The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Maryland, US
Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists
Mark Ball is a Plastic Surgeon and a Urologist practicing medicine in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy. Dr. Ball is board certified in American Board Of Urology.
Dept Of Transfusion Medicine/Nih Clinical Center
Emily Chew is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.
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Prashant Chittiboina is a Neurosurgery provider practicing medicine in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.
The Kennedy Krieger Institute
Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization. Dr. Comi is board certified in American Board Of Psychiatry And Neurology.
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Sandeep Gurram is a Urologist practicing medicine in Bethesda, Maryland. Dr. Gurram is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Prostate Cancer, Renal Cell Carcinoma (RCC), Nephrectomy, and Prostatectomy.
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Catherine Cukras is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Cukras is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Geographic Atrophy, and Retinopathy Pigmentary Mental Retardation.
Visionmd LLC
Alisa Thavikulwat is an Ophthalmologist practicing medicine in Glenn Dale, Maryland. Dr. Thavikulwat is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Geographic Atrophy, Age-Related Macular Degeneration (ARMD), Von Hippel-Lindau (VHL) Syndrome, Late-Onset Retinal Degeneration, and Cataract Removal.
Neurology Consultants-Severna Park
Clifford Andrew is a Neurologist practicing medicine in Severna Park, Maryland. Dr. Andrew is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Peutz-Jeghers Syndrome, Phacomatosis Pigmentovascularis, and Cowden Syndrome.
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Peter Choyke is a Radiologist practicing medicine in Bethesda, Maryland. Dr. Choyke is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Smoldering Multiple Myeloma, Congenital Hepatic Fibrosis, Desmoid Tumor, Prostatectomy, and Endoscopy.
Progressive Radiology
Nicholas Patronas is a Radiologist practicing medicine in Hagerstown, Maryland. Dr. Patronas is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Invertebral Disc Disease, Scoliosis, Herniated Disk, and Cushing's disease.
Johns Hopkins Outpatient Center
Dr. Douglas Ball is an associate professor of medicine at the Johns Hopkins University School of Medicine. He holds a joint appointment in oncology. His areas of clinical expertise include diagnostic radiology, endocrine oncology, thyroid cancer and thyroid diseases. Dr. Ball earned his M.D. from the George Washington University School of Medicine. He completed his residency at the University of Pittsburgh-Presbyterian University Hospital and performed a fellowship in endocrinology and metabolism at Johns Hopkins. His research interests include medullary thyroid cancer, differentiated thyroid cancer and anaplastic thyroid cancer. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Medullary Thyroid Carcinoma, Thyroid Cancer, Anaplastic Thyroid Cancer, and Papillary Thyroid Cancer. Dr. Ball is board certified in American Board Of Internal Medicine.
The Johns Hopkins Hospital
Dr. Linda Chi Hang Chu is an Associate Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. Her clinical expertise includes body CT, MRI and US. Her research interests include abdominal imaging, cancer imaging, radiomics, and artificial intelligence. Dr. Chu graduated from the University of Toronto in 2003 and was awarded the Governor General's Silver Medal, the highest academic achievement from the undergraduate program. She earned her medical degree as a member of AOA and phi beta kappa from Johns Hopkins University in Baltimore, MD in 2007. She completed her Diagnostic Radiology residency and body MRI fellowship at Johns Hopkins Hospital. Dr. Chu joined the Johns Hopkins faculty in 2013. Dr. Chu is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Pancreatic Ductal Adenocarcinoma, ALK-Positive Non-Small Cell Lung Cancer, Muscle Invasive Bladder Cancer, Pancreaticoduodenectomy, and Pancreatectomy. Dr. Chu is board certified in American Board Of Radiology.
Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville
Chetan Bettegowda is the director of the Johns Hopkins Department of Neurosurgery. He offers comprehensive treatments for adult patients with benign and malignant brain tumors, specializing in the treatment of patients with primary brain tumors such as gliomas, meningiomas and pituitary tumors. He performs both open surgery and stereotactic radiosurgery for patients with metastatic tumors to the brain, and also provides stereotactic radiosurgery for other neurological disorders, including spinal tumors, trigeminal neuralgia and skull-base tumors. Dr. Bettegowda is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression. Dr. Bettegowda is board certified in American Board Of Neurological Surgery.
Johns Hopkins Outpatient Center
Dr. Mark Luciano is the director of the Johns Hopkins Hydrocephalus and Cerebral Fluid Center. A renowned leader in treating hydrocephalus, Dr. Luciano is distinguished both nationally and internationally for his research and educational and clinical work in neuroendoscopy. Dr. Luciano treats adults with hydrocephalus, pseudotumor cerebri, intracranial hypotension, Chiari malformations, and cerebral and spinal cysts. He has significant expertise treating children and adults with cerebrospinal fluid leaks and congenital disorders. Among his accomplishments in neuroscience research and biomedical engineering are his investigation of the cerebrovascular response to hydrocephalus and the invention of a unique device for control of intracranial pressure (ICP) pulsatility to increase blood flow. His National Institutes of Health-funded studies have explored prolonged compression and hypoxia in the brain as a result of hydrocephalus, as well as the interaction between cerebrospinal fluid and vascular systems. Dr. Luciano is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Normal Pressure Hydrocephalus, Increased Intracranial Pressure, Posterior Fossa Decompression, and Stent Placement. Dr. Luciano is board certified in American Board Of Neurological Surgery.
The Johns Hopkins Hospital
Dr. Elliot K. Fishman is a Professor in the Johns Hopkins Medicine Department Radiology and Radiological Science, Department of Oncology and Department of Surgery. He serves as a member of the Johns Hopkins Kimmel Cancer Center. His clinical and research interests focus on medical imaging with specific emphasis on three-dimensional (3D) imaging and computed tomography (CT). Dr. Fishman received his B.S. in 1973 and M.D. in 1977 from the University of Maryland. After a residency at Sinai Hospital in Baltimore, he completed a fellowship in CT at Johns Hopkins in 1980 and joined the Johns Hopkins faculty in 1981 as an Assistant Professor. In 1986, he became Associate Professor and, in 1991, Professor of Radiology and Oncology. He is a leader in the development of 3D imaging and rendering, including its impacts on and uses in patient care and management. He was involved from the beginning in the development of 3D imaging through his work with Pixar, which was a spin-off from LucasFilms in San Rafael, California. Over the last 25 years, Dr. Fishman continued to help develop 3D imaging and has been a leader in the development of interactive 3D rendering. His team is consistently at the forefront of research and development of new visualization and post-processing techniques and technologies. Dr. Fishman's extensive body of work in CT has resulted in over 1,000 peer-reviewed publications, and he is the author or co-author of 10 textbooks. He is the recipient of three prestigious Aunt Minnie Awards, honoring his outstanding contributions as both an educator and researcher. In 2007, he was named by Medical Imaging Magazine as the Top Radiologist in the Nation. He is a member of editorial boards for more than 35 journals, an active member of several professional radiology associations and is a past-president of the Society of Body CT/MR. Dr. Fishman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Neuroendocrine Tumor, Pancreatic Ductal Adenocarcinoma, Angiosarcoma of the Liver, Pancreaticoduodenectomy, and Pancreatectomy. Dr. Fishman is board certified in American Board Of Radiology.
Johns Hopkins Outpatient Center
Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology.
Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville
Arvin K. George, MD, is a urologic surgeon specializing in the diagnosis and management of genitourinary cancers, with particular sub-specialization in kidney and prostate cancers. His clinical interests and expertise are in image-guided therapeutics, and minimally-invasive ablative/surgical techniques for prostate and kidney cancer. These include laparoscopic and robotic surgery, in addition to cryoablation, high-intensity focused ultrasound ablation, nanoparticle directed laser ablation, laser interstitial thermal therapy, and bipolar radiofrequency ablation. Dr. George obtained his medical degree from the Royal College of Surgeons in Ireland, followed by a urology residency at the Smith Institute for Urology, Hofstra North Shore-LIJ School of Medicine. He remained to complete his endourology/minimally-invasive and robotic surgery fellowship in New York gaining additional subspecialty expertise in robotic, laparoscopic, and percutaneous surgery. Subsequently, he completed a urologic oncology fellowship at the National Cancer Institute, National Institutes of Health. He then joined the clinical facility at the University of Michigan, Ann Arbor, where he directed the Prostate Cancer Programs from 2019 through 2023. Dr. George participates extensively in the discovery of urologic science and evaluation of urologic care and has co-authored over 80 peer reviewed publications. Additionally, he has authored 11 chapters in medical education books. Dr. George sees patients in clinic throughout the Baltimore region and also is available for virtual appointments for patients in Maryland, Washington D.C., New York and Michigan. Dr. George is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Renal Cell Carcinoma (RCC), Familial Prostate Cancer, Prostatectomy, and Nephrectomy. Dr. George is board certified in American Board Of Urology.
Molecular Medicine And Neuroscience
Lee Weinstein is an Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Weinstein is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Multiple Endocrine Neoplasia, Multiple Endocrine Neoplasia Type 1, Albright's Hereditary Osteodystrophy, Parathyroidectomy, and Thymectomy.
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Marcin Czarniecki is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Czarniecki is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Ureterocele, Birt-Hogg-Dube Syndrome, Von Hippel-Lindau (VHL) Syndrome, Prostatectomy, and Endoscopy.
Johns Hopkins Hospital
Daniel Mollura is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Mollura is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome and Interstitial Lung Disease.
Last Updated: 04/28/2026







