The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Pennsylvania, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 63 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Pennsylvania, US. Of these, 50 are Experienced, 11 are Advanced and 2 are Distinguished.

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63 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    LVPG Family Medicine-Hamburg

    700 Hawk Ridge Drive, 
    Hamburg, PA 
    Languages Spoken:
    English

    Adam Haydt is a primary care provider, practicing in Family Medicine in Hamburg, Pennsylvania. Dr. Haydt is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Hypothalamic Hamartomas, Sturge-Weber Syndrome, Tieche-Jadassohn Nevus, and Phacomatosis Pigmentokeratotica. Dr. Haydt is board certified in American Board Of Family Medicine - Family Medicine.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Jefferson Neurological Surgery Associates

    1101 Chestnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Evans is a Neurosurgery provider practicing medicine in Philadelphia, Pennsylvania. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Prolactinoma, Septoplasty, and Gamma Knife Radiosurgery. Dr. Evans is board certified in Neurological Surgery. Dr. Evans is currently accepting new patients.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    UPMC Department Of Urology

    5200 Centre Avenue, Suite 209, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jodi Maranchie is a Urologist practicing medicine in Pittsburgh, Pennsylvania. Dr. Maranchie is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Bladder Cancer, Muscle Invasive Bladder Cancer, Renal Cell Carcinoma (RCC), Nephrectomy, and Cystectomy. Dr. Maranchie is board certified in American Board Of Urology. Dr. Maranchie is currently accepting new patients.

    Learn about our expert tiers
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology | Oncology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology | Oncology
    Referral may be required

    Ophthalmology - Wills Eye Hospital

    840 Walnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Carol Shields is an Oncologist and an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is board certified in Ophthalmology. Dr. Shields is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Nuclear Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Nuclear Medicine
    Referral may be required

    Hospital Of The University Of Pennsylvania Radiology

    Nuclear Medicine & Clinical Molecular Imaging, 1 Donner, 3400 Spruce Street, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Maya Galperin-Aizenberg is a Radiologist and a Nuclear Medicine provider practicing medicine in Philadelphia, Pennsylvania. Dr. Galperin-Aizenberg is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Pleurisy, Pleural Effusion, and Lung Nodules. Dr. Galperin-Aizenberg is board certified in American Board Of Radiology and American Board Of Nuclear Medicine. Dr. Galperin-Aizenberg is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Fox Chase Cancer Center - Huntingdon Pike

    8 Huntingdon Pike, 
    Rockledge, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Alexander Kutikov is a Urologist practicing medicine in Rockledge, Pennsylvania. Dr. Kutikov is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Kutikov is board certified in American Board Of Urology.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    UPMC Neurological Institute - Presbyterian

    200 Lothrop Street, Suite F158, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Offers Telehealth

    L Lunsford is a Neurosurgery provider practicing medicine in Pittsburgh, Pennsylvania. Dr. Lunsford is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Meningioma, Acoustic Neuroma, Schwannoma, Gamma Knife Radiosurgery, and Thalamotomy. Dr. Lunsford is board certified in American Board Of Neurological Surgery.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    AHN Neurosurgery - Floor 4 At Hemlock Building

    320 East North Avenue, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Shepard is a Neurosurgery provider practicing medicine in Pittsburgh, Pennsylvania. Dr. Shepard is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Hemangioblastoma, Brain Tumor, Rathke Cleft Cyst, Gamma Knife Radiosurgery, and Laminectomy. Dr. Shepard is board certified in American Board Of Neurological Surgery - Neurological Surgery.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    UPMC Neurological Institute - Presbyterian

    200 Lothrop Street, Suite F158, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Hindi
    Accepting New Patients
    Offers Telehealth

    Ajay Niranjan is a Neurosurgery provider practicing medicine in Pittsburgh, Pennsylvania. Dr. Niranjan is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Schwannoma, Brain Tumor, Metastatic Brain Tumor, Gamma Knife Radiosurgery, and Thalamotomy. Dr. Niranjan is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    General Surgery | Oncology | Urology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    General Surgery | Oncology | Urology
    Referral may be required

    Jefferson Health – Navy Yard

    3 Crescent Drive, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Adam Metwalli is a General Surgeon and an Oncologist practicing medicine in Philadelphia, Pennsylvania. Dr. Metwalli is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Pheochromocytoma, Neuroendocrine Tumor, Nephrectomy, and Hormone Replacement Therapy (HRT). Dr. Metwalli is board certified in Urology. Dr. Metwalli is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Office

    100 Presidential Blvd Ste 100, 
    Bala Cynwyd, PA 
    Languages Spoken:
    English

    Jose Pulido is an Ophthalmologist practicing medicine in Bala Cynwyd, Pennsylvania. Dr. Pulido is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Autosomal Dominant Vitreoretinochoroidopathy, Uveal Melanoma, Vitrectomy, and Gamma Knife Radiosurgery.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    UPMC Vision Institute

    4401 Penn Avenue, Suite 3200, 
    Pittsburgh, PA 
    Languages Spoken:
    English, French
    Accepting New Patients
    Offers Telehealth

    Marie Errera is an Ophthalmologist practicing medicine in Pittsburgh, Pennsylvania. Dr. Errera is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Neuroretinitis, Uveitis, Phacomatosis Pigmentokeratotica, Von Hippel-Lindau (VHL) Syndrome, and Vitrectomy. Dr. Errera is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    UPMC Vision Institute

    203 Lothrop Street, Floor 6, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Creole, French, Haitian
    Accepting New Patients
    Offers Telehealth

    Gabrielle Bonhomme is an Ophthalmologist practicing medicine in Pittsburgh, Pennsylvania. Dr. Bonhomme is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Papilledema, Increased Intracranial Pressure, Optic Neuritis, and Tieche-Jadassohn Nevus. Dr. Bonhomme is board certified in American Board Of Ophthalmology. Dr. Bonhomme is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Office

    145 Hospital Ave Ste 215, 
    Du Bois, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Steven Graeca is a primary care provider, practicing in Internal Medicine in Du Bois, Pennsylvania. Dr. Graeca is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Anemia, Grass Allergy, Esophageal Varices, and Chronic Cough. Dr. Graeca is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Scheie Eye Institute Penn Presbyterian

    51 N. 39th Street, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Albert Maguire is an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Maguire is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Leber Congenital Amaurosis, Choroideremia, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Vitrectomy. Dr. Maguire is board certified in Ophthalmology, 1991. Dr. Maguire is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    UPMC Vision Institute

    2853 Freeport Road, 
    Natrona Heights, PA 
    Languages Spoken:
    English, Farsi
    Accepting New Patients

    Farzad Jamshidi is an Ophthalmologist practicing medicine in Natrona Heights, Pennsylvania. Dr. Jamshidi is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinopathy Pigmentary Mental Retardation, and Vitrectomy. Dr. Jamshidi is board certified in American Board Of Ophthalmology. Dr. Jamshidi is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Penn Nerve Center University City

    3737 Market Street, 7th Floor, 
    Philadelphia, PA 
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Eric Zager is a Neurosurgery provider practicing medicine in Philadelphia, Pennsylvania. He has been practicing medicine for over 44 years. Dr. Zager is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is board certified in Neurological Surgery, 1992.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Referral may be required

    Geisinger Danville - General Internal Medicine

    35 Justin Drive, Floor 4, 
    Danville, PA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Thomas Davis is a primary care provider, practicing in Pediatrics and Internal Medicine in Danville, Pennsylvania. He has been practicing medicine for over 18 years. Dr. Davis is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Zika Virus Disease, Microcephaly, Microcephaly with Spastic Quadriplegia, and Autosomal Recessive Primary Microcephaly. Dr. Davis is board certified in The American Board Of Internal Medicine And The American Board Of Pediatrics.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Urology | Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Urology | Oncology
    Referral may be required

    Jefferson Urology – Honickman Center

    1101 Chestnut Street, Floor 11, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Patrick Gomella is a Urologist and an Oncologist practicing medicine in Philadelphia, Pennsylvania. Dr. Gomella is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Prostate Cancer, Orchiectomy, and Prostatectomy. Dr. Gomella is board certified in Urology. Dr. Gomella is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Vickie & Jack Farber Institute For Neuroscience - 950 Pulaski Drive

    950 Pulaski Drive, Suite 120, 
    King Of Prussia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kevin Judy is a Neurosurgery provider practicing medicine in King Of Prussia, Pennsylvania. Dr. Judy is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Glioma, Meningioma, Astrocytoma, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Judy is board certified in Neurological Surgery. Dr. Judy is currently accepting new patients.

    Showing 1-20 of 63

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Pennsylvania, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Pennsylvania, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Pennsylvania, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Pennsylvania, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Pennsylvania, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Pennsylvania, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Pennsylvania, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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