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    Last Updated: 01/09/2026

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    MediFind found 479 doctor with experience in Wolman Disease near The United States. Of these, 410 are Experienced, 62 are Advanced, 6 are Distinguished and 1 are Elite.

    Location
    LocationClose
    479 providers found
      Elite in Wolman Disease
      Medical Genetics | Pediatrics
      Elite in Wolman Disease
      Medical Genetics | Pediatrics
      2300 Childrens Plaza, 
      Chicago, IL 
      Languages Spoken:
      English

      Barbara Burton is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Burton is rated as an Elite provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Phenylketonuria (PKU), Mucopolysaccharidoses (MPS), and Cholesteryl Ester Storage Disease.

      Terry B. Short
      Experienced in Wolman Disease
      Internal Medicine
      Experienced in Wolman Disease
      Internal Medicine

      Atrium Health Primary Care Internal Medicine Steele Creek

      13640 Steelecroft Parkway, Suite 320, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Terry Short is a primary care provider, practicing in Internal Medicine in Charlotte, North Carolina. Dr. Short is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are High Cholesterol, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Short is currently accepting new patients.

      Thomas Batchelor
      Distinguished in Wolman Disease
      Internal Medicine
      Distinguished in Wolman Disease
      Internal Medicine

      Novant Health Traditions Concierge Medicine

      13460 Plaza Road Ext, Suite 100, 
      Charlotte, NC 
      Experience:
      32+ years
      Languages Spoken:
      English
      Offers Telehealth

      Thomas Batchelor is a primary care provider, practicing in Internal Medicine in Charlotte, North Carolina. Dr. Batchelor has been practicing medicine for over 32 years and is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Cerebrotendinous Xanthomatosis, Chanarin-Dorfman Syndrome, Lipidosis with Triglycerid Storage Disease, and Lysosomal Acid Lipase Deficiency.

      Learn about our expert tiers
      Advanced in Wolman Disease
      Family Medicine
      Advanced in Wolman Disease
      Family Medicine

      Wagdy F Girgis MD PC

      76 Battery Ave, 
      Brooklyn, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Wagdy Girgis is a primary care provider, practicing in Family Medicine in Brooklyn, New York. Dr. Girgis is rated as an Advanced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Peptic Ulcer, Cellulitis, Necrosis, and Varicose Veins.

      Cheryl A. Russo
      Experienced in Wolman Disease
      Experienced in Wolman Disease

      Atrium Health Sanger Heart & Vascular Institute Kenilworth

      1237 Harding Place, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Cheryl Russo is a Cardiologist in Charlotte, North Carolina. Dr. Russo is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Atherosclerosis, Coronary Heart Disease, Angina, and Atrial Fibrillation. Dr. Russo is currently accepting new patients.

      Karl Weber
      Advanced in Wolman Disease
      Internal Medicine
      Advanced in Wolman Disease
      Internal Medicine

      Atrium Health Primary Care Fort Mill Internal Medicine

      1935 Holbrook Road, Suite 1200, 
      Fort Mill, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Karl Weber is a primary care provider, practicing in Internal Medicine in Fort Mill, South Carolina. Dr. Weber is rated as an Advanced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Wolman Disease. Dr. Weber is currently accepting new patients.

      Daniel S. Senft
      Advanced in Wolman Disease
      Family Medicine
      Advanced in Wolman Disease
      Family Medicine

      Atrium Health Primary Care Lincoln Family Medicine

      447 McAlister Road, Suite 2400, 
      Lincolnton, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Senft is a primary care provider, practicing in Family Medicine in Lincolnton, North Carolina. Dr. Senft is rated as an Advanced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are High Cholesterol, Hypothyroidism, Obesity in Children, and Cholesteryl Ester Storage Disease. Dr. Senft is currently accepting new patients.

      John T. Haney
      Advanced in Wolman Disease
      Family Medicine
      Advanced in Wolman Disease
      Family Medicine

      Atrium Health Primary Care Riverbend Family Medicine

      215 S. Main St., 
      Mt. Holly, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Haney is a primary care provider, practicing in Family Medicine in Mt. Holly, North Carolina. Dr. Haney is rated as an Advanced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Wolman Disease, Lysosomal Acid Lipase Deficiency, Cerebrotendinous Xanthomatosis, and Chanarin-Dorfman Syndrome. Dr. Haney is currently accepting new patients.

      Experienced in Wolman Disease
      Medical Genetics | Pediatrics
      Experienced in Wolman Disease
      Medical Genetics | Pediatrics
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Lauren Massingham is a Medical Genetics specialist and a Pediatrics provider in Providence, Rhode Island. Dr. Massingham is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Hypotonia, Noonan Syndrome, Thanatophoric Dysplasia, and Wolman Disease.

      Experienced in Wolman Disease
      Family Medicine
      Experienced in Wolman Disease
      Family Medicine

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      7901 S 6th St, 
      Oak Creek, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Meier is a primary care provider, practicing in Family Medicine in Oak Creek, Wisconsin. Dr. Meier is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Maturity Onset Diabetes of the Young, Obesity, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Meier is currently accepting new patients.

      Distinguished in Wolman Disease
      Pediatrics | Medical Genetics
      Distinguished in Wolman Disease
      Pediatrics | Medical Genetics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

      Distinguished in Wolman Disease
      Pediatrics | Medical Genetics
      Distinguished in Wolman Disease
      Pediatrics | Medical Genetics

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Gregory Enns is a Pediatrics specialist and a Medical Genetics provider in Palo Alto, California. Dr. Enns is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Urea Cycle Disorders (UCD), Methylmalonic Acidemia, Arginase Deficiency, and Cholesteryl Ester Storage Disease. Dr. Enns is currently accepting new patients.

      Distinguished in Wolman Disease
      Family Medicine
      Distinguished in Wolman Disease
      Family Medicine
      2120 W 24th St, Suite B, 
      Yuma, AZ 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Mitch Freeman is a primary care provider, practicing in Family Medicine in Yuma, Arizona. Dr. Freeman is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Lysosomal Acid Lipase Deficiency, Wolman Disease, Lipidosis with Triglycerid Storage Disease, and Cerebrotendinous Xanthomatosis. Dr. Freeman is currently accepting new patients.

      Distinguished in Wolman Disease
      Internal Medicine
      Distinguished in Wolman Disease
      Internal Medicine

      Pedro J. Penalo, M.D., PLLC

      330 N Ohio Ave, 
      Mercedes, TX 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Pedro Penalo is a primary care provider, practicing in Internal Medicine in Mercedes, Texas. Dr. Penalo is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Type 2 Diabetes (T2D), Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Penalo is currently accepting new patients.

      Distinguished in Wolman Disease
      Medical Genetics | Pediatrics | Physiatry
      Distinguished in Wolman Disease
      Medical Genetics | Pediatrics | Physiatry

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Can Ficicioglu is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Ficicioglu is rated as a Distinguished provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Classic Galactosemia, Urea Cycle Disorders (UCD), Galactose Epimerase Deficiency, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

      Renee Melton
      Experienced in Wolman Disease
      Internal Medicine
      Experienced in Wolman Disease
      Internal Medicine

      Atrium Health Primary Care Cleveland Internal Medicine

      807 Schenck St., Suite 2, 
      Shelby, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Renee Melton is a primary care provider, practicing in Internal Medicine in Shelby, North Carolina. Dr. Melton is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Breast Cancer. Dr. Melton is currently accepting new patients.

      Koshilie C. Gunadasa
      Experienced in Wolman Disease
      Family Medicine
      Experienced in Wolman Disease
      Family Medicine

      Atrium Health Primary Care Lincoln Family Medicine

      447 McAlister Road, Suite 2400, 
      Lincolnton, NC 
      Languages Spoken:
      English, Sinhala
      Accepting New Patients
      Offers Telehealth

      Koshilie Gunadasa is a primary care provider, practicing in Family Medicine in Lincolnton, North Carolina. Dr. Gunadasa is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Vitamin B12 Deficiency Anemia, Multiple Carboxylase Deficiency, Folate Deficiency, and Familial Combined Hyperlipidemia. Dr. Gunadasa is currently accepting new patients.

      Wanda S. Robinson
      Experienced in Wolman Disease
      Internal Medicine
      Experienced in Wolman Disease
      Internal Medicine

      Carolinas Medical Center

      1000 Blythe Blvd., 
      Charlotte, NC 
      Experience:
      36+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Wanda Robinson is a primary care provider, practicing in Internal Medicine in Charlotte, North Carolina. Dr. Robinson has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. Her top areas of expertise are Lipidosis with Triglycerid Storage Disease, Wolman Disease, Lysosomal Acid Lipase Deficiency, and Cerebrotendinous Xanthomatosis. Dr. Robinson is currently accepting new patients.

      Howard S. Pittle
      Experienced in Wolman Disease
      Internal Medicine
      Experienced in Wolman Disease
      Internal Medicine

      Complete Primary Care Associates - UPMC

      4190 Brownsville Road, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Howard Pittle is a primary care provider, practicing in Internal Medicine in Pittsburgh, Pennsylvania. Dr. Pittle is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are ALK-Positive Non-Small Cell Lung Cancer, Squamous Cell Lung Carcinoma, Small Cell Lung Cancer (SCLC), Pancreatectomy, and Colonoscopy.

      Andrew Kindel
      Experienced in Wolman Disease
      Internal Medicine
      Experienced in Wolman Disease
      Internal Medicine

      Atrium Health Primary Care Dove Internal Medicine

      6030 W. Highway 74, Suite D, 
      Indian Trail, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Kindel is a primary care provider, practicing in Internal Medicine in Indian Trail, North Carolina. Dr. Kindel is rated as an Experienced provider by MediFind in the treatment of Wolman Disease. His top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Kindel is currently accepting new patients.

      Showing 1-20 of 479

      Last Updated: 01/09/2026

      What is the definition of Wolman Disease?

      Wolman disease is a congenital disease characterized by an impaired metabolism of the fats (lipids). It is the most severe type of lysosomal acid lipase deficiency. The lysomal acid lipase deficiency causes a buildup of lipids (fats) in body organs and calcium deposits in the adrenal glands. Common symptoms in infants include enlarged liver and spleen, poor weight gain, low muscle tone, jaundice, vomiting, diarrhea, developmental delay, anemia, and poor absorption of nutrients from food. Wolman disease is caused by genetic changes in the LIPA gene which provides instructions to make the lysosomal acid lipase. Inheritance is autosomal recessive.

      When should I see a Wolman Disease doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Wolman Disease doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Wolman Disease doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Wolman Disease doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Wolman Disease doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wolman Disease doctor search results page. 

      Why is it important to get a second opinion from a different Wolman Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Wolman Disease doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Wolman Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Wolman Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Wolman Disease doctors in The United States?

      Look for the filter feature on the left side of the Wolman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Wolman Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Wolman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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