The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in radnor, PA

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 19 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near radnor, PA. Of these, 14 are Experienced, 4 are Advanced and 1 are Distinguished.

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19 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Vickie & Jack Farber Institute For Neuroscience - 950 Pulaski Drive

    950 Pulaski Drive, Suite 120, 
    King Of Prussia, PA 
     (3.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kevin Judy is a Neurosurgery provider practicing medicine in King Of Prussia, Pennsylvania. Dr. Judy is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Glioma, Meningioma, Astrocytoma, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Judy is board certified in Neurological Surgery. Dr. Judy is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Jefferson Neurological Surgery Associates

    1101 Chestnut Street, Floor 10, 
    Philadelphia, PA 
     (12.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Evans is a Neurosurgery provider practicing medicine in Philadelphia, Pennsylvania. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Prolactinoma, Septoplasty, and Gamma Knife Radiosurgery. Dr. Evans is board certified in Neurological Surgery. Dr. Evans is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Office

    100 Presidential Blvd Ste 100, 
    Bala Cynwyd, PA 
     (7.2 miles away)
    Languages Spoken:
    English

    Jose Pulido is an Ophthalmologist practicing medicine in Bala Cynwyd, Pennsylvania. Dr. Pulido is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Autosomal Dominant Vitreoretinochoroidopathy, Uveal Melanoma, Vitrectomy, and Gamma Knife Radiosurgery.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Nuclear Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Nuclear Medicine
    Referral may be required

    Hospital Of The University Of Pennsylvania Radiology

    Nuclear Medicine & Clinical Molecular Imaging, 1 Donner, 3400 Spruce Street, 
    Philadelphia, PA 
     (10.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Maya Galperin-Aizenberg is a Radiologist and a Nuclear Medicine provider practicing medicine in Philadelphia, Pennsylvania. Dr. Galperin-Aizenberg is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Pleurisy, Pleural Effusion, and Lung Nodules. Dr. Galperin-Aizenberg is board certified in American Board Of Radiology and American Board Of Nuclear Medicine. Dr. Galperin-Aizenberg is currently accepting new patients.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology | Oncology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology | Oncology
    Referral may be required

    Ophthalmology - Wills Eye Hospital

    840 Walnut Street, Floor 10, 
    Philadelphia, PA 
     (12.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Carol Shields is an Oncologist and an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is board certified in Ophthalmology. Dr. Shields is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Fox Chase Cancer Center - Huntingdon Pike

    8 Huntingdon Pike, 
    Rockledge, PA 
     (14.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alexander Kutikov is a Urologist practicing medicine in Rockledge, Pennsylvania. Dr. Kutikov is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Kutikov is board certified in American Board Of Urology.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    General Surgery | Oncology | Urology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    General Surgery | Oncology | Urology
    Referral may be required

    Jefferson Health – Navy Yard

    3 Crescent Drive, 
    Philadelphia, PA 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Adam Metwalli is a General Surgeon and an Oncologist practicing medicine in Philadelphia, Pennsylvania. Dr. Metwalli is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Pheochromocytoma, Neuroendocrine Tumor, Nephrectomy, and Hormone Replacement Therapy (HRT). Dr. Metwalli is board certified in Urology. Dr. Metwalli is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Scheie Eye Institute Penn Presbyterian

    51 N. 39th Street, 
    Philadelphia, PA 
     (10.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Albert Maguire is an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Maguire is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Leber Congenital Amaurosis, Choroideremia, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Vitrectomy. Dr. Maguire is board certified in Ophthalmology, 1991. Dr. Maguire is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    Penn Nerve Center University City

    3737 Market Street, 7th Floor, 
    Philadelphia, PA 
     (10.6 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Eric Zager is a Neurosurgery provider practicing medicine in Philadelphia, Pennsylvania. He has been practicing medicine for over 44 years. Dr. Zager is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Thoracic Outlet Syndrome, Hydrocephalus, Neurofibromatosis, Awake Craniotomy, and Gastrostomy. Dr. Zager is board certified in Neurological Surgery, 1992.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Urology | Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Urology | Oncology
    Referral may be required

    Jefferson Urology – Honickman Center

    1101 Chestnut Street, Floor 11, 
    Philadelphia, PA 
     (12.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Patrick Gomella is a Urologist and an Oncologist practicing medicine in Philadelphia, Pennsylvania. Dr. Gomella is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Prostate Cancer, Orchiectomy, and Prostatectomy. Dr. Gomella is board certified in Urology. Dr. Gomella is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required
    840 Walnut Street, Floor 10, 
    Philadelphia, PA 
     (12.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Allen Ho is an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Vein Occlusion, Vitrectomy, and Cataract Removal. Dr. Ho is board certified in Ophthalmology. Dr. Ho is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Perelman Center Advanced Medical

    3400 Civic Center Blvd Fl 1E, 
    Philadelphia, PA 
     (10.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Rosita Shah is a Radiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Collapsed Lung, Pleurisy, Pleural Effusion, and Lung Nodules. Dr. Shah is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Penn Neurosurgery University City

    3737 Market Street, 8th Floor, 
    Philadelphia, PA 
     (10.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Berje Shammassian is a Neurosurgery provider practicing medicine in Philadelphia, Pennsylvania. Dr. Shammassian is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Fractured Spine, Subarachnoid Hemorrhage, Stroke, Osteotomy, and Thrombectomy. Dr. Shammassian is board certified in Neurological Surgery, 2024. Dr. Shammassian is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    Office

    421 Curie Blvd, 
    Philadelphia, PA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Eunkyung Kauh is an Endocrinologist practicing medicine in Philadelphia, Pennsylvania. Dr. Kauh is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Type 2 Diabetes (T2D), Von Hippel-Lindau (VHL) Syndrome, and Maturity Onset Diabetes of the Young. Dr. Kauh is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Trustees Of The University Of Pennsylvania

    3400 Spruce St, 
    Philadelphia, PA 
     (11.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Evan Siegelman is a Radiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Siegelman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Fibrolamellar Carcinoma, Renal Cell Carcinoma (RCC), WT1-Related Wilms Tumor Syndromes, and Ureterocele. Dr. Siegelman is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Temple University Hospital - Main Campus

    3401 N. Broad Street, 
    Philadelphia, PA 
     (11.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Syed Andrabi is a Radiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Andrabi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Neuroendocrine Tumor, Cholangiocarcinoma (Bile Duct Cancer), Fecal Impaction, and Visceromegaly. Dr. Andrabi is board certified in American Board Of Radiology - Diagnostic Radiology. Dr. Andrabi is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Office

    225 S 18th St Unit 708, 
    Philadelphia, PA 
     (11.8 miles away)
    Languages Spoken:
    English

    Katherine Schneider is a primary care provider, practicing in Family Medicine in Philadelphia, Pennsylvania. Dr. Schneider is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Ruvalcaba Syndrome, Li-Fraumeni Syndrome, Cowden Syndrome, and Bannayan-Riley-Ruvalcaba Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Fox Chase Cancer Center

    333 Cottman Ave, 
    Philadelphia, PA 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Rosaleen Parsons is a Radiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Parsons is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Renal Cell Carcinoma (RCC), WT1-Related Wilms Tumor Syndromes, Ureterocele, and Pleurisy. Dr. Parsons is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Fox Chase Cancer Center Medical Group Inc

    333 Cottman Ave, 
    Philadelphia, PA 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Barton Milestone is a Radiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Milestone is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses WT1-Related Wilms Tumor Syndromes, Lung Nodules, Alveolar Soft Part Sarcoma, and Rhabdoid Tumor. Dr. Milestone is currently accepting new patients.

    Showing 1-19 of 19

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near radnor, PA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near radnor, PA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near radnor, PA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near radnor, PA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near radnor, PA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near radnor, PA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near radnor, PA?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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