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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Utrecht, NL. Of these, 14 are Experienced, 2 are Distinguished and 1 are Advanced.

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    17 providers found
      Distinguished in Von Hippel-Lindau (VHL) Syndrome

      Rachel H. Giles
      Distinguished in Von Hippel-Lindau (VHL) Syndrome

      Rachel H. Giles
      Utrecht, UT, NL 

      Rachel Giles practices in Utrecht, Netherlands. Ms. Giles is rated as a Distinguished expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Nephronophthisis, Joubert Syndrome, Nephrectomy, and Kidney Transplant.

      Distinguished in Von Hippel-Lindau (VHL) Syndrome

      Rachel S. Van Leeuwaarde
      Distinguished in Von Hippel-Lindau (VHL) Syndrome

      Rachel S. Van Leeuwaarde
      Utrecht, UT, NL 

      Rachel Van Leeuwaarde practices in Utrecht, Netherlands. Ms. Van Leeuwaarde is rated as a Distinguished expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Multiple Endocrine Neoplasia Type 1, Multiple Endocrine Neoplasia, Von Hippel-Lindau (VHL) Syndrome, and Neuroendocrine Tumor.

      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Bernard A. Zonnenberg
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Bernard A. Zonnenberg
      Utrecht, UT, NL 

      Bernard Zonnenberg practices in Utrecht, Netherlands. Mr. Zonnenberg is rated as an Advanced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, Lymphangioleiomyomatosis, and Liver Embolization.

      Learn about our expert tiers
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Gerlof D. Valk
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Gerlof D. Valk
      Utrecht, UT, NL 

      Gerlof Valk practices in Utrecht, Netherlands. Valk is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their top areas of expertise are Multiple Endocrine Neoplasia, Multiple Endocrine Neoplasia Type 1, Pancreatic Islet Cell Tumor, Pancreaticoduodenectomy, and Hepato-Pancreato-Biliary Surgery.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Lodewijk A. Brosens
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Lodewijk A. Brosens
      Utrecht, UT, NL 

      Lodewijk Brosens practices in Utrecht, Netherlands. Brosens is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their top areas of expertise are Juvenile Polyposis Syndrome, Pancreatic Cancer, Glucagonoma, Pancreaticoduodenectomy, and Endoscopy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Annemarie A. Stuart-Verrijn
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Annemarie A. Stuart-Verrijn
      Utrecht, UT, NL 

      Annemarie Stuart-Verrijn practices in Utrecht, Netherlands. Ms. Stuart-Verrijn is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Partial Androgen Insensitivity Syndrome (PAIS), Androgen Insensitivity Syndrome, Multiple Endocrine Neoplasia, Multiple Endocrine Neoplasia Type 2, and Orchiectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Bernadette M. Van Nesselrooij
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Bernadette M. Van Nesselrooij
      Department Of Head And Neck Surgical Oncology, Heidelberglaan 100, 
      Utrecht, UT, NL 

      Bernadette Van Nesselrooij practices in Utrecht, Netherlands. Ms. Van Nesselrooij is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Multiple Endocrine Neoplasia, Multiple Endocrine Neoplasia Type 1, Von Hippel-Lindau (VHL) Syndrome, and Familial Isolated Hyperparathyroidism.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Tatjana Seute
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Tatjana Seute
      Utrecht, UT, NL 

      Tatjana Seute practices in Utrecht, Netherlands. Ms. Seute is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glioma, Gliomatosis Cerebri, Astrocytoma, and Brain Tumor.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Eelco W. Hoving
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Eelco W. Hoving
      Utrecht, UT, NL 

      Eelco Hoving practices in Utrecht, Netherlands. Hoving is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their top areas of expertise are Brain Tumor, Posterior Fossa Tumor, Craniopharyngioma, Endoscopy, and Hormone Replacement Therapy (HRT).

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Wenzel M. Hackeng
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Wenzel M. Hackeng
      Utrecht, UT, NL 

      Wenzel Hackeng practices in Utrecht, Netherlands. Mr. Hackeng is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Metastatic Insulinoma, Pancreatic Islet Cell Tumor, Pancreatic Cancer, Neuroendocrine Tumor, and Pancreatectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Angelika Muhlebner
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Angelika Muhlebner
      Utrecht, UT, NL 

      Angelika Muhlebner practices in Utrecht, Netherlands. Ms. Muhlebner is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Cortical Dysplasia, Tuberous Sclerosis, Tuberous Sclerosis Complex, and Epilepsy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      C J. Jongmans
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      C J. Jongmans
      Utrecht, UT, NL 

      C Jongmans practices in Utrecht, Netherlands. Jongmans is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their top areas of expertise are Ganglioneuroma, Coffin-Siris Syndrome, Miller Syndrome, and Bullae.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Eileen H. Lam
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Eileen H. Lam
      Utrecht, UT, NL 

      Eileen Lam practices in Utrecht, Netherlands. Ms. Lam is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Liver Cancer, Neuroendocrine Tumor, Hemangioblastoma, Liver Embolization, and Liver Transplant.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Richard A. Van Wijk
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Richard A. Van Wijk
      Utrecht, UT, NL 

      Richard Van Wijk practices in Utrecht, Netherlands. Mr. Van Wijk is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hereditary Spherocytosis, Anemia, Hemolytic Anemia, Congenital Hemolytic Anemia, and Splenectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Rob B. Van Der Luijt-Van Der Sluijs
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Rob B. Van Der Luijt-Van Der Sluijs
      Utrecht, UT, NL 

      Rob Van Der Luijt-Van Der Sluijs practices in Utrecht, Netherlands. Mr. Van Der Luijt-Van Der Sluijs is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Multiple Endocrine Neoplasia Type 1, Temple Syndrome, Ovarian Cancer, and Multiple Endocrine Neoplasia.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Esme Waanders
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Esme Waanders
      Utrecht, UT, NL 

      Esme Waanders practices in Utrecht, Netherlands. Ms. Waanders is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Leukemia, Hereditary Spherocytosis, and Adult T-Cell Leukemia.

      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Tom J. Snijders
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Tom J. Snijders
      Utrecht, UT, NL 

      Tom Snijders practices in Utrecht, Netherlands. Mr. Snijders is rated as an Experienced expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Gliomatosis Cerebri, Brain Tumor, and Astrocytoma.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Utrecht, NL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Utrecht, NL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Von Hippel-Lindau (VHL) Syndrome doctor in Utrecht, NL?

      You can find a Von Hippel-Lindau (VHL) Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Utrecht, NL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Utrecht, NL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Utrecht, NL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Utrecht, NL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Utrecht, NL?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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