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    Last Updated: 10/30/2025

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    MediFind found 1123 doctor with experience in Wolman Disease. Of these, 923 are Experienced, 167 are Advanced, 29 are Distinguished and 4 are Elite.

    Location
    LocationClose
    1,123 providers found
      Elite in Wolman Disease
      Elite in Wolman Disease
      Manchester University NHS FT, 
      Manchester, ENG, GB 

      Simon Jones practices in Manchester, United Kingdom. Mr. Jones is rated as an Elite expert by MediFind in the treatment of Wolman Disease. His top areas of expertise are Cholesteryl Ester Storage Disease, Mucopolysaccharidoses (MPS), Wolman Disease, Lysosomal Acid Lipase Deficiency, and Bone Marrow Transplant.

      Elite in Wolman Disease
      Medical Genetics | Pediatrics
      Elite in Wolman Disease
      Medical Genetics | Pediatrics
      2300 Childrens Plaza, 
      Chicago, IL 
      Languages Spoken:
      English

      Barbara Burton is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Burton is rated as an Elite provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Phenylketonuria (PKU), Mucopolysaccharidoses (MPS), and Cholesteryl Ester Storage Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Wolman Disease
      Elite in Wolman Disease
      Paris, FR 

      Anais Brassier practices in Paris, France. Ms. Brassier is rated as an Elite expert by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Cholesteryl Ester Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, Kidney Transplant, and Liver Transplant.

      Learn about our expert tiers
      Elite in Wolman Disease
      Elite in Wolman Disease
      Turin, IT 

      Ornella Guardamagna practices in Turin, Italy. Ms. Guardamagna is rated as an Elite expert by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Cholesteryl Ester Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, and High Cholesterol.

      Advanced in Wolman Disease
      Family Medicine
      Advanced in Wolman Disease
      Family Medicine

      Wagdy F Girgis MD PC

      76 Battery Ave, 
      Brooklyn, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Wagdy Girgis is a primary care provider, practicing in Family Medicine in Brooklyn, New York. Dr. Girgis is rated as an Advanced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Peptic Ulcer, Cellulitis, Necrosis, and Varicose Veins.

      Cheryl A. Russo
      Experienced in Wolman Disease
      Experienced in Wolman Disease

      Atrium Health Sanger Heart & Vascular Institute Kenilworth

      1237 Harding Place, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Cheryl Russo is a Cardiologist in Charlotte, North Carolina. Dr. Russo is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Atherosclerosis, Coronary Heart Disease, Angina, and Atrial Fibrillation. Dr. Russo is currently accepting new patients.

      Terry B. Short
      Experienced in Wolman Disease
      Internal Medicine
      Experienced in Wolman Disease
      Internal Medicine

      Atrium Health Primary Care Internal Medicine Steele Creek

      13640 Steelecroft Parkway, Suite 320, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Terry Short is a primary care provider, practicing in Internal Medicine in Charlotte, North Carolina. Dr. Short is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are High Cholesterol, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension. Dr. Short is currently accepting new patients.

      Dominique Plantaz
      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Grenoble, FR 

      Dominique Plantaz practices in Grenoble, France. Plantaz is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. Their top areas of expertise are Cholesteryl Ester Storage Disease, Lysosomal Acid Lipase Deficiency, Wolman Disease, Bone Marrow Transplant, and Splenectomy.

      Thomas Batchelor
      Distinguished in Wolman Disease
      Internal Medicine
      Distinguished in Wolman Disease
      Internal Medicine

      Novant Health Traditions Concierge Medicine

      13460 Plaza Road Ext, Suite 100, 
      Charlotte, NC 
      Experience:
      31+ years
      Languages Spoken:
      English
      Offers Telehealth

      Thomas Batchelor is a primary care provider, practicing in Internal Medicine in Charlotte, North Carolina. Dr. Batchelor has been practicing medicine for over 31 years and is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Chanarin-Dorfman Syndrome, Cholesteryl Ester Storage Disease, Lipidosis with Triglycerid Storage Disease, and Lysosomal Acid Lipase Deficiency.

      Experienced in Wolman Disease
      Medical Genetics | Pediatrics
      Experienced in Wolman Disease
      Medical Genetics | Pediatrics
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Lauren Massingham is a Medical Genetics specialist and a Pediatrics provider in Providence, Rhode Island. Dr. Massingham is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Hypotonia, Noonan Syndrome, Thanatophoric Dysplasia, and Lysosomal Acid Lipase Deficiency.

      Experienced in Wolman Disease
      Family Medicine
      Experienced in Wolman Disease
      Family Medicine

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      7901 S 6th St, 
      Oak Creek, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Meier is a primary care provider, practicing in Family Medicine in Oak Creek, Wisconsin. Dr. Meier is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Maturity Onset Diabetes of the Young, Obesity, Familial Hypertension, and Hypertension. Dr. Meier is currently accepting new patients.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Graz, AT 

      Ivan Bradic practices in Graz, Austria. Mr. Bradic is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. His top areas of expertise are Lysosomal Acid Lipase Deficiency, Cholesteryl Ester Storage Disease, Wolman Disease, and Lipidosis with Triglycerid Storage Disease.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Evry, FR 

      Marine Laurent practices in Evry, France. Ms. Laurent is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Cholesteryl Ester Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, and Lipidosis with Triglycerid Storage Disease.

      Distinguished in Wolman Disease
      Pediatrics | Medical Genetics
      Distinguished in Wolman Disease
      Pediatrics | Medical Genetics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Nancy, FR 

      Francois Feillet practices in Nancy, France. Mr. Feillet is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. His top areas of expertise are Cholesteryl Ester Storage Disease, Phenylketonuria (PKU), Lysosomal Acid Lipase Deficiency, Wolman Disease, and Gastrostomy.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Prague, PR, CZ 

      Vera Malinova practices in Prague, Czech Republic. Ms. Malinova is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Cholesteryl Ester Storage Disease, Lysosomal Acid Lipase Deficiency, Wolman Disease, and Lipidosis with Triglycerid Storage Disease.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Sao Paulo, SP, BR 

      Ana Martins practices in Sao Paulo, Brazil. Ms. Martins is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Fabry Disease, Cholesteryl Ester Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, and Kidney Transplant.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Graz, AT 

      Dagmar Kratky practices in Graz, Austria. Ms. Kratky is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Lysosomal Acid Lipase Deficiency, Wolman Disease, Cholesteryl Ester Storage Disease, and Lipidosis with Triglycerid Storage Disease.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Graz, AT 

      Nemanja Vujic practices in Graz, Austria. Mr. Vujic is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. His top areas of expertise are Lysosomal Acid Lipase Deficiency, Cholesteryl Ester Storage Disease, Wolman Disease, and Lipidosis with Triglycerid Storage Disease.

      Distinguished in Wolman Disease
      Distinguished in Wolman Disease
      Evry, FR 

      Mario Amendola practices in Evry, France. Mr. Amendola is rated as a Distinguished expert by MediFind in the treatment of Wolman Disease. His top areas of expertise are Cholesteryl Ester Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, and Sickle Cell Disease.

      Showing 1-20 of 1,123

      Last Updated: 10/30/2025

      What is the definition of Wolman Disease?

      Wolman disease is a congenital disease characterized by an impaired metabolism of the fats (lipids). It is the most severe type of lysosomal acid lipase deficiency. The lysomal acid lipase deficiency causes a buildup of lipids (fats) in body organs and calcium deposits in the adrenal glands. Common symptoms in infants include enlarged liver and spleen, poor weight gain, low muscle tone, jaundice, vomiting, diarrhea, developmental delay, anemia, and poor absorption of nutrients from food. Wolman disease is caused by genetic changes in the LIPA gene which provides instructions to make the lysosomal acid lipase. Inheritance is autosomal recessive.

      When should I see a Wolman Disease doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Wolman Disease doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Wolman Disease doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Wolman Disease doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Wolman Disease doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolman Disease doctor search results page. 

      Why is it important to get a second opinion from a different Wolman Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Wolman Disease doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Wolman Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Wolman Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Wolman Disease doctors near me?

      Look for the filter feature on the left side of the Wolman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Wolman Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Wolman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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