The 20 Best Wolman Disease Doctors Near Me in Boston, MA

Find the Top Wolman Disease Experts and Specialists

The 20 Best Wolman Disease Doctors near Boston, MA

Last Updated: 02/22/2026

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MediFind found 7 doctor with experience in Wolman Disease near Boston, MA. Of these, 6 are Experienced and 1 are Advanced.

Location
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7 providers found
    Experienced in Wolman Disease
    Pediatric Cardiology
    Experienced in Wolman Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Sarah Deferranti is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Deferranti is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Kawasaki Disease, Coronary Artery Fistula, Pulmonary Valves Agenesis, and Congenital Mitral Stenosis.

    Advanced in Wolman Disease
    Medical Genetics | Pediatrics
    Advanced in Wolman Disease
    Medical Genetics | Pediatrics
    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    William Brucker is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Brucker is rated as an Advanced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Lysosomal Acid Lipase Deficiency, Cholesteryl Ester Storage Disease, Wolman Disease, and Fetal Thalidomide Syndrome.

    Experienced in Wolman Disease
    Internal Medicine
    Experienced in Wolman Disease
    Internal Medicine

    Tufts Medical Center Inc.

    750 Washington St, 
    Boston, MA 
     (0.5 miles away)
    Languages Spoken:
    English

    Alawi Alsheikh is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Alsheikh is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Acute Coronary Syndrome, Heart Failure, Ventricular Fibrillation, Angioplasty, and Percutaneous Coronary Intervention (PCI).

    Learn about our expert tiers
    Experienced in Wolman Disease
    Internal Medicine
    Experienced in Wolman Disease
    Internal Medicine

    Office

    400 Technology Sq Ste 201, 
    Cambridge, MA 
     (2.4 miles away)
    Languages Spoken:
    English

    Daniel Ory is an Internal Medicine provider in Cambridge, Massachusetts. Dr. Ory is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Niemann-Pick Disease, GM1 Gangliosidosis, Lysosomal Acid Lipase Deficiency, and Sandhoff Disease.

    Experienced in Wolman Disease
    Medical Genetics
    Experienced in Wolman Disease
    Medical Genetics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Kabuki Syndrome, Niemann-Pick Disease, Classic Galactosemia, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

    Experienced in Wolman Disease
    Medical Genetics
    Experienced in Wolman Disease
    Medical Genetics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Melinda Peters is a Medical Genetics provider in Boston, Massachusetts. Dr. Peters is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

    Experienced in Wolman Disease
    Family Medicine
    Experienced in Wolman Disease
    Family Medicine

    Family Practice Group PC

    11 Water St Ste 1A, 
    Arlington, MA 
     (7.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Laura Zucker is a primary care provider, practicing in Family Medicine in Arlington, Massachusetts. Dr. Zucker is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Seasonal Affective Disorder (SAD), Sitosterolemia, Hypothyroidism, and Chronic Pain.

    Showing 1-7 of 7

    Last Updated: 02/22/2026

    What is the definition of Wolman Disease?

    Wolman disease is a congenital disease characterized by an impaired metabolism of the fats (lipids). It is the most severe type of lysosomal acid lipase deficiency. The lysomal acid lipase deficiency causes a buildup of lipids (fats) in body organs and calcium deposits in the adrenal glands. Common symptoms in infants include enlarged liver and spleen, poor weight gain, low muscle tone, jaundice, vomiting, diarrhea, developmental delay, anemia, and poor absorption of nutrients from food. Wolman disease is caused by genetic changes in the LIPA gene which provides instructions to make the lysosomal acid lipase. Inheritance is autosomal recessive.

    When should I see a Wolman Disease doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Wolman Disease doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Wolman Disease doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Wolman Disease doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Wolman Disease doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolman Disease doctor search results page. 

    Why is it important to get a second opinion from a different Wolman Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Wolman Disease doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Wolman Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Wolman Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Wolman Disease doctors near Boston, MA?

    Look for the filter feature on the left side of the Wolman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Wolman Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Wolman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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