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    Last Updated: 01/09/2026

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    MediFind found 49 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Massachusetts, US. Of these, 37 are Experienced, 11 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    49 providers found
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients

      Shizuo Mukai is an Ophthalmologist in Boston, Massachusetts. Dr. Mukai has been practicing medicine for over 44 years and is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Retinal Detachment, Retinoblastoma, Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, and Vitrectomy. Dr. Mukai is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English

      Gilbert Daniels is an Endocrinologist in Boston, Massachusetts. Dr. Daniels is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Thyroid Cancer, Follicular Thyroid Cancer, Thyroid Nodule, Papillary Thyroid Cancer, and Thyroidectomy.

      David S. Walton
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Pediatrics
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Pediatrics
      2 Longfellow Place, Suite 201, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      David Walton is an Ophthalmologist and a Pediatrics provider in Boston, Massachusetts. Dr. Walton is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Aniridia, Walker Dyson Syndrome, Sturge-Weber Syndrome, Trabeculectomy, and Cataract Removal. Dr. Walton is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine | Pediatrics
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine | Pediatrics

      CHA Revere Care Center

      454 Broadway Fl 3, 
      Revere, MA 
      Languages Spoken:
      English
      Offers Telehealth

      David Roll is a primary care provider, practicing in Internal Medicine and Pediatrics in Revere, Massachusetts. Dr. Roll is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Chronic Pain, Seasonal Affective Disorder (SAD), Schizoaffective Disorder, and Kawasaki Disease.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      44 Binney Street, Dana Farber Cancer Institute, 
      Boston, MA 
      Languages Spoken:
      English

      William Kaelin is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kaelin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Cerebral Hypoxia, Renal Cell Carcinoma (RCC), and Retinoblastoma.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Oncology | Hematology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Oncology | Hematology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Judy Garber is a Hematologist Oncology specialist and an Oncologist in Boston, Massachusetts. Dr. Garber is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Li-Fraumeni Syndrome, BRCA Positive Breast Cancer, HER2 Negative Breast Cancer, and Phacomatosis Pigmentokeratotica. Dr. Garber is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neuroradiology | Radiology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neuroradiology | Radiology

      Pratt Radiology Associates Inc

      800 Washigton St, 
      Boston, MA 
      Languages Spoken:
      English

      John Butman is a Neuroradiologist and a Radiologist in Boston, Massachusetts. Dr. Butman is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurofibromatosis Type 2 (NF2), Traumatic Brain Injury, Von Hippel-Lindau (VHL) Syndrome, and Neurofibromatosis.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Allison Soneru is an Ophthalmologist in Boston, Massachusetts. Dr. Soneru is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glaucoma, Tieche-Jadassohn Nevus, Phacomatosis Pigmentokeratotica, and Peutz-Jeghers Syndrome. Dr. Soneru is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      800 Huntington Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Milica Margeta is an Ophthalmologist in Boston, Massachusetts. Dr. Margeta is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Linear Nevus Sebaceous Syndrome, Trabeculectomy, and Cataract Removal. Dr. Margeta is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Vu is an Ophthalmologist in Boston, Massachusetts. Dr. Vu is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Peters Anomaly, Peters Plus Syndrome, Glaucoma, and Axenfeld-Rieger Syndrome. Dr. Vu is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Vanderveen is an Ophthalmologist in Boston, Massachusetts. Dr. Vanderveen is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Congenital Cataract, Strabismus, Retinopathy of Prematurity, Cataract Removal, and Trabeculectomy. Dr. Vanderveen is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Pediatrics | Internal Medicine
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Pediatrics | Internal Medicine

      The General Hospital Corporation

      385 Broadway, 
      Revere, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Jocelyn Ronda is a primary care provider, practicing in Pediatrics and Internal Medicine in Revere, Massachusetts. Dr. Ronda is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Linear Nevus Sebaceous Syndrome, Phacomatosis Pigmentokeratotica, Tieche-Jadassohn Nevus, and Von Hippel-Lindau (VHL) Syndrome. Dr. Ronda is currently accepting new patients.

      Evangelos S. Gragoudas
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      243 Charles St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Evangelos Gragoudas is an Ophthalmologist in Boston, Massachusetts. Dr. Gragoudas is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, Choroid Plexus Carcinoma, and Vitrectomy. Dr. Gragoudas is currently accepting new patients.

      John B. Miller
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Miller is an Ophthalmologist in Boston, Massachusetts. Dr. Miller has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Age-Related Macular Degeneration (ARMD), Retinal Detachment, Late-Onset Retinal Degeneration, Diabetic Retinopathy, and Vitrectomy. Dr. Miller is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Lahey Clinic Inc

      41 Mall Rd, Lahey Provider Enrollment Dept, 
      Burlington, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrea Sorcini is an Urologist in Burlington, Massachusetts. Dr. Sorcini is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Bladder Cancer, Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, Nephrectomy, and Reconstructive Urology Surgery. Dr. Sorcini is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Pediatrics | Pediatric Neurology | Neurology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Pediatrics | Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Anna Pinto is a Pediatrics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Pinto is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Seizures, and Epilepsy in Children.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Oncology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Oncology

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Douglas Micalizzi is a Hematologist Oncology specialist and an Oncologist in Boston, Massachusetts. Dr. Micalizzi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are HER2 Negative Breast Cancer, Li-Fraumeni Syndrome, BRCA Positive Breast Cancer, and Phacomatosis Pigmentovascularis. Dr. Micalizzi is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Ophthalmic Consultants Of Boston Inc

      104 Endicott St, Suite 303, 
      Danvers, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Ambika Hoguet is an Ophthalmologist in Danvers, Massachusetts. Dr. Hoguet is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Cataract, Trabeculectomy, and Iridectomy. Dr. Hoguet is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hospital Medicine | Hematology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hospital Medicine | Hematology

      Lahey Clinic Inc

      41 Mall Rd, 
      Burlington, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Brendan Connell is a Hematologist Oncology specialist and a Hospital Medicine provider in Burlington, Massachusetts. Dr. Connell is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Prostate Cancer, Familial Prostate Cancer, Small Cell Lung Cancer (SCLC), Lung Cancer, and Liver Embolization. Dr. Connell is currently accepting new patients.

      Showing 1-20 of 49

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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