The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Michigan, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 55 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Michigan, US. Of these, 48 are Experienced, 6 are Advanced and 1 are Elite.

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55 providers found
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology | Internal Medicine
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology | Internal Medicine

    Rogel Cancer Center

    1500 E Medical Center Dr, Floor B1 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Else’s primary appointment is with the Division of Metabolism, Endocrinology and Diabetes. He received his MD degree from the University of Hamburg, Germany. He pursued his clinical training at the University of Hamburg (Residency: Internal Medicine) and the University of Michigan (Residency: Internal Medicine, Fellowship: Endocrinology). His main research interests are the genetics of endocrine tumors. Dr. Else’s clinical practice focuses on the care for patients with benign and malignant endocrine tumors, particularly pheochromocytoma, adrenocortical tumors and neuroendocrine tumors as well as accompanying hormone excess syndromes (e.g Cushing syndrome, primary aldosteronism). Dr. Else has a particular interest in taking care of patients with hereditary syndromes that predispose to the development of endocrine tumors (e.g. Multiple Endocrine Neoplasia (MEN) type 1, MEN2A & MEN2B, Hereditary Paraganglioma Syndrome). He attends the Multidisciplinary Endocrine Oncology Clinic, where patients with tumors receive diagnostic procedures and treatment. In addition he is part of the Cancer Genetics Clinic, which evaluates patients for hereditary syndromes and also facilitates regular exams and surveillance for patients at risk for endocrine tumors. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 105 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy. Dr. Else is board certified in Internal Medicine and Endocrinology, Diabetes & Metabolism.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology | Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Jayapalli Bapuraj is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Bapuraj is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation, Chiari Malformation Type 1, Stroke, Posterior Fossa Decompression, and Gastrostomy. Dr. Bapuraj is board certified in Diagnostic Radiology and Neuroradiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Daniel Barkmeier is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Barkmeier is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses WT1-Related Wilms Tumor Syndromes, Thyroid Nodule, Adrenal Cancer, and Renal Cell Carcinoma (RCC). Dr. Barkmeier is board certified in Diagnostic Radiology.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Diana Gomez is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Gomez is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Sciatica, Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Meningioma. Dr. Gomez is board certified in Diagnostic Radiology and Neuroradiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology | Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Dr. Srinivasan went to medical school in Chennai, India and pursued radiology residency at the All India Institute Medical Sciences in New Delhi. Subsequently, he did a Neuroradiology fellowship at the University of Ottawa in Canada and then joined as faculty at the University of Michigan in Ann Arbor, USA. He is presently Director of the Neuroradiology division and Associate Professor of Radiology at the University of Michigan. He received the RSNA research scholar award from 2008-2010 for his project titled ‘Creation of prediction model for response to chemoradiation in head and neck squamous cell carcinoma’. He has published over 60 papers, written 8 book chapters and presented over 90 scientific or educational presentations at national and international conferences. He is a frequent speaker at national radiology and neuroradiology conferences in the US including the American Roentgen Ray Society and the American society of Head and Neck Radiology. He presently serves on the editorial board on the Head and neck section of two premier radiology journals “Radiology” and “European Radiology”. Dr. Srinivasan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Stroke, Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), Synovial Sarcoma, Undifferentiated Pleomorphic Sarcoma, and Thrombectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Ronald Bude is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Bude is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Thyroid Nodule, Ascites, Visceromegaly, and Alcoholic Cirrhosis. Dr. Bude is board certified in Diagnostic Radiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Kimberly Shampain is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Shampain is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Visceromegaly, Ascites, Nonalcoholic Steatohepatitis (NASH), and Muscle Invasive Bladder Cancer. Dr. Shampain is board certified in Diagnostic Radiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology | Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Mohannad Ibrahim is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Ibrahim is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Stroke, Cerebellar Degeneration, Relapsing Multiple Sclerosis (RMS), and WT1-Related Wilms Tumor Syndromes. Dr. Ibrahim is board certified in Diagnostic Radiology and Neuroradiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Erica Stein is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Stein is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Ganglioneuroblastoma, Rhabdoid Tumor, Synovial Sarcoma, and Rhabdoid Tumor Predisposition Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Francisco Rodriguez is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Meningioma, Primary Lymphoma of the Brain, Mantle Cell Lymphoma (MCL), and Pediatric Low-Grade Glioma (pLGG). Dr. Rodriguez is board certified in Diagnostic Radiology and Neuroradiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Michigan Institute For Neurological Disorders (MIND)

    28595 Orchard Lake Road, Suite 200, 
    Farmington Hills, MI 
    Experience:
    29+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Singer is a Neurologist practicing medicine in Farmington Hills, Michigan. He has been practicing medicine for over 29 years. Dr. Singer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 93 other conditions, according to our data. His clinical expertise encompasses Essential Tremor, Memory Loss, Migraine, and Seizures. Dr. Singer is board certified in American Osteopathic Board Of Neurology & Psychiatry. Dr. Singer is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology | Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology | Internal Medicine

    West Ann Arbor Health Center-Parkland Plaza

    380 Parkland Plaza Ste 210, Floor 2, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Shafaq Khairi is an Internal Medicine specialist and an Endocrinologist practicing medicine in Ann Arbor, Michigan. Dr. Khairi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Hyperaldosteronism, Familial Hyperaldosteronism, Multiple Endocrine Neoplasia Type 1, and Hyperparathyroidism.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Vikas Gulani is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Gulani is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Cholangiocarcinoma (Bile Duct Cancer), Visceromegaly, Fibrolamellar Carcinoma, and Ureterocele. Dr. Gulani is board certified in Diagnostic Radiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology | Nuclear Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Neuroradiology | Nuclear Medicine

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Experience:
    17+ years
    Languages Spoken:
    English

    John Kim is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. He has been practicing medicine for over 17 years. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Stroke, Meningioma, Radiation Induced Meningioma, and Headache. Dr. Kim is board certified in Diagnostic Radiology, Nuclear Medicine, and Neuroradiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    William Weadock is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Weadock is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Synovial Sarcoma, Ureterocele, Visceromegaly, and Undifferentiated Pleomorphic Sarcoma. Dr. Weadock is board certified in Diagnostic Radiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Hero Hussain is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Hussain is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Fibrolamellar Carcinoma, Ureterocele, Cholangiocarcinoma (Bile Duct Cancer), Pancreaticoduodenectomy, and Prostatectomy. Dr. Hussain is board certified in Diagnostic Radiology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology Oncology

    The Cancer & Hematology Centers

    145 Michigan Street Northeast, Suite 3100, 
    Grand Rapids, MI 
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Brett Brinker is a Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 26 years. Dr. Brinker is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses B-Cell Lymphoma, Acute Myeloid Leukemia (AML), Non-Hodgkin Lymphoma, Acute Myeloblastic Leukemia without Maturation, and Bone Marrow Aspiration. Dr. Brinker is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine. Dr. Brinker is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Associated Retinal Consultants - Royal Oak

    3555 West 13 Mile Road, Neuroscience Center Bldg #LL-2, 
    Royal Oak, MI 
    Experience:
    43+ years
    Languages Spoken:
    English, Italian
    Accepting New Patients

    Antonio Capone is an Ophthalmologist practicing medicine in Royal Oak, Michigan. He has been practicing medicine for over 43 years. Dr. Capone is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Retinal Detachment, Norrie Disease, Retinopathy of Prematurity, Vitrectomy, and Trabeculectomy. Dr. Capone is board certified in American Board Of Ophthalmology. Dr. Capone is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Oakland Neurology Center

    633 South Boulevard East, Suite 1300, 
    Rochester Hills, MI 
    Experience:
    22+ years
    Languages Spoken:
    English, German
    Accepting New Patients

    Andrea Rossi is a Neurologist practicing medicine in Rochester Hills, Michigan. She has been practicing medicine for over 22 years. Dr. Rossi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Cockayne Syndrome Type 1, Delirium, Myoclonic Epilepsy, and Cockayne Syndrome Type 2. Dr. Rossi is board certified in American Osteopathic Board Of Neurology & Psychiatry. Dr. Rossi is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Associated Retinal Consultants - Royal Oak

    3555 West 13 Mile Road, Neuroscience Center Bldg #LL-2, 
    Royal Oak, MI 
    Experience:
    23+ years
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Faia is an Ophthalmologist practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 23 years. Dr. Faia is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Uveitis, Endophthalmitis, Punctate Inner Choroidopathy, Vitrectomy, and Cataract Removal. Dr. Faia is board certified in American Board Of Ophthalmology. Dr. Faia is currently accepting new patients.

    Showing 1-20 of 55

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Michigan, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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