The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Koeln, NW

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 13 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Koeln, NW. Of these, 13 are Experienced.

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13 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Jorg Dotsch
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Jorg Dotsch
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Jorg Dotsch practices practicing medicine in Koeln, Germany. Mr. Dotsch is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Intrauterine Growth Restriction, Autosomal Recessive Polycystic Kidney Disease, Obesity, Placental Insufficiency, and Gastrostomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Deniz Hos
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Deniz Hos
    Koeln, NW, DE 
     (1.8 km away)

    Deniz Hos practices practicing medicine in Koeln, Germany. Hos is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Fuchs Dystrophy, Uveal Melanoma, Keratoconus, Corneal Transplant, and Trabeculectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Pablo Landgraf
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Pablo Landgraf
    Koeln, NW, DE 
     (1.8 km away)

    Pablo Landgraf practices practicing medicine in Koeln, Germany. Mr. Landgraf is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome and Embryonal Tumor with Multilayered Rosettes.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Bodo B. Beck
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Bodo B. Beck
    Robert Koch Str. 21, 
    Koeln, NW, DE 
     (3.9 km away)

    Bodo Beck practices practicing medicine in Koeln, Germany. Beck is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. They are also highly rated in 23 other conditions, according to our data. Their clinical expertise encompasses Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Nephrocalcinosis, Kidney Transplant, and Liver Transplant.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Claus Cursiefen
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Claus Cursiefen
    Joseph Stelzmann Str. 26, 
    Koeln, NW, DE 
     (4.0 km away)

    Claus Cursiefen practices practicing medicine in Koeln, Germany. Mr. Cursiefen is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Fuchs Dystrophy, Macular Corneal Dystrophy Type 1, Pterygium, Corneal Transplant, and Trabeculectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Max C. Liebau
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Max C. Liebau
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Max Liebau practices practicing medicine in Koeln, Germany. Mr. Liebau is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Carsten Kobe
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Carsten Kobe
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Carsten Kobe practices practicing medicine in Koeln, Germany. Mr. Kobe is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Hodgkin Lymphoma, Classical Hodgkin Lymphoma, Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), and Prostate Cancer.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Sandra Habbig
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Sandra Habbig
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Sandra Habbig practices practicing medicine in Koeln, Germany. Ms. Habbig is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Nephronophthisis, Coach Syndrome, Chronic Kidney Disease, Nephrocalcinosis, and Kidney Transplant.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Friederike Koerber
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Friederike Koerber
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Friederike Koerber practices practicing medicine in Koeln, Germany. Koerber is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, Joubert Syndrome, and Osteogenesis Imperfecta.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Kai-dietrich D. Nusken
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Kai-dietrich D. Nusken
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Kai-dietrich Nusken practices practicing medicine in Koeln, Germany. Nusken is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Placental Insufficiency, Intrauterine Growth Restriction, Henoch-Schonlein Purpura, and Von Hippel-Lindau (VHL) Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Lutz T. Weber
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Lutz T. Weber
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Lutz Weber practices practicing medicine in Koeln, Germany. Mr. Weber is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Autosomal Recessive Polycystic Kidney Disease, Fanconi Bickel Syndrome, Kidney Transplant, and Gastrostomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Boris Decarolis
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Boris Decarolis
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Boris Decarolis practices practicing medicine in Koeln, Germany. Mr. Decarolis is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Gliomatosis Cerebri, and Adrenocortical Carcinoma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Martin Dubbers
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Martin Dubbers
    Kerpener Str. 62, 
    Koeln, NW, DE 
     (4.3 km away)

    Martin Dubbers practices practicing medicine in Koeln, Germany. Mr. Dubbers is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Tracheoesophageal Fistula, Berdon Syndrome, Esophageal Atresia, Gastrointestinal Fistula, and Appendectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-13 of 13

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Koeln, NW?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Koeln, NW?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Von Hippel-Lindau (VHL) Syndrome doctor near Koeln, NW?

    You can find a Von Hippel-Lindau (VHL) Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Koeln, NW?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Koeln, NW?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Koeln, NW?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Koeln, NW?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Koeln, NW?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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