The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Oregon, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 17 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Oregon, US. Of these, 17 are Experienced.

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17 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    9135 Southwest Barnes Road, Suite 461, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Prakash Ambady is a Neurologist practicing medicine in Portland, Oregon. Dr. Ambady is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Interventional Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Interventional Radiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Keith Quencer is an Interventional Radiologist practicing medicine in Portland, Oregon. He has been practicing medicine for over 18 years. Dr. Quencer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses SVC Obstruction, Renal Cell Carcinoma (RCC), Ascites, Liver Embolization, and Thrombectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English

    James Anderson is a Neuroradiologist practicing medicine in Portland, Oregon. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Prolactinoma, Relapsing Multiple Sclerosis (RMS), Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Samaritan Health Clinic-West Devils Lake

    2870 NE West Devils Lake Rd, 
    Lincoln City, OR 
    Languages Spoken:
    English

    Alexa La Faunce is a primary care provider, practicing in Internal Medicine in Lincoln City, Oregon. Dr. La Faunce is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Type 2 Diabetes (T2D), Hypothyroidism, Maturity Onset Diabetes of the Young, and Sciatica.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Cascade Internal Medicine

    2239 NE Doctors Dr Ste 200, 
    Bend, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Mark Backus is a primary care provider, practicing in Internal Medicine in Bend, Oregon. Dr. Backus is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Eunuchoidism Familial Hypogonadotropic, Hereditary Resistance to Anti-Vitamin K, and Congenital Antithrombin 3 Deficiency.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    OHSU Richmond Clinic Pharmacy

    3930 SE Division St, 
    Portland, OR 
    Languages Spoken:
    English

    Catherine Livingston is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Livingston is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Phacomatosis Pigmentovascularis, Linear Nevus Sebaceous Syndrome, Phacomatosis Pigmentokeratotica, and Tieche-Jadassohn Nevus.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Legacy Devers Eye Institute-A Department Of Legacy Good Samaritan Medical Center

    1040 NW 22nd Ave, 
    Portland, OR 
    Languages Spoken:
    English

    Aristomenis Thanos is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Thanos is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Retinal Detachment, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Cataract Removal.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Casey Eye Physicians And Surgeons LLC

    3375 SW Terwilliger Blvd, 
    Portland, OR 
    Languages Spoken:
    English

    Andreas Lauer is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Lauer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinopathy Pigmentary Mental Retardation, X-Linked Retinitis Pigmentosa (XLRP), and Vitrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Nephrology | Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Nephrology | Internal Medicine
    15950 Southwest Millikan Way, 
    Beaverton, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Bates is a primary care provider, practicing in Internal Medicine and Nephrology in Beaverton, Oregon. Dr. Bates is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Diabetic Nephropathy, Cirrhosis, Type 2 Diabetes (T2D), and Familial Combined Hyperlipidemia. Dr. Bates is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Office

    790 E 5th St, 
    Coquille, OR 
    Languages Spoken:
    English

    Patrick Edwards is a primary care provider, practicing in Family Medicine in Coquille, Oregon. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Familial Hypertension, and Hypertension.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Office

    3303 S Bond Ave Fl 11, 
    Portland, OR 
    Languages Spoken:
    English

    Lorna Edmunds is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Edmunds is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Glaucoma, Pigment-Dispersion Syndrome, Axenfeld-Rieger Syndrome, and Aniridia.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    St. Charles Bend

    2500 NE Neff Rd, 
    Bend, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Bryden Considine is a Hematologist practicing medicine in Bend, Oregon. Dr. Considine is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), WT1-Related Wilms Tumor Syndromes, Wilms Tumor, and Familial Wilms Tumor 2.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English

    John Morrison is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Morrison is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Glaucoma, Central Serous Chorioretinopathy, Ocular Hypertension (OHT), and Microphthalmia.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Jen-jane Liu is a Urologist practicing medicine in Portland, Oregon. Dr. Liu is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Bladder Cancer, Urothelial Cancer, Muscle Invasive Bladder Cancer, Nephrectomy, and Cystectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    OHSU Casey Eye Institute Pharmacy

    515 SW Campus Dr, 
    Portland, OR 
    Experience:
    18+ years
    Languages Spoken:
    English

    Aiyin Chen is an Ophthalmologist practicing medicine in Portland, Oregon. She has been practicing medicine for over 18 years. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Cataract, and Trabeculectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Samaritan Neurosurgery

    3615 NW Samaritan Dr Ste 210, 
    Corvallis, OR 
    Languages Spoken:
    English

    Stephen Mcgirr is a Neurosurgery provider practicing medicine in Corvallis, Oregon. Dr. Mcgirr is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Pituitary Tumor, Subdural Hematoma, Chronic Subdural Hematoma, Spinal Stenosis, and Laminectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Office

    3615 NW Samaritan Dr Ste 211, 
    Corvallis, OR 
    Languages Spoken:
    English

    Michael Malos is a Neurosurgery provider practicing medicine in Corvallis, Oregon. Dr. Malos is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cervical Myelopathy, Spinal Stenosis, Cervical Spondylosis, Dysembryoplastic Neuroepithelial Tumors (DNET), and Laminectomy.

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    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Oregon, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Oregon, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Oregon, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Oregon, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Oregon, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Oregon, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Oregon, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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