The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Kentucky, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Kentucky, US. Of these, 10 are Experienced and 1 are Advanced.

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11 providers found
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology

    Norton Children's Hospital

    231 E Chestnut St, 
    Louisville, KY 
    Languages Spoken:
    English

    John Butman is a Neuroradiologist in Louisville, Kentucky. Dr. Butman is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurofibromatosis Type 2 (NF2), Traumatic Brain Injury, Von Hippel-Lindau (VHL) Syndrome, and Neurofibromatosis.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Neurosurgical Consultants LLP

    2200 E Parrish Ave Bldg D, 
    Owensboro, KY 
    Languages Spoken:
    English

    Carl Watkins is a Radiologist in Owensboro, Kentucky. Dr. Watkins is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Lung Nodules, Chronic Cough, Vertigo, and Nasal Flaring.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Uofl Health-Uofl Hospital

    530 S Jackson St, 
    Louisville, KY 
    Languages Spoken:
    English

    Fahimul Huda is a Radiologist in Louisville, Kentucky. Dr. Huda is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Erdheim-Chester Disease, Arachnoiditis, Pseudotumor Cerebri Syndrome, and Von Hippel-Lindau (VHL) Syndrome.

    Learn about our expert tiers
    Rebecca Redman
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Uofl Health-Brown Cancer Center

    529 S Jackson St, 
    Louisville, KY 
    Languages Spoken:
    English

    Rebecca Redman is a Hematologist in Louisville, Kentucky. Dr. Redman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Laryngeal Cancer, Throat Cancer, Familial Colorectal Cancer, and Merkel Cell Carcinoma.

    Christopher B. Shields
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Norton Neuroscience Institute - Neurosurgery

    210 East Gray Street, Suite 1105, 
    Louisville, KY 
    Experience:
    60+ years
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Shields is a Neurosurgery provider in Louisville, Kentucky. Dr. Shields has been practicing medicine for over 60 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Mononeuritis Multiplex, Spinal Stenosis, Hereditary Neuralgic Amyotrophy, Laminectomy, and Microdiscectomy. Dr. Shields is currently accepting new patients.

    John E. Harpring
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Norton Neuroscience Institute - Neurosurgery

    210 East Gray Street, Suite 1105, 
    Louisville, KY 
    Experience:
    37+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Harpring is a Neurosurgery provider in Louisville, Kentucky. Dr. Harpring has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Cervical Myelopathy, Cervical Spondylosis, Spinal Stenosis, Laminectomy, and Microdiscectomy. Dr. Harpring is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    UK Healthcare Women's Health

    740 Rose St Ste B101, 
    Lexington, KY 
    Languages Spoken:
    English

    Saman Sizdahkhani is a Neurosurgery provider in Lexington, Kentucky. Dr. Sizdahkhani is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Hemangioblastoma, Arteriovenous Malformation, Hemangioma, Thrombectomy, and Carotid Artery Surgery.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    UK Healthcare Women's Health

    740 Rose St Ste B101, 
    Lexington, KY 
    Languages Spoken:
    English

    David Dornbos is a Neurosurgery provider in Lexington, Kentucky. Dr. Dornbos is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Stroke, Subarachnoid Hemorrhage, Thrombophlebitis, Thrombectomy, and Craniectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    T.J. Health Pavilion

    310 N L Rogers Wells Blvd, 
    Glasgow, KY 
    Languages Spoken:
    English

    Matthew Rutter is a Urologist in Glasgow, Kentucky. Dr. Rutter is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are UPJ Obstruction, Obstructive Uropathy, Hydronephrosis, Nephrectomy, and Reconstructive Urology Surgery.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Kentucky Children's Hospital

    800 Rose St, 
    Lexington, KY 
    Languages Spoken:
    English

    Thomas Pittman is a Neurosurgery provider in Lexington, Kentucky. Dr. Pittman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Meningioma, Radiation Induced Meningioma, Posterior Fossa Tumor, Awake Craniotomy, and Gastrostomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Uofl Physicians-Neurosurgery

    3920 Dutchmans Ln Ste 306, 
    Louisville, KY 
    Languages Spoken:
    English

    Brian Williams is a Neurosurgery provider in Louisville, Kentucky. Dr. Williams is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Astrocytoma, Glioblastoma, Posterior Fossa Tumor, Gamma Knife Radiosurgery, and Awake Craniotomy.

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    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Kentucky, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Kentucky, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Kentucky, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Kentucky, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Kentucky, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Kentucky, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Kentucky, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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