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    Last Updated: 10/30/2025

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    MediFind found 19 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Philadelphia, PA. Of these, 13 are Experienced, 4 are Advanced and 2 are Distinguished.

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    LocationClose
    19 providers found
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      Jefferson University Physicians

      925 Chestnut St, 
      Philadelphia, PA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      James Evans is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Meningioma, Pituitary Tumor, Prolactinoma, Septoplasty, and Gamma Knife Radiosurgery. Dr. Evans is currently accepting new patients.

      Carol L. Shields
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Shields And Shields PC

      840 Walnut St, Fl 14, 
      Philadelphia, PA 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Carol Shields is an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Temple Faculty Practice Plan Inc

      3509 N Broad St, 
      Philadelphia, PA 
       (3.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Alexander Kutikov is an Urologist in Philadelphia, Pennsylvania. Dr. Kutikov is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Cystectomy.

      Learn about our expert tiers
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Nuclear Medicine
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Nuclear Medicine
      3400 Spruce Street, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Rodolfo Perini is a Hematologist Oncology specialist and a Nuclear Medicine provider in Philadelphia, Pennsylvania. Dr. Perini is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Von Hippel-Lindau (VHL) Syndrome, Skeletal-Extraskeletal Angiomatosis, Endoscopy, and Colonoscopy.

      Joseph S. Pulido
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Retinovitreous Associates Ltd

      840 Walnut St, 1020 Mid Atlantic Retina, 
      Philadelphia, PA 
       (0.6 miles away)
      Languages Spoken:
      English

      Joseph Pulido is an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Pulido is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Late-Onset Retinal Degeneration, Uveal Melanoma, Vitrectomy, and Trabeculectomy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Scheie Eye Institute Perelman

      3400 Civic Center Boulevard, West Pavilion, 3rd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Albert Maguire is an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Maguire is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Leber Congenital Amaurosis, Choroideremia, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Vitrectomy. Dr. Maguire is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      Penn Neuroscience Center - Neurosurgery

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eric Zager is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Zager has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Jefferson University Physicians

      3 Crescent Dr, Suite 100, 
      Philadelphia, PA 
       (3.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Adam Metwalli is an Urologist in Philadelphia, Pennsylvania. Dr. Metwalli is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Renal Oncocytoma, Von Hippel-Lindau (VHL) Syndrome, Nephrectomy, and Orchiectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      Jefferson University Physicians

      834 Chestnut St, Terrace Suite T 150, 
      Philadelphia, PA 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kevin Judy is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Judy is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Meningioma, Glioblastoma, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neuroradiology | Radiology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neuroradiology | Radiology

      Jefferson University Physicians

      834 Walnut St, Suite 110, 
      Philadelphia, PA 
       (0.6 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Michael Hoch is a Neuroradiologist and a Radiologist in Philadelphia, Pennsylvania. Dr. Hoch has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Stroke, Subarachnoid Hemorrhage, Pediatric Low-Grade Glioma (pLGG), Vertebroplasty, and Cordotomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Penn-Medical Group

      3400 Spruce St, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Rosita Shah is a Radiologist in Philadelphia, Pennsylvania. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Collapsed Lung, Pleurisy, Pleural Effusion, and Lung Nodules.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Pediatric Radiology | Radiology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Pediatric Radiology | Radiology

      Radiology Associates Of Children's Hospital

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Lisa States is a Pediatric Radiologist and a Radiologist in Philadelphia, Pennsylvania. Dr. States is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Insulinoma, Von Hippel-Lindau (VHL) Syndrome, Osteopenia, Neuroendocrine Tumor, and Pancreatectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      421 Curie Blvd, 624 Brb, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English

      Eunkyung Kauh is an Endocrinologist in Philadelphia, Pennsylvania. Dr. Kauh is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Type 2 Diabetes (T2D) and Von Hippel-Lindau (VHL) Syndrome.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Penn Neurosurgery University City

      3737 Market Street, 8th Floor, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Berje Shammassian is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Shammassian is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, Fractured Spine, Stroke, Osteotomy, and Thrombectomy. Dr. Shammassian is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Temple Faculty Practice Plan Inc

      3401 N Broad St, 
      Philadelphia, PA 
       (3.7 miles away)
      Languages Spoken:
      English

      Barton Milestone is a Radiologist in Philadelphia, Pennsylvania. Dr. Milestone is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are WT1-Related Wilms Tumor Syndromes, Lung Nodules, Alveolar Soft Part Sarcoma, and Gastroesophageal Junction Cancer.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Temple Faculty Practice Plan Inc

      2301 E Allegheny Ave, 
      Philadelphia, PA 
       (4.0 miles away)
      Languages Spoken:
      English

      Syed Andrabi is a Radiologist in Philadelphia, Pennsylvania. Dr. Andrabi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are WT1-Related Wilms Tumor Syndromes, Thyroid Nodule, Muscle Invasive Bladder Cancer, and Neuroendocrine Tumor.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Clinical Health Care Associates Of New Jersey PC

      1006 Mantua Pike, 
      Woodbury, NJ 
       (9.7 miles away)
      Languages Spoken:
      English

      Evan Siegelman is a Radiologist in Woodbury, New Jersey. Dr. Siegelman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Fibrolamellar Carcinoma, Renal Cell Carcinoma (RCC), WT1-Related Wilms Tumor Syndromes, and Adrenal Cancer.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Retinovitreous Associates Ltd

      4060 Butler Pike, Suite 200, 
      Plymouth Meeting, PA 
       (12.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Allen Ho is an Ophthalmologist in Plymouth Meeting, Pennsylvania. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Vein Occlusion, Vitrectomy, and Cataract Removal. Dr. Ho is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Abington Memorial Hospital

      3941 Commerce Ave, 
      Willow Grove, PA 
       (14.6 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Patrick Gomella is an Urologist in Willow Grove, Pennsylvania. Dr. Gomella has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Testicular Torsion, Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Orchiectomy, and Prostatectomy.

      Showing 1-19 of 19

      Last Updated: 10/30/2025

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Philadelphia, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Philadelphia, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Philadelphia, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Philadelphia, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Philadelphia, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Philadelphia, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Philadelphia, PA?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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