The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Florida, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 63 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Florida, US. Of these, 60 are Experienced and 3 are Advanced.

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63 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required
    1295 Northwest 14th Street, 
    Miami, FL 
    Languages Spoken:
    English, French, Italian, Spanish
    Accepting New Patients
    Offers Telehealth

    Allan Levi is a Neurosurgery provider practicing medicine in Miami, Florida. Dr. Levi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Meningocele, Cervical Spondylosis, Spondylolisthesis, Laminectomy, and Spinal Fusion. Dr. Levi is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    900 Northwest 17th Street, 
    Miami, FL 
    Languages Spoken:
    English, Georgian, Kannada, Spanish
    Accepting New Patients

    Swarup Swaminathan is an Ophthalmologist practicing medicine in Miami, Florida. Dr. Swaminathan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Trabeculectomy, and Vitrectomy. Dr. Swaminathan is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required
    900 Northwest 17th Street, 
    Miami, FL 
    Languages Spoken:
    English, Arabic, Italian, Korean, Spanish
    Accepting New Patients
    Offers Telehealth

    Janet Davis is an Ophthalmologist practicing medicine in Miami, Florida. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Uveitis, Birdshot Chorioretinopathy, Endophthalmitis, Vitrectomy, and Cataract Removal. Dr. Davis is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required
    900 Northwest 17th Street, 
    Miami, FL 
    Languages Spoken:
    English, Hindi, Spanish
    Accepting New Patients

    Harry Flynn is an Ophthalmologist practicing medicine in Miami, Florida. Dr. Flynn is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Endophthalmitis, Retinal Detachment, Interstitial Keratitis, Vitrectomy, and Cataract Removal. Dr. Flynn is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    900 Northwest 17th Street, 
    Miami, FL 
    Languages Spoken:
    English, Portuguese, Spanish
    Accepting New Patients

    Felipe Medeiros is an Ophthalmologist practicing medicine in Miami, Florida. Dr. Medeiros is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Trabeculectomy, and Iridectomy. Dr. Medeiros is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Neurosurgery
    Referral may be required
    1295 Northwest 14th Street, 
    Miami, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Ricardo Komotar is an Oncologist and a Neurosurgery provider practicing medicine in Miami, Florida. Dr. Komotar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Meningioma, Glioblastoma, Awake Craniotomy, and Posterior Fossa Decompression. Dr. Komotar is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    Uf Health Endocrinology-Deerwood Park

    10475 Centurion Pkwy N Ste 201, 
    Jacksonville, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Christian Koch is an Endocrinologist practicing medicine in Jacksonville, Florida. Dr. Koch is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Thyroid Nodule, Thyroid Cancer, Papillary Thyroid Cancer, and Anaplastic Thyroid Cancer. Dr. Koch is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    EraCare Physicians LLC

    2040 Oakley Seaver Dr, Ste 300, 
    Clermont, FL 
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Emad Abdelsatar is a primary care provider, practicing in Internal Medicine in Clermont, Florida. Dr. Abdelsatar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Childhood Iron Deficiency Anemia, Pneumonia, Cirrhosis, Ureteroscopy, and Pacemaker Implantation. Dr. Abdelsatar is board certified in American Board Of Internal Medicine. Dr. Abdelsatar is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Neurosurgery
    Referral may be required
    1475 Northwest 12th Avenue, 
    Miami, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Roberto Heros is an Oncologist and a Neurosurgery provider practicing medicine in Miami, Florida. Dr. Heros is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Cerebellum Agenesis Hydrocephaly, Congenital Cardiovascular Shunt, Normal Pressure Hydrocephalus, and Extracranial-Intracranial Bypass Surgery. Dr. Heros is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    3378 Mariner Blvd, 
    Spring Hill, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Gaurav Malhotra is a primary care provider, practicing in Internal Medicine in Spring Hill, Florida. Dr. Malhotra is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Insulinoma, Ectopic Cushing's syndrome, Pheochromocytoma, and Neuroendocrine Tumor. Dr. Malhotra is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    Urology Of Virginia PLLC

    12902 Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Tourtelot is an Endocrinologist practicing medicine in Tampa, Florida. Dr. Tourtelot is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Thyroid Cancer, Anaplastic Thyroid Cancer, Medullary Thyroid Carcinoma, Papillary Thyroid Cancer, and Orchiectomy. Dr. Tourtelot is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nam Tran is a Neurosurgery provider practicing medicine in Tampa, Florida. Dr. Tran is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 59 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Metastatic Brain Tumor, Awake Craniotomy, and Bone Graft. Dr. Tran is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    1295 Northwest 14th Street, 
    Miami, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Stephen Burks is a Neurosurgery provider practicing medicine in Miami, Florida. Dr. Burks is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Subdural Hematoma, Accessory Deep Peroneal Nerve, Foot Drop, Nerve Decompression, and Laminectomy. Dr. Burks is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Ascension Sacred Heart Primary Care - Pace (Suite 200)

    3754 Highway 90, Ste 200, 
    Pace, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Kincaid-Iii is a primary care provider, practicing in Family Medicine in Pace, Florida. Dr. Kincaid-Iii is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Maturity Onset Diabetes of the Young. Dr. Kincaid-Iii is board certified in American Osteopathic Board Of Family Physicians - Family Medicine And Osteopathic Manipulative Treatment. Dr. Kincaid-Iii is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Orlando Health Cancer Institute - Downtown Orlando

    1400 S. Orange Ave., 
    Orlando, FL 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients
    Offers Telehealth

    Fernando Santos is a Neurologist practicing medicine in Orlando, Florida. Dr. Santos is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Hemangioblastoma, Brain Tumor, Glioma, and Astrocytoma. Dr. Santos is board certified in American Board Of Psychiatry And Neurology - Neurology, United Council For Neurologic Subspecialties - Neuro-Oncology, and American Board Of Psychiatry And Neurology - Clinical Neurophysiology. Dr. Santos is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    1150 Northwest 14th Street, 
    Miami, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Deborah Heros is a Neurologist practicing medicine in Miami, Florida. Dr. Heros is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Glioma, Brain Tumor, Glioblastoma, and Ependymoma. Dr. Heros is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Orlando Health Neuroscience Institute – Ocoee

    10000 W. Colonial Dr., Suite 284, 
    Ocoee, FL 
    Experience:
    18+ years
    Languages Spoken:
    English

    Sherrie Smart is a Neurologist practicing medicine in Ocoee, Florida. She has been practicing medicine for over 18 years. Dr. Smart is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Dravet Syndrome, Progressive Myoclonic Epilepsy, Unverricht-Lundborg Syndrome, and Lafora Disease.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    Nemours Children's Health, Lake Mary

    3300 W. Lake Mary Blvd., Suite 100, 
    Lake Mary, FL 
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Shilpa Gurnurkar is an Endocrinologist practicing medicine in Lake Mary, Florida. Dr. Gurnurkar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Type 1 Diabetes (T1D), Precocious Puberty, Short Stature (Growth Disorders), and Familial Short Stature (FSS). Dr. Gurnurkar is board certified in American Board Of Pediatrics. Dr. Gurnurkar is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Sanctuary Primary Care

    10627 Rhodine Rd, 
    Riverview, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Baranauskas is a primary care provider, practicing in Internal Medicine in Riverview, Florida. Dr. Baranauskas is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Sitosterolemia. Dr. Baranauskas is board certified in AB Internal Medicine - Internal Medicine. Dr. Baranauskas is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    1150 Northwest 14th Street, Suite 309, 
    Miami, FL 
    Experience:
    44+ years
    Languages Spoken:
    English, Georgian, Hindi, Kannada, Spanish, Telugu
    Accepting New Patients
    Offers Telehealth

    Ramgopal Konanur is a Urologist practicing medicine in Miami, Florida. He has been practicing medicine for over 44 years. Dr. Konanur is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Urinary Tract Infection in Children, Prostate Cancer, Familial Prostate Cancer, Reconstructive Urology Surgery, and Ureteral Reconstruction. Dr. Konanur is currently accepting new patients.

    Showing 1-20 of 63

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Florida, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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