The 20 Best Wolman Disease Doctors in Germany

Find the Top Wolman Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 29 doctor with experience in Wolman Disease near Germany. Of these, 26 are Experienced and 3 are Advanced.

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29 providers found
    Advanced in Wolman Disease
    Advanced in Wolman Disease
    Marburger Str. 85, 
    Kassel, HE, DE 

    Ansgar Schulz practices practicing medicine in Kassel, Germany. Schulz is rated as an Advanced expert by MediFind in the treatment of Wolman Disease. They are also highly rated in 32 other conditions, according to our data. Their clinical expertise encompasses Osteopetrosis, Severe Combined Immunodeficiency (SCID), CLN2 Disease, Bone Marrow Transplant, and Splenectomy.

    Advanced in Wolman Disease
    Advanced in Wolman Disease
    Jena, TH, DE 

    Bernd Gruhn practices practicing medicine in Jena, Germany. Mr. Gruhn is rated as an Advanced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Hepatic Venoocclusive Disease with Immunodeficiency, Leukemia, Acute Lymphoblastic Leukemia (ALL), Bone Marrow Transplant, and Bone Graft.

    Advanced in Wolman Disease
    Advanced in Wolman Disease
    Chemnitzer Str. 40, 
    Freiberg, SN, DE 

    Robert Zimmermann practices practicing medicine in Freiberg, Germany. Mr. Zimmermann is rated as an Advanced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cholesteryl Ester Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, Dupuytren Contracture, and Fasciotomy.

    Learn about our expert tiers
    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Hufeland Str. 55, 
    Essen, NW, DE 

    Klaus Schmid-Werner practices practicing medicine in Essen, Germany. Mr. Schmid-Werner is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Thyroid Cancer, Medullary Thyroid Carcinoma, Neuroendocrine Tumor, Thyroidectomy, and Endoscopy.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Hochheim, TH, DE 

    Eugen Mengel practices practicing medicine in Hochheim, Germany. Mr. Mengel is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Acid Sphingomyelinase Deficiency (ASMD), Non-Langerhans-Cell Histiocytosis, and Reticulohistiocytoma.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Berlin, BE, DE 

    Dominik Soll practices practicing medicine in Berlin, Germany. Mr. Soll is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. His clinical expertise encompasses Enlarged Liver, Lysosomal Acid Lipase Deficiency, Cholesteryl Ester Storage Disease, and Wolman Disease.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Hamburg, HH, DE 

    Zoltan Lukacs practices practicing medicine in Hamburg, Germany. Mr. Lukacs is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Kluver Bucy Syndrome, Acid Sphingomyelinase Deficiency (ASMD), and Mucopolysaccharidoses (MPS).

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Essen, NW, DE 

    Sarah Synoracki practices practicing medicine in Essen, Germany. Ms. Synoracki is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Lipidosis with Triglycerid Storage Disease, Subacute Thyroiditis, Multiple Endocrine Neoplasia Type 2, Lysosomal Acid Lipase Deficiency, and Thyroidectomy.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Hamburg, HH, DE 

    Alexander Fischer practices practicing medicine in Hamburg, Germany. Mr. Fischer is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. His clinical expertise encompasses Obesity, Sialuria, Sialic Acid Storage Disease, and Lysosomal Acid Lipase Deficiency.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    RWTH University Hospital Aachen Pauwelsstr. 30 D-52074 Aachen Germany, 
    Aachen, NW, DE 

    Ralf Weiskirchen practices practicing medicine in Aachen, Germany. Mr. Weiskirchen is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Cirrhosis, Non-Alcoholic Fatty Liver Disease, Hepatocerebral Degeneration, Nonalcoholic Steatohepatitis (NASH), and Liver Transplant.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Bochum, NW, DE 

    Paul Manka practices practicing medicine in Bochum, Germany. Mr. Manka is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Liver Failure, Non-Alcoholic Fatty Liver Disease, Cirrhosis, Nonalcoholic Steatohepatitis (NASH), and Liver Transplant.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Hamburg, HH, DE 

    Michelle Jaeckstein practices practicing medicine in Hamburg, Germany. Ms. Jaeckstein is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. Her clinical expertise encompasses Wolman Disease, Cholesteryl Ester Storage Disease, Lysosomal Acid Lipase Deficiency, and Obesity.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Carl Troll Str. 31, 
    Bonn, NW, DE 

    Reinhard Bauer practices practicing medicine in Bonn, Germany. Mr. Bauer is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Allan-Herndon-Dudley Syndrome, Cerebral Hypoxia, Hypotonia, and Lipidosis with Triglycerid Storage Disease.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Reinickendorfer Str. 61, 
    Berlin, BE, DE 

    Ilja Demuth practices practicing medicine in Berlin, Germany. Demuth is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Nijmegen Breakage Syndrome, Apolipoprotein C2 Deficiency, Familial Lipoprotein Lipase Deficiency, and High Cholesterol.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Berlin, BE, DE 

    Thomas Bobbert practices practicing medicine in Berlin, Germany. Mr. Bobbert is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. His clinical expertise encompasses Cerebral Hypoxia, Defective Apolipoprotein B-100, Abdominal Obesity Metabolic Syndrome, and High Cholesterol.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Essen, NW, DE 

    Holger Jastrow practices practicing medicine in Essen, Germany. Mr. Jastrow is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. His clinical expertise encompasses Lipidosis with Triglycerid Storage Disease, Wolman Disease, Cholesteryl Ester Storage Disease, and Lysosomal Acid Lipase Deficiency.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Albert Einstein Allee 11, 
    Ulm, BW, DE 

    Silvia Schauer practices practicing medicine in Ulm, Germany. Ms. Schauer is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. Her clinical expertise encompasses High Cholesterol, Cholesteryl Ester Storage Disease, Wolman Disease, and Gastritis.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Reinickendorfer Str. 61, 
    Berlin, BE, DE 

    Dominik Spira practices practicing medicine in Berlin, Germany. Mr. Spira is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. His clinical expertise encompasses Muscle Atrophy, High Cholesterol, Abdominal Obesity Metabolic Syndrome, and Metabolic Syndrome.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Essen, NW, DE 

    Simone Kathemann practices practicing medicine in Essen, Germany. Ms. Kathemann is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Progressive Familial Intrahepatic Cholestasis Type 1, Cholestasis, Liver Failure, Congenital Cardiovascular Shunt, and Liver Transplant.

    Experienced in Wolman Disease
    Experienced in Wolman Disease
    Berlin, BE, DE 

    Ursula Kassner practices practicing medicine in Berlin, Germany. Ms. Kassner is rated as an Experienced expert by MediFind in the treatment of Wolman Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses High Cholesterol, Apolipoprotein C2 Deficiency, Familial Lipoprotein Lipase Deficiency, and Familial Hypercholesterolemia.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 29

    Last Updated: 04/28/2026

    What is the definition of Wolman Disease?

    Wolman disease is a congenital disease characterized by an impaired metabolism of the fats (lipids). It is the most severe type of lysosomal acid lipase deficiency. The lysomal acid lipase deficiency causes a buildup of lipids (fats) in body organs and calcium deposits in the adrenal glands. Common symptoms in infants include enlarged liver and spleen, poor weight gain, low muscle tone, jaundice, vomiting, diarrhea, developmental delay, anemia, and poor absorption of nutrients from food. Wolman disease is caused by genetic changes in the LIPA gene which provides instructions to make the lysosomal acid lipase. Inheritance is autosomal recessive.

    When should I see a Wolman Disease doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Wolman Disease doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Wolman Disease doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Wolman Disease doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Wolman Disease doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolman Disease doctor search results page. 

    Why is it important to get a second opinion from a different Wolman Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Wolman Disease doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Wolman Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Wolman Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Wolman Disease doctors in Germany?

    Look for the filter feature on the left side of the Wolman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Wolman Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Wolman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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