The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in North Carolina, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 45 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near North Carolina, US. Of these, 31 are Experienced, 10 are Advanced and 4 are Distinguished.

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45 providers found
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology

    Atrium Health Levine Cancer Institute (Medical Oncology & Immunotherapy)

    1021 Morehead Medical Drive, Suite 6100, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ashley Sumrall is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Sumrall is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Glioma, Gliosarcoma, Brain Tumor, and Astrocytoma. Dr. Sumrall is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine, Medical Oncology. Dr. Sumrall is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Duke Eye Center

    2351 Erwin Rd, 
    Durham, NC 
    Experience:
    33+ years
    Languages Spoken:
    English
    Offers Telehealth

    Pratap Challa is an Ophthalmologist practicing medicine in Durham, North Carolina. He has been practicing medicine for over 33 years. Dr. Challa is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Iridectomy, and Cataract Removal. Dr. Challa is board certified in American Board Of Ophthalmology, Ophthalmology.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Duke Eye Center

    2351 Erwin Rd, 
    Durham, NC 
    Experience:
    43+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    I specialize in the diagnosis and treatment of patients with ocular tumors, including benign and malignant tumors of the eye. I have been working in this field for more than 20 years. Cancer of the eye is a rare disease, but once the tumor is found we begin the treatment process; the key is to be diagnosed and treated timely and correctly. My goal is to improve the prognosis of these rare eye diseases in terms of life, conservation of the eye and sight. There is a large team dedicated to ocular oncology at Duke Health. I work very closely with colleagues across Duke Eye Center and from Duke Cancer Center, specialists in children and adults, to develop the best diagnosis and treatment plans for patients suffering from cancer of the eye with the mission of providing optimal prognosis for life, eye and vision preservation. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, Choroid Plexus Carcinoma, and Vitrectomy.

    Learn about our expert tiers
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Dan Gombos is an Ophthalmologist practicing medicine in Cary, North Carolina. Dr. Gombos is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Metastatic Uveal Melanoma, Retinoblastoma, and Uveal Melanoma.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Ian Mccutcheon is a Neurosurgery provider practicing medicine in Cary, North Carolina. Dr. Mccutcheon is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Pituitary Tumor, Malignant Peripheral Nerve Sheath Tumor, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Surena Matin is a Urologist practicing medicine in Cary, North Carolina. Dr. Matin is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Upper Tract Urothelial Carcinoma (UTUC), Renal Cell Carcinoma (RCC), Urothelial Cancer, Nephrectomy, and Reconstructive Urology Surgery.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    Atrium Health Levine Cancer Institute (Head & Neck Cancer)

    1021 Morehead Medical Drive, Suite 3300, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Ellen Story is an Endocrinologist practicing medicine in Charlotte, North Carolina. Dr. Story is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Hypopituitarism, Hypogonadism, Kallmann Syndrome, and Sheehan Syndrome. Dr. Story is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Charlotte Eye, Ear, Nose & Throat Associates, P.A. - Matthews

    724 Aubrey Bell Drive, 
    Matthews, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Veena Rao is an Ophthalmologist practicing medicine in Matthews, North Carolina. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Glaucoma, Cataract, Ocular Hypertension (OHT), and Dry Eye Syndrome. Dr. Rao is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology

    Atrium Health Levine Cancer Institute (Thoracic-Pulmonary)

    1021 Morehead Medical Drive, Building 2, Suite 30500, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Haggstrom is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Haggstrom is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Pleuropulmonary Blastoma, and Small Cell Lung Cancer (SCLC). Dr. Haggstrom is board certified in American Board Of Internal Medicine. Dr. Haggstrom is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Hematology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Hematology

    Novant Health Cancer Institute - Forsyth (Medical Oncology)

    1010 Bethesda Court, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Heather Shearer is a Hematologist and an Oncologist practicing medicine in Winston Salem, North Carolina. Dr. Shearer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Familial Pancreatic Cancer, Colorectal Cancer, Familial Colorectal Cancer, and Lynch Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    52+ years
    Languages Spoken:
    English, German
    Offers Telehealth

    What we specialize in at The Preston Robert Tisch Brain Tumor Center is compassionate care – we take care of our patients. It’s complete care. The patients don’t have to go out and find a radiologist. We have the radiation oncologist, the chemotherapy, the surgery, the radiology, we have all kinds of nursing people as well as help getting physical therapy and getting in-the-home assistance. Patients also can expect cutting-edge care because we run such a terrific science program here. I really like working with the patients. No question about it. It’s not that I’m doing some trivial procedure six times a day. When someone comes in with a brain tumor, there’s usually some bonding, and instead of running away from that, I really enjoy it. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is board certified in American Board Of Neurological Surgery, Neurological Surgery.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Atrium Health Neurology

    315 Medical Park Drive, Suite 202, 
    Concord, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Russ Bodner is a Neurologist practicing medicine in Concord, North Carolina. Dr. Bodner is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Corticobasal Degeneration, Drug Induced Dyskinesia, Migraine, and Benign Essential Blepharospasm. Dr. Bodner is board certified in American Board Of Psychiatry And Neurology. Dr. Bodner is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology Oncology | Hematology | Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology Oncology | Hematology | Oncology

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Diane Reidy is a Hematologist Oncology specialist and a Hematologist practicing medicine in Durham, North Carolina. Dr. Reidy is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Neuroendocrine Tumor, Pancreatic Islet Cell Tumor, Pancreatic Cancer, Pancreaticoduodenectomy, and Liver Embolization.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology | Sleep Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology | Sleep Medicine

    Duke Neurological Disorders Clinic - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    46+ years
    Languages Spoken:
    English
    Offers Telehealth

    I have been a faculty member at Duke for 30 years, specializing in the care of patients with epilepsy or sleep disorders. During that time, I have seen tremendous progress in the treatments available in both areas, and I remain excited about being able to provide those advances to my patients. I have also recently gained a personal perspective, having been diagnosed with obstructive sleep apnea, and becoming a dedicated CPAP user myself. Dr. Radtke is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Obstructive Sleep Apnea, and Epilepsy. Dr. Radtke is board certified in American Board Of Psychiatry/Neurology, Sleep Medicine , American Board Of Psychiatry/Neurology, Epilepsy , and American Board Of Psychiatry/Neurology, Neurology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Mahmoud Al is a Radiologist practicing medicine in Cary, North Carolina. Dr. Al is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Fibrolamellar Carcinoma, Boils, Folliculitis, and Carbuncle.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Wayne Radiologists P.A.

    2700 Medical Office Pl, 
    Goldsboro, NC 
    Languages Spoken:
    English

    Lance Arnder is a Radiologist practicing medicine in Goldsboro, North Carolina. Dr. Arnder is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Familial Colorectal Cancer, Parapneumonic Pleural Effusion, Cerebellar Multiple System Atrophy, and Hepatocerebral Degeneration.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Dawid Schellingerhout is a Neuroradiologist practicing medicine in Cary, North Carolina. Dr. Schellingerhout is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Gastric Lymphoma, Radiation Induced Meningioma, Pediatric Low-Grade Glioma (pLGG), Meningioma, and Thrombectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Bethany Medical

    3402 Battleground Avenue, 
    Greensboro, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Haku Kahoano is a primary care provider, practicing in Family Medicine in Greensboro, North Carolina. Dr. Kahoano is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Hepatitis C, Maturity Onset Diabetes of the Young, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Sireesha Yedururi is a Radiologist practicing medicine in Cary, North Carolina. Dr. Yedururi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Cholangiocarcinoma (Bile Duct Cancer), Skeletal-Extraskeletal Angiomatosis, Neuroendocrine Tumor, and Ganglioneuroma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Robert Gagel is an Endocrinologist practicing medicine in Cary, North Carolina. Dr. Gagel is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Medullary Thyroid Carcinoma, Thyroid Cancer, Multiple Endocrine Neoplasia Type 2, Follicular Thyroid Cancer, and Thyroidectomy.

    Showing 1-20 of 45

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in North Carolina, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in North Carolina, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in North Carolina, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in North Carolina, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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