The 20 Best Tuberous Sclerosis Doctors in The United States

Find the Top Tuberous Sclerosis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 1480 doctor with experience in Tuberous Sclerosis near The United States. Of these, 1244 are Experienced, 177 are Advanced, 31 are Distinguished and 20 are Elite.

Location
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1,480 providers found
    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    C H Neurology Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    617-355-6000
    Languages Spoken:
    English
    See accepted insurances

    Jurriaan Peters is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Peters is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Seizures.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Scottish Rite For Children

    2222 Welborn St, 
    Dallas, TX 
    214-559-7828
    Languages Spoken:
    English
    See accepted insurances

    Steven Sparagana is a Neurologist practicing medicine in Dallas, Texas. Dr. Sparagana is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Astrocytoma.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Office

    730 Welch Rd Ste 206, 
    Palo Alto, CA 
    650-723-0993
    Languages Spoken:
    English
    See accepted insurances

    Brenda Porter is a Neurologist practicing medicine in Palo Alto, California. Dr. Porter is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Seizures, Tuberous Sclerosis, Tuberous Sclerosis Complex, Epilepsy, and Deep Brain Stimulation.

    Learn about our expert tiers
    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Akron Children's Hospital Path

    1 Perkins Sq, 
    Akron, OH 
    330-543-8050
    Languages Spoken:
    English
    See accepted insurances

    Michael Kohrman is a Neurologist practicing medicine in Akron, Ohio. Dr. Kohrman is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Astrocytoma.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Office

    6701 Fannin St Ste 950, 
    Houston, TX 
    832-822-5046
    Languages Spoken:
    English
    See accepted insurances

    Rohini Coorg is a Neurologist practicing medicine in Houston, Texas. Dr. Coorg is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Seizures, and Cortical Dysplasia.

    Elite in Tuberous Sclerosis

    Dr. David Neal
    Pediatrics
    Elite in Tuberous Sclerosis

    Dr. David Neal
    Pediatrics
    Referral may be required

    Office

    9560 Children Dr Ste A, 
    Mason, OH 
    513-636-6800
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    David Neal is a Pediatrics provider practicing medicine in Mason, Ohio. Dr. Neal is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 159 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Seizures.

    Elite in Tuberous Sclerosis

    Dr. Mustafa Sahin
    Pediatric Neurology
    Elite in Tuberous Sclerosis

    Dr. Mustafa Sahin
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    617-919-5323
    Languages Spoken:
    English
    See accepted insurances

    Mustafa Sahin is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Sahin is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Spastic Paraplegia Type 7.

    Elite in Tuberous Sclerosis

    Dr. John Bissler
    Pediatric Nephrology
    Elite in Tuberous Sclerosis

    Dr. John Bissler
    Pediatric Nephrology
    Referral may be required

    Le Bonheur Children's Hospital

    848 Adams Ave, 
    Memphis, TN 
    901-287-5437
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    John Bissler is a Pediatric Nephrologist practicing medicine in Memphis, Tennessee. Dr. Bissler is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis, Polycystic Kidney Disease, Gliomatosis Cerebri, Hypertension, and Nephrectomy.

    Elite in Tuberous Sclerosis

    Dr. Elizabeth A. Thiele
    Pediatric Neurology | Neurology
    Elite in Tuberous Sclerosis

    Dr. Elizabeth A. Thiele
    Pediatric Neurology | Neurology
    Referral may be required

    Massachusetts General Physicians Organization Inc

    1575 Cambridge St, 
    Cambridge, MA 
    617-876-4344
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Elizabeth Thiele is a Pediatric Neurologist and a Neurologist practicing medicine in Cambridge, Massachusetts. Dr. Thiele is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Myoclonic Epilepsy. Dr. Thiele is currently accepting new patients.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Office

    225 Smith Ave N Ste 201, 
    Saint Paul, MN 
    651-241-5255
    Languages Spoken:
    English
    See accepted insurances

    Michael Frost is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Frost is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Epilepsy.

    Elite in Tuberous Sclerosis

    Dr. Peter Crino
    Neurology
    Elite in Tuberous Sclerosis

    Dr. Peter Crino
    Neurology
    Referral may be required

    Office

    16 S Eutaw St Fl 3, 
    Baltimore, MD 
    410-328-2172
    Languages Spoken:
    English
    See accepted insurances

    Peter Crino is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Crino is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Tuberous Sclerosis Complex, Tuberous Sclerosis, Increased Head Circumference, and Gastrostomy.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Le Bonheur Children's Outpatient Center-Jackson

    1535 Vann Dr, 
    Jackson, TN 
    731-984-9944
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Tanjala Gipson is a Pediatrics provider practicing medicine in Jackson, Tennessee. Dr. Gipson is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Autism Spectrum Disorder.

    Elite in Tuberous Sclerosis

    Dr. Howard Weiner
    Neurosurgery
    Elite in Tuberous Sclerosis

    Dr. Howard Weiner
    Neurosurgery
    Referral may be required

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
    832-824-1000
    Languages Spoken:
    English
    See accepted insurances

    Howard Weiner is a Neurosurgery provider practicing medicine in Houston, Texas. Dr. Weiner is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, Awake Craniotomy, and Deep Brain Stimulation.

    Elite in Tuberous Sclerosis

    Dr. Elizabeth Bebin
    Pediatric Neurology
    Elite in Tuberous Sclerosis

    Dr. Elizabeth Bebin
    Pediatric Neurology
    Referral may be required

    Children's Health System

    502 Governors Dr SW, 
    Huntsville, AL 
    256-533-0833
    Languages Spoken:
    English
    See accepted insurances

    Elizabeth Bebin is a Pediatric Neurologist practicing medicine in Huntsville, Alabama. Dr. Bebin is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Epilepsy in Children.

    Elite in Tuberous Sclerosis

    Dr. Jamie Capal
    Pediatric Neurology | Neurology
    Elite in Tuberous Sclerosis

    Dr. Jamie Capal
    Pediatric Neurology | Neurology
    Referral may be required

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    513-636-4222
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Jamie Capal is a Pediatric Neurologist and a Neurologist practicing medicine in Cincinnati, Ohio. Dr. Capal is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Autism Spectrum Disorder.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Werner K Doyle M.D. PC

    223 E 34th St, 
    New York, NY 
    212-263-8870
    Experience:
    44+ years
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Orrin Devinsky is a Neurologist practicing medicine in New York, New York. He has been practicing medicine for over 44 years. Dr. Devinsky is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Dravet Syndrome, Seizures, Epilepsy, and Deep Brain Stimulation.

    Elite in Tuberous Sclerosis

    Dr. Shafali Jeste
    Pediatric Neurology
    Elite in Tuberous Sclerosis

    Dr. Shafali Jeste
    Pediatric Neurology
    Referral may be required

    Office

    300 Medical Plz, 
    Los Angeles, CA 
    310-825-9989
    Languages Spoken:
    English
    See accepted insurances

    Shafali Jeste is a Pediatric Neurologist practicing medicine in Los Angeles, California. Dr. Jeste is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Cortical Dysplasia.

    Elite in Tuberous Sclerosis

    Dr. Paul Elahna
    Pediatric Nephrology
    Elite in Tuberous Sclerosis

    Dr. Paul Elahna
    Pediatric Nephrology
    Referral may be required

    Office

    55 Fruit St Ste C, 
    Boston, MA 
    617-726-2908
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Paul Elahna is a Pediatric Nephrologist practicing medicine in Boston, Massachusetts. Dr. Elahna is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Primary Hyperoxaluria Type 1, Primary Hyperoxaluria, and Meckel Syndrome.

    Elite in Tuberous Sclerosis
    Elite in Tuberous Sclerosis
    Referral may be required

    Cincinnati Childrens Hospital Medical Center Liberty Campus

    7777 Yankee Rd, 
    Liberty Township, OH 
    513-636-4222
    Languages Spoken:
    English
    See accepted insurances

    David Ritter is a Neurologist practicing medicine in Liberty Township, Ohio. Dr. Ritter is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 59 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Lhermitte-Duclos Disease.

    Elite in Tuberous Sclerosis

    Dr. James Wheless
    Pediatric Neurology
    Elite in Tuberous Sclerosis

    Dr. James Wheless
    Pediatric Neurology
    Referral may be required

    Le Bonheur Children's Hospital

    848 Adams Ave, 
    Memphis, TN 
    901-287-5437
    Experience:
    44+ years
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    James Wheless is a Pediatric Neurologist practicing medicine in Memphis, Tennessee. He has been practicing medicine for over 44 years. Dr. Wheless is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, Absence Seizure, and Deep Brain Stimulation.

    Showing 1-20 of 1,480

    Last Updated: 06/30/2026

    What is the definition of Tuberous Sclerosis?

    Tuberous sclerosis is a genetic disorder that affects the skin, brain/nervous system, kidneys, heart, and lungs. The condition can also cause tumors to grow in the brain. These tumors have a tuber or root-shaped appearance.

    When should I see a Tuberous Sclerosis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tuberous Sclerosis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Tuberous Sclerosis doctor in The United States?

    You can find a Tuberous Sclerosis doctor in any of the 10 largest U.S. cities by clicking below:

    Tuberous Sclerosis doctor near New York, NY
    Tuberous Sclerosis doctor near Los Angeles, CA
    Tuberous Sclerosis doctor near Chicago, IL
    Tuberous Sclerosis doctor near Houston, TX
    Tuberous Sclerosis doctor near Phoenix, AZ
    Tuberous Sclerosis doctor near Philadelphia, PA
    Tuberous Sclerosis doctor near Atlanta, GA
    Tuberous Sclerosis doctor near Boston, MA
    Tuberous Sclerosis doctor near Dallas, TX
    Tuberous Sclerosis doctor near San Jose, CA

    How does MediFind rank Tuberous Sclerosis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tuberous Sclerosis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tuberous Sclerosis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis doctor search results page. 

    Why is it important to get a second opinion from a different Tuberous Sclerosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tuberous Sclerosis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tuberous Sclerosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tuberous Sclerosis doctors in The United States?

    Look for the filter feature on the left side of the Tuberous Sclerosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tuberous Sclerosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Tuberous Sclerosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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