberous Sclerosis
    Pediatric Neurology | Neurology
    Elite in Tuberous Sclerosis
    Pediatric Neurology | Neurology
    Referral may be required

    Massachusetts General Physicians Organization Inc

    1575 Cambridge St, 
    Cambridge, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elizabeth Thiele is a Pediatric Neurologist and a Neurologist practicing medicine in Cambridge, Massachusetts. Dr. Thiele is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Myoclonic Epilepsy. Dr. Thiele is currently accepting new patients.

    Elite in Tuberous Sclerosis
    Pediatrics
    Elite in Tuberous Sclerosis
    Pediatrics
    Referral may be required

    Office

    9560 Children Dr Ste A, 
    Mason, OH 
    Languages Spoken:
    English
    Offers Telehealth

    David Neal is a Pediatrics provider practicing medicine in Mason, Ohio. Dr. Neal is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 159 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Seizures.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Rudolf Bultmann Str. 8, 
    Marburg An Der Lahn, HE, DE 

    Adam Strzelczyk practices practicing medicine in Marburg An Der Lahn, Germany. Mr. Strzelczyk is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Status Epilepticus, Myoclonic Epilepsy, Seizures, Epilepsy, and Thrombectomy.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Gutmann is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Tokyo, JP 

    Mototsugu Oya practices practicing medicine in Tokyo, Japan. Oya is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. They are also highly rated in 24 other conditions, according to our data. Their clinical expertise encompasses Bladder Cancer, Renal Cell Carcinoma (RCC), Upper Tract Urothelial Carcinoma (UTUC), Nephrectomy, and Prostatectomy.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Warsaw, MZ, PL 

    Sergiusz Jozwiak practices practicing medicine in Warsaw, Poland. Jozwiak is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses Cortical Dysplasia, Tuberous Sclerosis, Tuberous Sclerosis Complex, and Epilepsy in Children.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    139 Renmin Middle Road, 
    Changsha, CN 

    Wei Chen practices practicing medicine in Changsha, China. Chen is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. They are also highly rated in 314 other conditions, according to our data. Their clinical expertise encompasses Iridocorneal Endothelial Syndrome, Liver Cancer, Pneumonia, Endoscopy, and Bladder Reconstruction.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Rome, IT 

    Paolo Curatolo practices practicing medicine in Rome, Italy. Mr. Curatolo is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Epilepsy.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Office

    3500 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Dennis Dlugos is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Dlugos is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, West Syndrome, and Myoclonic Epilepsy.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Amsterdam, NH, NL 

    Eleonora Aronica practices practicing medicine in Amsterdam, Netherlands. Ms. Aronica is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Cortical Dysplasia, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Pancreaticoduodenectomy.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Osaka, JP 

    Manabu Fujimoto practices practicing medicine in Osaka, Japan. Mr. Fujimoto is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Dermatomyositis, Polymyositis, Myositis, Bone Marrow Transplant, and Heart Bypass Surgery.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    University Of Cape Town, 
    Cape Town, WC, ZA 

    Petrus De Vries practices practicing medicine in Cape Town, South Africa. Mr. De Vries is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Tuberous Sclerosis, Tuberous Sclerosis Complex, Lymphangioleiomyomatosis, and Kidney Transplant.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required
    Suita, JP 

    Norio Nonomura practices practicing medicine in Suita, Japan. Mr. Nonomura is rated as an Elite expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Urothelial Cancer, Prostate Cancer, Kidney Transplant, and Nephrectomy.

    Showing 1-20 of 132

    Last Updated: 06/30/2026

    What is the definition of Tuberous Sclerosis?

    Tuberous sclerosis is a genetic disorder that affects the skin, brain/nervous system, kidneys, heart, and lungs. The condition can also cause tumors to grow in the brain. These tumors have a tuber or root-shaped appearance.

    When should I see a Tuberous Sclerosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tuberous Sclerosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tuberous Sclerosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tuberous Sclerosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tuberous Sclerosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis doctor search results page. 

    Why is it important to get a second opinion from a different Tuberous Sclerosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tuberous Sclerosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tuberous Sclerosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tuberous Sclerosis doctors near me?

    Look for the filter feature on the left side of the Tuberous Sclerosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tuberous Sclerosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Tuberous Sclerosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy