The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Wisconsin, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 41 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Wisconsin, US. Of these, 32 are Experienced and 9 are Advanced.

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41 providers found
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Referral may be required

    Aurora Cancer Care

    8400 Washington Ave, Ste 203, 
    Racine, WI 
    Languages Spoken:
    English

    Michael Mullane is a Hematologist and an Oncologist practicing medicine in Racine, Wisconsin. Dr. Mullane is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Small Cell Lung Cancer (SCLC), Lung Cancer, Pleuropulmonary Blastoma, and Monoclonal Gammopathy of Undetermined Significance (MGUS). Dr. Mullane is board certified in American Board Of Internal Medicine, Hematology.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    James Hinshaw is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Hinshaw is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses WT1-Related Wilms Tumor Syndromes, Visceromegaly, Ascites, Cardiac Ablation, and Lithotripsy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    North Hills Health Center - Specialty Clinics

    W129 N7055 Northfield Dr., 
    Menomonee Falls, WI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Findling is an Endocrinologist practicing medicine in Menomonee Falls, Wisconsin. Dr. Findling is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Cushing's syndrome, Cushing's disease, Addison's Disease, Exogenous Cushing's syndrome, and Hormone Replacement Therapy (HRT). Dr. Findling is board certified in Internal Medicine and Endocrinology, Diabetes And Metabolism. Dr. Findling is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Westbrook Health Center

    2315 E. Moreland Blvd., 
    Waukesha, WI 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Thomas Connor earned his bachelor's degree from Haverford College in Pennsylvania and his medical degree from the Johns Hopkins University School of Medicine. After completing a medical internship at Beth Israel Hospital/Harvard Medical School in Boston, Dr. Connor returned to Baltimore to complete his ophthalmology residency at the Wilmer Eye Institute of the Johns Hopkins Hospital. He came to Milwaukee and the Medical College of Wisconsin for a fellowship in medical and surgical diseases of the retina and vitreous. Following completion of his fellowship, he returned to the Wilmer Eye Institute/Johns Hopkins Hospital to serve as assistant chief of service/director of ocular trauma service. He was pleased to return to the MCW Eye Institute and the Department of Ophthalmology in 1994 and has been here since, currently serving as professor of ophthalmology and director of the Vitreoretinal Fellowship Program. He enjoys his role in academic ophthalmology with a busy clinical and surgical practice while also serving as an educator — teaching medical students, residents, fellows, other physicians and the community at large. He is most pleased with his active research collaborations with his fellow colleagues on the retina service and the MCW Advanced Ocular Imaging Program (AOIP).Dr. Connor is a native of Baltimore, Maryland, but has transitioned well into a Packers, Brewers and Bucks fan. He and his wife, Sue, are community chorus singers, are active in scouting, have spent many seasons coaching youth sports, and they are the proud parents of triplets. Dr. Connor is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Stargardt Macular Degeneration, Cone Dystrophy, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Vitrectomy. Dr. Connor is board certified in Ophthalmology. Dr. Connor is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    SSM Health Dean Medical Group

    1310 Broadway, 
    Wisconsin Dells, WI 
    Languages Spoken:
    English
    Offers Telehealth

    "Sarah Horowitz is a board certified family medicine physician in family medicine with obstetrics. She obtained her undergraduate degree from Vassar College in Poughkeepsie, NY and earned her medical degree from the University of Wisconsin School of Medicine and Public Health-Madison. She completed her residency at the University of Chicago-North Shore. Horowitz's practice is focused on obstetrical care, women's health and performing minor procedures. Horowitz is a member of the American Medical Association and the American Academy of Family Physicians. In her free time, Dr. Horowitz enjoys theatre, volunteering with animal shelters, literature, and spending time outdoors. """"It is important to me to get to know my patients and their beliefs and preferences. I like to establish an ongoing partnership"""". Sarah Horowitz, MD". Dr. Horowitz is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Hypothalamic Hamartomas, Von Hippel-Lindau (VHL) Syndrome, Tieche-Jadassohn Nevus, and Linear Nevus Sebaceous Syndrome. Dr. Horowitz is board certified in American Board Of Family Medicine , Drug Enforcement Administration , and Wisconsin Medical Examining Board.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Clinical Cancer Center - Froedtert Hospital

    8800 W. Doyne Ave., 
    Milwaukee, WI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Jennifer Connelly’s expertise includes the diagnosis and treatment of a wide array of brain and spine tumors. More specifically, she is focused on tumors that begin or have spread (metastasized) to the brain or spine. In addition, her clinical interests include evaluating and treating neurologic complications of cancer and cancer therapies (including paraneoplastic syndromes seizures, and neuropathies). Her research interests include molecular pathology as well as development of advanced MRI imaging techniques for diagnosing and treating brain and spinal cord tumors. Her holistic patient-centered care focuses on improving quality of life outcomes for brain and spine tumor patients. A native of the Milwaukee area, Dr. Connelly has received all of her training at the Medical College of Wisconsin. Dr. Connelly is board certified in Internal Medicine, Neurology and Neuro-Oncology. Dr. Connelly is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Glioblastoma, Astrocytoma, Glioma, and Brain Tumor. Dr. Connelly is board certified in Internal Medicine, Neurology, and Neuro-Oncology. Dr. Connelly is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology
    Referral may be required

    ProHealth Waukesha Memorial Hospital

    725 American Ave, 
    Waukesha, WI 
    Languages Spoken:
    English

    John Grogan is a Neuroradiologist practicing medicine in Waukesha, Wisconsin. Dr. Grogan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Vertigo, Cowden Syndrome, Sturge-Weber Syndrome, and Linear Nevus Sebaceous Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Perry Pickhardt is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Pickhardt is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Appendicitis, Ascites, Ureterocele, Colonoscopy, and Endoscopy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Meghan Lubner is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Lubner is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Renal Cell Carcinoma (RCC), Ascites, Liver Cancer, Cardiac Ablation, and Nephrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Referral may be required

    Mayo Clinic Health System In Lacrosse

    700 West Ave S, 
    La Crosse, WI 
    Experience:
    10+ years
    Languages Spoken:
    English

    Alix Hopp is a Radiologist practicing medicine in La Crosse, Wisconsin. She has been practicing medicine for over 10 years. Dr. Hopp is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Pleurisy, Pleural Effusion, and Interstitial Lung Disease.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Lori Mankowski is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Mankowski is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Ascites, Visceromegaly, Gas Bloat Syndrome, and Non-Alcoholic Fatty Liver Disease.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology
    Referral may be required

    UW Health Remote Dispensing Services

    2880 University Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Yanjun Chen is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Papilledema, Optic Neuritis, Meningioma, and Multiple Sclerosis (MS).

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Susanne Seeger is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Seeger is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Migraine, Encephalitis, Rasmussen Encephalitis, and Anti-NMDA Receptor Encephalitis.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology
    Referral may be required

    MCHS Hospitals Inc.

    1000 N Oak Ave, 
    Marshfield, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Evan Sandok is a Neurologist practicing medicine in Marshfield, Wisconsin. Dr. Sandok is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Seizures, Partial Seizure, Partial Familial Epilepsy, and Memory Loss.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Edwin Abel is a Urologist practicing medicine in Madison, Wisconsin. Dr. Abel is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Chromophobe Renal Cell Carcinoma, Ureterocele, Nephrectomy, and Reconstructive Urology Surgery.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Referral may be required

    UW Health Cancer Center At ProHealth Care Pewaukee

    N16W24131 Riverwood Dr, 
    Waukesha, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Hake is a Hematologist and an Oncologist practicing medicine in Waukesha, Wisconsin. Dr. Hake is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Angiosarcoma, Inflammatory Breast Cancer, Paget Disease of the Breast, and Breast Cancer.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    UW Health Remote Dispensing Services

    2880 University Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Justin Gottlieb is an Ophthalmologist practicing medicine in Madison, Wisconsin. Dr. Gottlieb is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Diabetic Retinopathy, Retinal Detachment, and Vitrectomy.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    1821 S Webster Ave, 
    Green Bay, WI 
    Languages Spoken:
    English

    Bala Davuluri is a Neurologist practicing medicine in Green Bay, Wisconsin. Dr. Davuluri is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Cerebellar Degeneration, Partial Familial Epilepsy, Tieche-Jadassohn Nevus, and Hypothalamic Hamartomas.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Clinical Cancer Center - Froedtert Hospital

    8800 W. Doyne Ave., 
    Milwaukee, WI 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Dr. Langenstroer is fellowship trained in Urologic Oncology. This offers his patients a unique cancer focused expertise that facilitates patient education and engagement in a personalized treatment plan.Dr. Langenstroer also has considerable experience in penile implant surgery as a treatment option for erectile dysfunction. He is in the 90 percentile of implanters nationwide. Dr. Langenstroer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Ureterocele, Chromophobe Renal Cell Carcinoma, Nephrectomy, and Reconstructive Urology Surgery. Dr. Langenstroer is board certified in Urology. Dr. Langenstroer is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Oncology
    Referral may be required

    Cancer Center - Froedtert Menomonee Falls Hospital

    W180 N8085 Town Hall Rd., 
    Menomonee Falls, WI 
    Languages Spoken:
    English, Arabic
    Offers Telehealth

    Abdel Alqwasmi is a Hematologist and an Oncologist practicing medicine in Menomonee Falls, Wisconsin. Dr. Alqwasmi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 61 other conditions, according to our data. His clinical expertise encompasses Inflammatory Breast Cancer, Angiosarcoma, Paget Disease of the Breast, and Small Cell Lung Cancer (SCLC). Dr. Alqwasmi is board certified in Internal Medicine, Hematology, and Medical Oncology.

    Showing 1-20 of 41

    Last Updated: 06/30/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Wisconsin, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Wisconsin, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Wisconsin, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Wisconsin, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Wisconsin, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Wisconsin, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Wisconsin, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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