The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Massachusetts, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 48 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Massachusetts, US. Of these, 37 are Experienced, 10 are Advanced and 1 are Distinguished.

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48 providers found
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Carlos Fernandez-Del Castillo MD

    15 Parkman St, 
    Boston, MA 
    Languages Spoken:
    English

    Gilbert Daniels is an Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Daniels is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Thyroid Cancer, Follicular Thyroid Cancer, Thyroid Nodule, Papillary Thyroid Cancer, and Thyroidectomy.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
    Experience:
    44+ years
    Languages Spoken:
    English

    Shizuo Mukai is an Ophthalmologist practicing medicine in Boston, Massachusetts. He has been practicing medicine for over 44 years. Dr. Mukai is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Retinal Detachment, Retinoblastoma, Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, and Vitrectomy.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Mass Eye And Ear, Longwood Eye Care

    800 Huntington Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Daniel Vu is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Vu is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Peters Anomaly, Trabeculectomy, and Iridectomy. Dr. Vu is board certified in Ophthalmology.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Brigham And Women's Hospital, Division Of Endocrinology, Diabetes And Hypertension

    221 Longwood Avenue 2nd Floor Brigham And Women's At 221 Longwood Boston, 2nd Floor Brigham And Women's At 221 Longwood, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Anand Vaidya is an Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Vaidya is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Glomus Tympanum Tumor, Hereditary Neuroblastoma, Neuroblastoma, and Glomus Jugulare Tumor. Dr. Vaidya is board certified in Endocrinology, Diabetes And Metabolism.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Brigham And Womens Physicians Organization Inc

    75 Francis St, 
    Boston, MA 
    Languages Spoken:
    English

    Katherine Krajewski is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Krajewski is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Renal Cell Carcinoma (RCC), ALK-Positive Non-Small Cell Lung Cancer, Cholangiocarcinoma (Bile Duct Cancer), and WT1-Related Wilms Tumor Syndromes. Dr. Krajewski is board certified in Diagnostic Radiology.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics

    Office

    2 Longfellow Pl Ste 201, 
    Boston, MA 
    Languages Spoken:
    English

    David Walton is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Walton is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Walker Dyson Syndrome, Aniridia, Sturge-Weber Syndrome, Trabeculectomy, and Cataract Removal.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    The General Hospital Corporation

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Micalizzi is an Oncologist practicing medicine in Boston, Massachusetts. Dr. Micalizzi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses BRCA Positive Breast Cancer, Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, and Phacomatosis Pigmentokeratotica. Dr. Micalizzi is board certified in Internal Medicine and Medical Oncology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Stephan Voss is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Voss is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Idiopathic Dilatation of the Pulmonary Artery, Pulmonary Vein Stenosis, Rhabdomyosarcoma, and Nerve Decompression.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Yang is a Radiologist practicing medicine in Boston, Massachusetts. Dr. Yang is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatric Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatric Radiology

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Raja Shaikh is a Pediatric Radiologist practicing medicine in Boston, Massachusetts. Dr. Shaikh is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Blue Rubber Bleb Nevus Syndrome, Congenital Athymia, Aberrant Subclavian Artery, and Kimura Disease.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Carlos Fernandez-Del Castillo MD

    15 Parkman St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Giuseppe Barbesino is an Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Barbesino is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Thyroid Cancer, Graves Disease, Follicular Thyroid Cancer, and Thyroid Nodule.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    William Kaelin is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kaelin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Cerebral Hypoxia, Renal Cell Carcinoma (RCC), and Milk-Alkali Syndrome.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Hematology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Hematology

    Dana-Farber Cancer Institute-Chestnut Hill

    300 Boylston St, 
    Chestnut Hill, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Judy Garber is a Hematologist practicing medicine in Chestnut Hill, Massachusetts. Dr. Garber is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses HER2 Negative Breast Cancer, Li-Fraumeni Syndrome, BRCA Positive Breast Cancer, and Peutz-Jeghers Syndrome.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Plotkin is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Plotkin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Office

    1 Montvale Ave Ste 501, 
    Stoneham, MA 
    Languages Spoken:
    English

    Allison Soneru is an Ophthalmologist practicing medicine in Stoneham, Massachusetts. Dr. Soneru is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Glaucoma, Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, and Linear Nevus Sebaceous Syndrome.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Massachusetts Eye And Ear

    800 Huntington Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Milica Margeta is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Margeta is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Linear Nevus Sebaceous Syndrome, Trabeculectomy, and Cataract Removal.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Deborah Vanderveen is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Vanderveen is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Congenital Cataract, Strabismus, Retinopathy of Prematurity, Cataract Removal, and Trabeculectomy.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine

    The General Hospital Corporation

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Jocelyn Ronda is a primary care provider, practicing in Pediatrics and Internal Medicine in Boston, Massachusetts. Dr. Ronda is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Hypothalamic Hamartomas, Sturge-Weber Syndrome, Tieche-Jadassohn Nevus, and Peutz-Jeghers Syndrome. Dr. Ronda is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
    Languages Spoken:
    English

    Evangelos Gragoudas is an Ophthalmologist practicing medicine in Boston, Massachusetts. Dr. Gragoudas is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, Choroid Plexus Carcinoma, and Vitrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Office

    41 Mall Rd # 4, 
    Burlington, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Andrea Sorcini is a Urologist practicing medicine in Burlington, Massachusetts. Dr. Sorcini is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Bladder Cancer, Muscle Invasive Bladder Cancer, Non-Muscle Invasive Bladder Cancer, Nephrectomy, and Reconstructive Urology Surgery.

    Showing 1-20 of 48

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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