The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Florida, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 64 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Florida, US. Of these, 60 are Experienced, 3 are Advanced and 1 are Distinguished.

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64 providers found
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Philippe Spiess is an Oncologist practicing medicine in Tampa, Florida. Dr. Spiess is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Penile Cancer, Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Spiess is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Urology Of Virginia PLLC

    12902 Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    John Tourtelot is an Endocrinologist practicing medicine in Tampa, Florida. Dr. Tourtelot is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Anaplastic Thyroid Cancer, Thyroid Cancer, Follicular Thyroid Cancer, and Medullary Thyroid Carcinoma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatric Neurology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatric Neurology

    Johns Hopkins All Children's Hospital

    501 6th Avenue South, 
    Saint Petersburg, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Kanoff specializes in pediatric neurology at Johns Hopkins All Children’s Hospital and works primarily with hospitalized children and their follow-up care. He joined the medical staff in 2020. Before joining Johns Hopkins All Children's, Dr. Kanoff was the director of pediatric neurology and epilepsy education program at Essentia Health-Duluth Clinic in Minnesota. Dr. Kanoff earned his Doctor of Osteopathy degree from Southeastern University of Health Sciences/Southeastern College of Osteopathic Medicine in North Miami Beach, Florida. He completed his residency in general neurology and fellowship in pediatric neurology at the University of Miami/Jackson Memorial Medical Center. Dr. Kanoff is a member of the American Academy of Neurology. He also earned his Juris Doctorate from Concord Law School at Kaplan University. Dr. Kanoff is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Seizures, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Memory Loss, and Tuberous Sclerosis. Dr. Kanoff is board certified in American Board Of Psychiatry And Neurology.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology | Pediatric Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology | Pediatric Radiology

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English

    Les Folio is a Radiologist and a Neuroradiologist practicing medicine in Tampa, Florida. Dr. Folio is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Lymphofollicular Hyperplasia, Febrile Neutropenia, Bronchiectasis, and Pleurisy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Orlando Health Scripts

    1400 S Orange Ave, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Fernando Pinheiro is a Neurologist practicing medicine in Orlando, Florida. Dr. Pinheiro is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Hemangioblastoma, Brain Tumor, Glioma, and Astrocytoma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology

    Baptist Health Baptist Hospital

    8900 N Kendall Dr, 
    Miami, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Charif Sidani is a Neuroradiologist practicing medicine in Miami, Florida. Dr. Sidani is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Normal Pressure Hydrocephalus, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, and Meningioma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Memorial Regional Hospital

    3501 Johnson St, 
    Hollywood, FL 
    Languages Spoken:
    English

    Robert Uzor is a Radiologist practicing medicine in Hollywood, Florida. Dr. Uzor is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Melorheostosis, Melorheostosis with Osteopoikilosis, Osteopenia, and Tenosynovitis.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Moffitt Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Valentina Tarasova is an Endocrinologist practicing medicine in Tampa, Florida. Dr. Tarasova is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Thyroid Cancer, Papillary Thyroid Cancer, Thyroid Nodule, Follicular Thyroid Cancer, and Thyroidectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Uf Health Endocrinology-Deerwood Park

    10475 Centurion Pkwy N Ste 201, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Christian Koch is an Endocrinologist practicing medicine in Jacksonville, Florida. Dr. Koch is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Thyroid Nodule, Thyroid Cancer, Papillary Thyroid Cancer, Neuroendocrine Tumor, and Hormone Replacement Therapy (HRT).

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Moffitt Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English

    Melissa Mcgettigan is a Radiologist practicing medicine in Tampa, Florida. Dr. Mcgettigan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Lymphofollicular Hyperplasia, Ureterocele, Myxoid Liposarcoma, and Epithelioid Sarcoma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Moffitt International Plaza

    4101 Jim Walter Blvd, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Nainesh Parikh is a Radiologist practicing medicine in Tampa, Florida. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Enlarged Prostate (BPH), Ureterocele, Renal Cell Carcinoma (RCC), Prostatic Artery Embolization, and Gastrostomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Mayo Clinic Hospital In Florida

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Candice Bolan is a Radiologist practicing medicine in Jacksonville, Florida. Dr. Bolan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Ascites, Visceromegaly, Alveolar Soft Part Sarcoma, Pancreaticoduodenectomy, and Hepato-Pancreato-Biliary Surgery.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Nam Tran is a Neurosurgery provider practicing medicine in Tampa, Florida. Dr. Tran is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Metastatic Brain Tumor, Awake Craniotomy, and Bone Graft. Dr. Tran is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Office

    1095 NW 14th Ter, 
    Miami, FL 
    Languages Spoken:
    English

    Roberto Heros is a Neurosurgery provider practicing medicine in Miami, Florida. Dr. Heros is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Cerebellum Agenesis Hydrocephaly, Normal Pressure Hydrocephalus, Congenital Cardiovascular Shunt, and Extracranial-Intracranial Bypass Surgery.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Bascom Palmer Eye Institute-Anne Bates Leach Eye Hospital

    900 NW 17th St, 
    Miami, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Schwartz is an Ophthalmologist practicing medicine in Miami, Florida. Dr. Schwartz is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Endophthalmitis, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Office

    1400 S Orange Ave, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Jad Chahoud is an Oncologist practicing medicine in Orlando, Florida. Dr. Chahoud is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Penile Cancer, Renal Cell Carcinoma (RCC), Familial Wilms Tumor 2, Penectomy, and Nephrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Surgical Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Surgical Oncology

    Baptist Health Brain & Spine Care | Kendall (Suite 400W)

    8950 N Kendall Dr Ste 400W, 
    Miami, FL 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Mcdermott is a Surgical Oncologist practicing medicine in Miami, Florida. He has been practicing medicine for over 44 years. Dr. Mcdermott is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Meningioma, Brain Tumor, Olfactory Neuroblastoma, Gamma Knife Radiosurgery, and Awake Craniotomy. Dr. Mcdermott is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Orlando Health Medical Group

    1920 Don Wickham Dr Ste 335, 
    Clermont, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Emad Abdelsatar is a primary care provider, practicing in Internal Medicine in Clermont, Florida. Dr. Abdelsatar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Childhood Iron Deficiency Anemia, Pneumonia, Cirrhosis, Ureteroscopy, and Pacemaker Implantation.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Coastal Eye Institute

    1427 S Tamiami Trl, 
    Sarasota, FL 
    Languages Spoken:
    English

    Garry Condon is an Ophthalmologist practicing medicine in Sarasota, Florida. Dr. Condon is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cataract, Glaucoma, Hypothalamic Hamartomas, Trabeculectomy, and Cataract Removal.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Ascension Medical Group Sacred Heart Primary Care-Pace

    3754 Highway 90 Ste 200, 
    Pace, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Kincaid is a primary care provider, practicing in Family Medicine in Pace, Florida. Dr. Kincaid is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Maturity Onset Diabetes of the Young.

    Showing 1-20 of 64

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Florida, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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