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    Last Updated: 10/30/2025

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    MediFind found 34 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near North Carolina, US. Of these, 24 are Experienced, 8 are Advanced and 2 are Distinguished.

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    34 providers found
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Adrian Laxton is a Neurosurgery provider in Winston Salem, North Carolina. Dr. Laxton is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Trigeminal Neuralgia, Meningioma, Neuralgia, Gamma Knife Radiosurgery, and Deep Brain Stimulation. Dr. Laxton is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Rajiv Shah is an Ophthalmologist in Winston Salem, North Carolina. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Endophthalmitis, Uveitis, Neuroretinitis, Cataract Removal, and Vitrectomy. Dr. Shah is currently accepting new patients.

      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Hematology | Oncology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Hematology | Oncology

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Roy Strowd is a Neurologist and a Hematologist in Winston Salem, North Carolina. Dr. Strowd has been practicing medicine for over 17 years and is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Astrocytoma, Brain Tumor, Glioblastoma, and Deep Brain Stimulation.

      Learn about our expert tiers
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Hematology | Oncology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Hematology | Oncology

      Atrium Health Levine Cancer Institute (Medical Oncology & Immunotherapy)

      1021 Morehead Medical Drive, Suite 6100, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ashley Sumrall is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Sumrall is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glioma, Gliosarcoma, Brain Tumor, and Astrocytoma. Dr. Sumrall is currently accepting new patients.

      Pratap Challa
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Experience:
      33+ years
      Languages Spoken:
      English
      Offers Telehealth

      Pratap Challa is an Ophthalmologist in Durham, North Carolina. Dr. Challa has been practicing medicine for over 33 years and is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Iridectomy, and Cataract Removal.

      Miguel A. Materin
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Experience:
      43+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      I specialize in the diagnosis and treatment of patients with ocular tumors, including benign and malignant tumors of the eye. I have been working in this field for more than 20 years. Cancer of the eye is a rare disease, but once the tumor is found we begin the treatment process; the key is to be diagnosed and treated timely and correctly. My goal is to improve the prognosis of these rare eye diseases in terms of life, conservation of the eye and sight. There is a large team dedicated to ocular oncology at Duke Health. I work very closely with colleagues across Duke Eye Center and from Duke Cancer Center, specialists in children and adults, to develop the best diagnosis and treatment plans for patients suffering from cancer of the eye with the mission of providing optimal prognosis for life, eye and vision preservation. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, and Choroid Plexus Carcinoma.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine | General Practice | Internal Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine | General Practice | Internal Medicine

      Bethany Medical

      3402 Battleground Avenue, 
      Greensboro, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Haku Kahoano is a primary care provider, practicing in Family Medicine and Internal Medicine in Greensboro, North Carolina. Dr. Kahoano is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hepatitis C, Maturity Onset Diabetes of the Young, Hypertension, and Familial Hypertension. Dr. Kahoano is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine

      Wake Forest University Health Sciences

      4610 Country Club Rd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Francis O'brien is a primary care provider, practicing in Internal Medicine in Winston Salem, North Carolina. Dr. O'brien is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Paroxysmal Supraventricular Tachycardia (PSVT). Dr. O'brien is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      David Browning is an Ophthalmologist in Winston Salem, North Carolina. Dr. Browning is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Diabetic Retinopathy, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Diabetic Macular Edema (DME), and Vitrectomy. Dr. Browning is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      810 Spivey Rd, 
      Whiteville, NC 
      Languages Spoken:
      English
      Accepting New Patients

      David Sutton is an Ophthalmologist in Whiteville, North Carolina. Dr. Sutton is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glaucoma, Allergic Conjunctivitis, Choroid Plexus Carcinoma, and Dry Eye Syndrome. Dr. Sutton is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      General Surgery | Neurosurgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      General Surgery | Neurosurgery
      625 Country Day Rd, Goldsboro Neurological Surgery, 
      Goldsboro, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Victoria Samuels is a General Surgeon and a Neurosurgery provider in Goldsboro, North Carolina. Dr. Samuels is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Phacomatosis Pigmentokeratotica, Linear Nevus Sebaceous Syndrome, Tieche-Jadassohn Nevus, Vertebroplasty, and Bone Graft. Dr. Samuels is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Tatter is a Neurosurgery provider in Winston Salem, North Carolina. Dr. Tatter is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Radiation Induced Meningioma, Trigeminal Neuralgia, Meningioma, Gamma Knife Radiosurgery, and Deep Brain Stimulation. Dr. Tatter is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine

      Hazelwood Family Medicine PLLC

      1088 Brown Ave, 
      Waynesville, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Brown is a primary care provider, practicing in Family Medicine in Waynesville, North Carolina. Dr. Brown is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Phacomatosis Pigmentovascularis, Hypothalamic Hamartomas, Sturge-Weber Syndrome, and Phacomatosis Pigmentokeratotica. Dr. Brown is currently accepting new patients.

      Ellen S. Story
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Atrium Health Levine Cancer Institute (Head & Neck Cancer)

      1021 Morehead Medical Drive, Suite 3300, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Ellen Story is an Endocrinologist in Charlotte, North Carolina. Dr. Story is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Hypogonadism, Isolated Hypogonadotropic Hypogonadism, Pediatric Growth Hormone Deficiency, and Kallmann Syndrome. Dr. Story is currently accepting new patients.

      Veena S. Rao
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Charlotte Eye, Ear, Nose & Throat Associates, P.A. - Matthews

      724 Aubrey Bell Drive, 
      Matthews, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Veena Rao is an Ophthalmologist in Matthews, North Carolina. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glaucoma, Cataract, Ocular Hypertension (OHT), and Dry Eye Syndrome. Dr. Rao is currently accepting new patients.

      Daniel E. Haggstrom
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology | Oncology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology | Oncology

      Atrium Health Levine Cancer Institute (Thoracic-Pulmonary)

      1021 Morehead Medical Drive, Building 2, Suite 30500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Haggstrom is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Haggstrom is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Pleuropulmonary Blastoma, and Small Cell Lung Cancer (SCLC). Dr. Haggstrom is currently accepting new patients.

      Heather Shearer
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Oncology | Hematology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Oncology | Hematology

      Novant Health Cancer Institute - Forsyth (Medical Oncology)

      1010 Bethesda Court, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Heather Shearer is a Hematologist and an Oncologist in Winston Salem, North Carolina. Dr. Shearer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Familial Pancreatic Cancer, Colorectal Cancer, Familial Colorectal Cancer, and Lynch Syndrome.

      Diane Reidy
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology

      Duke Cancer Center

      20 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Diane Reidy is a Hematologist Oncology specialist and a Hematologist in Durham, North Carolina. Dr. Reidy is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Neuroendocrine Tumor, Pancreatic Islet Cell Tumor, Pancreatic Cancer, Pancreaticoduodenectomy, and Liver Embolization.

      Russ A. Bodner
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Atrium Health Neurology

      315 Medical Park Drive, Suite 202, 
      Concord, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Russ Bodner is a Neurologist in Concord, North Carolina. Dr. Bodner is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Corticobasal Degeneration, Drug Induced Dyskinesia, Migraine, and Benign Essential Blepharospasm. Dr. Bodner is currently accepting new patients.

      Rodney A. Radtke
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Sleep Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Sleep Medicine

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Experience:
      46+ years
      Languages Spoken:
      English
      Offers Telehealth

      I have been a faculty member at Duke for 30 years, specializing in the care of patients with epilepsy or sleep disorders. During that time, I have seen tremendous progress in the treatments available in both areas, and I remain excited about being able to provide those advances to my patients. I have also recently gained a personal perspective, having been diagnosed with obstructive sleep apnea, and becoming a dedicated CPAP user myself. Dr. Radtke is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Seizures, Memory Loss, Obstructive Sleep Apnea, and Epilepsy.

      Showing 1-20 of 34

      Last Updated: 10/30/2025

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in North Carolina, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in North Carolina, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in North Carolina, US?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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