The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Maryland, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 39 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Maryland, US. Of these, 25 are Experienced, 6 are Advanced, 4 are Distinguished and 4 are Elite.

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39 providers found
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Urology | Plastic Surgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Urology | Plastic Surgery
    Referral may be required
    10 Center Drive Rm 2-5942, 
    Bethesda, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Mark Ball is a Urologist and a Plastic Surgeon practicing medicine in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy. Dr. Ball is board certified in American Board Of Urology. Dr. Ball is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Emily Chew is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Rm 3D20, 
    Bethesda, MD 
    Languages Spoken:
    English

    Prashant Chittiboina is a Neurosurgery provider practicing medicine in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

    Learn about our expert tiers
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Nih Clinical Center

    9000 Rockville Pike Bldg 10, 
    Bethesda, MD 
    Languages Spoken:
    English

    William Linehan is a Urologist practicing medicine in Bethesda, Maryland. Dr. Linehan is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Hormone Replacement Therapy (HRT).

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    UM Capital Region Medical Center

    901 Harry S Truman Drive North, 
    Upper Marlboro, MD 
    Languages Spoken:
    English, French, Thai
    Accepting New Patients

    Alisa Thavikulwat is an Ophthalmologist practicing medicine in Upper Marlboro, Maryland. Dr. Thavikulwat is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Cataract Removal. Dr. Thavikulwat is board certified in American Board Of Ophthalmology - Ophthalmology, 2020. Dr. Thavikulwat is currently accepting new patients.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Karel Pacak is an Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Pacak is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Pheochromocytoma, Neuroendocrine Tumor, Somatostatinoma, Hepato-Pancreato-Biliary Surgery, and Thymectomy. Dr. Pacak is currently accepting new patients.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    National Care Institute, 
    Bethesda, MD 
    Languages Spoken:
    English

    Sandeep Gurram is a Urologist practicing medicine in Bethesda, Maryland. Dr. Gurram is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Prostate Cancer, Renal Cell Carcinoma (RCC), Nephrectomy, and Prostatectomy.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Bldg 10, 
    Bethesda, MD 
    Languages Spoken:
    English

    Catherine Cukras is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Cukras is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Geographic Atrophy, and Retinopathy Pigmentary Mental Retardation.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required
    9000 Rockville Pike, 
    Bethesda, MD 
    Languages Spoken:
    English

    Tiarnan Keenan is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Keenan is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Geographic Atrophy, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    University Of Maryland Pediatric Associates PA

    22 S Greene St # S9D15BS9D15B, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Evrim Turkbey is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Turkbey is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Lymphofollicular Hyperplasia, and Uterine Fibroids. Dr. Turkbey is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Neurology Consultants-Severna Park

    645 Baltimore Annapolis Blvd Ste 105, 
    Severna Park, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Clifford Andrew is a Neurologist practicing medicine in Severna Park, Maryland. Dr. Andrew is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Peutz-Jeghers Syndrome, Phacomatosis Pigmentokeratotica, Von Hippel-Lindau (VHL) Syndrome, and Hypothalamic Hamartomas. Dr. Andrew is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    B3b69f Molecular Imaging Program, 
    Bethesda, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Peter Choyke is a Radiologist practicing medicine in Bethesda, Maryland. Dr. Choyke is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Smoldering Multiple Myeloma, Desmoid Tumor, Von Hippel-Lindau (VHL) Syndrome, Prostatectomy, and Endoscopy. Dr. Choyke is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Rm 15940-W, 
    Bethesda, MD 
    Languages Spoken:
    English

    Alexis Rompre-Brodeur is a Urologist practicing medicine in Bethesda, Maryland. Dr. Rompre-Brodeur is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Ureterocele, Prostate Cancer, and Nephrectomy.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Progressive Radiology

    17 Western Maryland Pkwy Ste 101, 
    Hagerstown, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Nicholas Patronas is a Radiologist practicing medicine in Hagerstown, Maryland. Dr. Patronas is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Herniated Disk, Cushing's disease, and Relapsing Multiple Sclerosis (RMS). Dr. Patronas is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Medical Arts Building - Columbia

    11085 Little Patuxent Parkway, Suite 103, Suite 103, 
    Columbia, MD 
    Languages Spoken:
    English, French
    Accepting New Patients

    Norman Dy is a primary care provider, practicing in Internal Medicine in Columbia, Maryland. Dr. Dy is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Sturge-Weber Syndrome, Phacomatosis Pigmentovascularis, Phacomatosis Pigmentokeratotica, and Linear Nevus Sebaceous Syndrome. Dr. Dy is board certified in American Board Of Internal Medicine. Dr. Dy is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology | Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology | Radiology
    Referral required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10751 Falls Road, Falls Concourse STE 412, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Douglas Ball is an Endocrinologist and a Radiologist practicing medicine in Lutherville, Maryland. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Medullary Thyroid Carcinoma, Thyroid Cancer, Anaplastic Thyroid Cancer, and Papillary Thyroid Cancer. Dr. Ball is board certified in American Board Of Internal Medicine. Dr. Ball is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English, Kannada
    Accepting New Patients
    Offers Telehealth

    Chetan Bettegowda is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Bettegowda is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression. Dr. Bettegowda is board certified in American Board Of Neurological Surgery. Dr. Bettegowda is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral required

    Johns Hopkins Bayview Medical Center

    301 Mason Lord Drive, Suite 1201, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Luciano is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Luciano is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Normal Pressure Hydrocephalus, Increased Intracranial Pressure, Posterior Fossa Decompression, and Stent Placement. Dr. Luciano is board certified in American Board Of Neurological Surgery. Dr. Luciano is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II STE 115, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jaishri Blakeley is a Neurologist practicing medicine in Lutherville, Maryland. Dr. Blakeley is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology. Dr. Blakeley is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Urology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Urology
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 4, 
    Baltimore, MD 
    Languages Spoken:
    English, Malayalam
    Accepting New Patients
    Offers Telehealth

    Arvin George is an Oncologist and a Urologist practicing medicine in Baltimore, Maryland. Dr. George is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Familial Prostate Cancer, Renal Cell Carcinoma (RCC), Prostatectomy, and Nephrectomy. Dr. George is board certified in American Board Of Urology. Dr. George is currently accepting new patients.

    Showing 1-20 of 39

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Maryland, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Maryland, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Maryland, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Maryland, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Maryland, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Maryland, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Maryland, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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