The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Missouri, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 25 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Missouri, US. Of these, 22 are Experienced and 3 are Advanced.

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25 providers found
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Freeman Health System

    1102 W 32nd St, 
    Joplin, MO 
    Languages Spoken:
    English

    Yara Touma is a Radiologist practicing medicine in Joplin, Missouri. Dr. Touma is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Peutz-Jeghers Syndrome, Cowden Syndrome, Sturge-Weber Syndrome, and Linear Nevus Sebaceous Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Sanjeev Bhalla is a Radiologist practicing medicine in Saint Louis, Missouri. Dr. Bhalla is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Pleurisy, Pleural Effusion, Lung Nodules, Hepato-Pancreato-Biliary Surgery, and Pancreaticoduodenectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Cary Siegel is a Radiologist practicing medicine in Saint Louis, Missouri. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Urachal Cyst, Prostatectomy, and Gastrostomy.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Office

    1044 N Mason Rd Bldg 4, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Rajaa Almourani is an Endocrinologist practicing medicine in Saint Louis, Missouri. Dr. Almourani is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Type 1 Diabetes (T1D), Hyperparathyroidism, Thyroid Storm, and Hyperthyroidism.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Washington University School Of Medicine

    4921 Parkview Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Kim Carmichael is an Endocrinologist practicing medicine in Saint Louis, Missouri. Dr. Carmichael is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Glucocorticoid Resistance, Hypoaldosteronism, and Familial Glucocorticoid Deficiency.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Cox Medical Centers

    3801 S National Ave Ste 700, 
    Springfield, MO 
    Languages Spoken:
    English

    Hussam Alhawari is an Endocrinologist practicing medicine in Springfield, Missouri. Dr. Alhawari is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Subacute Thyroiditis, Alkaptonuria, and Bone Marrow Aspiration.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatric Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
    Languages Spoken:
    English

    Brenton Reading is a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Reading is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Mediastinal Tumor, Von Hippel-Lindau (VHL) Syndrome, and Atypical Hemolytic Uremic Syndrome (aHUS). Dr. Reading is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Curators Of The University Of Missouri

    1 Hospital Dr, 
    Columbia, MO 
    Languages Spoken:
    English

    Michael Chicoine is a Neurosurgery provider practicing medicine in Columbia, Missouri. Dr. Chicoine is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 70 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Brain Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Endovascular Embolization.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Washington University Clinical Associates

    1110 Highlands Plaza Dr E Ste 375, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Scott Groesch is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Groesch is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Phacomatosis Pigmentovascularis, Linear Nevus Sebaceous Syndrome, Peutz-Jeghers Syndrome, and Cowden Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology | Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology | Neurosurgery

    SLUCare Physician Group

    1225 S. Grand Blvd., Second Level, 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Jeroen Coppens provides surgical treatment for pituitary tumors, cerebral aneurysms, and meningiomas (tumors of brain and spinal cord). As a neurosurgeon, he performs operations for patients with neurological disorders such as cavernous malformations, arteriovenous malformations, and vascular malformations. Dr. Coppens applies the latest surgical procedures in his work, including minimally invasive techniques for pituitary tumors. His research interests include cerebral aneurysms and pituitary tumors. Dr. Coppens is a professor in the Department of Surgery, Division of Neurosurgery at Saint Louis University School of Medicine. Dr. Coppens is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Meningioma, Posterior Fossa Tumor, Pituitary Tumor, Gastrostomy, and Awake Craniotomy. Dr. Coppens is board certified in American Board Of Neurological Surgery , Drug Enforcement Administration , Illinois Department Of Financial & Professional Regulation , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Office

    4921 Parkview Pl Ste 11C, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Figenshau is a Urologist practicing medicine in Saint Louis, Missouri. Dr. Figenshau is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Ureterocele, Prostate Cancer, Nephrectomy, and Lithotripsy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Office

    1050 W 10th St, 
    Rolla, MO 
    Languages Spoken:
    English

    Bohdan Lebedowicz is a primary care provider, practicing in Internal Medicine in Rolla, Missouri. Dr. Lebedowicz is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Lung Metastases, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Washington University School Of Medicine

    4921 Parkview Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Paul Santiago is a Neurosurgery provider practicing medicine in Saint Louis, Missouri. Dr. Santiago is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Cervical Spondylosis, Sciatica, Laminectomy, and Microdiscectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Family Practice Of Central Missouri Warrensburg

    513 Burkarth Rd, 
    Warrensburg, MO 
    Languages Spoken:
    English

    Jayne Brockhaus is a primary care provider, practicing in Family Medicine in Warrensburg, Missouri. Dr. Brockhaus is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D).

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Genoa Healthcare LLC

    19515 Brune Pkwy, 
    Warrenton, MO 
    Languages Spoken:
    English

    Richard Buckles is a primary care provider, practicing in Internal Medicine in Warrenton, Missouri. Dr. Buckles is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Hypothyroidism, Tieche-Jadassohn Nevus, Cowden Syndrome, and Phacomatosis Pigmentokeratotica.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    SSM Health

    1035 Bellevue Ave, 
    Richmond Hts, MO 
    Languages Spoken:
    English

    Richard Ihnat is a primary care provider, practicing in Internal Medicine in Richmond Hts, Missouri. Dr. Ihnat is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Type 2 Diabetes (T2D).

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Pike Medical Clinic Inc

    211 S 3rd St, 
    Louisiana, MO 
    Languages Spoken:
    English

    Jan Onik is a primary care provider, practicing in Internal Medicine in Louisiana, Missouri. Dr. Onik is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Camilo Molina is a Neurosurgery provider practicing medicine in Saint Louis, Missouri. Dr. Molina is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Kyphosis, Lordosis, Spinal Tumor, Laminectomy, and Osteotomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Family Care Clinic High Street

    706 S High St, 
    Butler, MO 
    Languages Spoken:
    English

    William Haynie is a primary care provider, practicing in Family Medicine in Butler, Missouri. Dr. Haynie is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Chronic Obstructive Pulmonary Disease (COPD), Lung Metastases, Hypothyroidism, and Glucocorticoid-Remediable Aldosteronism.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Lester E Cox Medical Centers

    3801 S National Ave Ste 900, 
    Springfield, MO 
    Languages Spoken:
    English

    Rodney Quinn is a Neurologist practicing medicine in Springfield, Missouri. Dr. Quinn is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Juvenile Myoclonic Epilepsy, Memory Loss, Infant Epilepsy with Migrant Focal Crisis, and Epilepsy in Children.

    Showing 1-20 of 25

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Missouri, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Missouri, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Missouri, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Missouri, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Missouri, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Missouri, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Missouri, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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