The 20 Best X-Linked Dominant Scapuloperoneal Myopathy Doctors Near Me

Find the Top X-Linked Dominant Scapuloperoneal Myopathy Experts and Specialists

The 20 Best X-Linked Dominant Scapuloperoneal Myopathy Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 1251 doctor with experience in X-Linked Dominant Scapuloperoneal Myopathy. Of these, 996 are Experienced, 204 are Advanced, 50 are Distinguished and 1 are Elite.

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1,251 providers found
    Elite in X-Linked Dominant Scapuloperoneal Myopathy
    Elite in X-Linked Dominant Scapuloperoneal Myopathy
    Warsaw, MZ, PL 

    Agnieszka Pilarczyk-Madej practices in Warsaw, Poland. Ms. Pilarczyk-Madej is rated as an Elite expert by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, X-Linked Cardiac Valvular Dysplasia, and Limb-Girdle Muscular Dystrophy Type 1A.

    Joseph J. Melvin
    Experienced in X-Linked Dominant Scapuloperoneal Myopathy
    Experienced in X-Linked Dominant Scapuloperoneal Myopathy

    St. Christopher's Pediatric Associates Neurology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Melvin is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are West Syndrome, Generalized Tonic-Clonic Seizure, Phenylketonuria (PKU), and Seizures.

    Sam Fatoorehchi
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy
    Family Medicine
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy
    Family Medicine

    Advocate Medical Group Primary Care

    Chicago, IL 
    Languages Spoken:
    English

    Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Miyoshi Myopathy, Distal Myopathy 2, Oculopharyngeal Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

    Learn about our expert tiers
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

    University Andrology Lab LLC

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.

    Edward B. Petrasek
    Experienced in X-Linked Dominant Scapuloperoneal Myopathy
    Family Medicine
    Experienced in X-Linked Dominant Scapuloperoneal Myopathy
    Family Medicine

    Tower Health Medical Group Family Medicine - Bernville

    7173 Bernville Rd, 
    Bernville, PA 
    Languages Spoken:
    English

    . Dr. Petrasek is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Heart Failure with Preserved Ejection Fraction (HFpEF).

    Dukjin Im
    Experienced in X-Linked Dominant Scapuloperoneal Myopathy
    Pediatrics
    Experienced in X-Linked Dominant Scapuloperoneal Myopathy
    Pediatrics

    Levine Children's Hospital

    1000 Blythe Blvd., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dukjin Im is a Pediatrics provider in Charlotte, North Carolina. Dr. Im is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Miyoshi Myopathy. Dr. Im is currently accepting new patients.

    Valentina Emmanuele
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Pediatric Neurology | Neuromusculoskeletal Medicine
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Pediatric Neurology | Neuromusculoskeletal Medicine

    CUIMC/Harkness Pavilion

    180 Fort Washington Avenue, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Emmanuele is a pediatric neurology specialist with expertise in neuromuscular disorders. Her areas of interest include mitochondrial disorders and metabolic myopathies. She initially trained at the “Istituto Giannina Gaslini” in Genoa, Italy, a tertiary pediatric hospital where she cared for children with neuromuscular disorders. In 2009, Dr. Emmanuele moved to New York City to join the H. Houston Merritt Neuromuscular Research Center at Columbia University as a research scientist. She then completed a clinical fellowship in mitochondrial disorders through the North American Mitochondrial Disease Consortium (NAMDC). In 2024, she completed her residency in pediatric neurology at Columbia University Irving Medical Center. Dr. Emmanuele is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, MELAS Syndrome, Emery-Dreifuss Muscular Dystrophy, and Leigh Syndrome.

    Jeffrey M. Statland
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Statland is a Neurologist in Fairway, Kansas. Dr. Statland has been practicing medicine for over 21 years and is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Gastrostomy. Dr. Statland is currently accepting new patients.

    Scott M. Friedenberg
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

    GMC Neurology

    100 North Academy Avenue, 
    Danville, PA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Dr. Friedenberg is a neurologist board certified in neurology, neurophysiology and electromyography by the American Board of Psychiatry and Neurology. His clinical interests include neuromuscular disease (including ALS and muscular dystrophy), electromyography, general neurology and neurologic education. He earned his medical degree from Temple University, and completed his residency and fellowship at Mayo Clinic, Rochester, MN. Dr. Friedenberg is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Myasthenia Gravis, Miller-Fisher Syndrome, Chronic Polyradiculoneuritis, and Guillain-Barre Syndrome.

    Anthony Amato
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Inclusion Body Myositis, Polymyositis, Myositis, Thymectomy, and Gastrostomy.

    Margherita Milone
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Necrotizing Myopathy (NM), Progressive External Ophthalmoplegia, Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

    Shafeeq S. Ladha
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy
    Neuromusculoskeletal Medicine | Neurology
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy
    Neuromusculoskeletal Medicine | Neurology

    Barrow Neuromuscular, MS, MDA, Neuro Ophthalmology

    240 W Thomas Rd, Ste 400, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    My mission, along with the St. Joseph Medical Group, is to focus on innovative clinical care and the pursuit of excellence through scholarly activities. This allows me to provide patients with state-of-the-art patient services and exceptional patient experiences. Dr. Ladha is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Pompe Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA).

    Mazen M. Dimachkie
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    38+ years
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Mazen Dimachkie is a Neurologist in Fairway, Kansas. Dr. Dimachkie has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Myositis, Inclusion Body Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy. Dr. Dimachkie is currently accepting new patients.

    Kumaraswamy Sivakumar
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy
    Advanced in X-Linked Dominant Scapuloperoneal Myopathy

    Neuromuscular Research Center

    4545 E Shea Blvd, Ste 175, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kumaraswamy Sivakumar is a Neurologist in Phoenix, Arizona. Dr. Sivakumar is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is currently accepting new patients.

    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Bologna, IT 

    Vittoria Cenni practices in Bologna, Italy. Ms. Cenni is rated as a Distinguished expert by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Acrorenal Mandibular Syndrome, Mandibuloacral Dysplasia, X-Linked Dominant Scapuloperoneal Myopathy, and Processing Deficient Progeroid Laminopathies (PDPL).

    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

    Office

    622 W 168th St # 1564, 
    New York, NY 
    Experience:
    42+ years
    Languages Spoken:
    English

    Tanji Kurenai is a Neurologist in New York, New York. Dr. Kurenai has been practicing medicine for over 42 years and is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Leigh Syndrome, and Progressive External Ophthalmoplegia.

    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Centre De Référence De Pathologie Neuromusculaire Paris Est, 
    EE 

    Gisele Bonne practices in Estonia. Ms. Bonne is rated as a Distinguished expert by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Cramp-Fasciculation Syndrome, and Dilated Cardiomyopathy (DCM).

    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Via Di Barbiano 1/10, 
    Bologna, IT 

    Giovanna Lattanzi practices in Bologna, Italy. Ms. Lattanzi is rated as a Distinguished expert by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Acrorenal Mandibular Syndrome, Emery-Dreifuss Muscular Dystrophy, Mandibuloacral Dysplasia, and Processing Deficient Progeroid Laminopathies (PDPL).

    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Nuoro, IT 

    Nicola Carboni practices in Nuoro, Italy. Ms. Carboni is rated as a Distinguished expert by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 1B, Primary Lateral Sclerosis, and Thrombectomy.

    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
    Banacha 1a Str, 
    Warsaw, MZ, PL 

    Michal Marchel practices in Warsaw, Poland. Marchel is rated as a Distinguished expert by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Their top areas of expertise are Emery-Dreifuss Muscular Dystrophy, X-Linked Dominant Scapuloperoneal Myopathy, Heart Failure, Cardiac Ablation, and Transcatheter Aortic Valve Replacement (TAVR).

    Showing 1-20 of 1,251

    Last Updated: 02/22/2026

    What is the definition of X-Linked Dominant Scapuloperoneal Myopathy?

    X-linked scapuloperoneal myopathy is an inherited muscular dystrophy characterized by weakness and wasting of the muscles in the lower legs and the area of the shoulder blades. In some individuals, facial muscles may also be affected. Some cases of scapuloperoneal myopathy are caused by genetic changes in the FHL1 gene. These cases are inherited in an X-linked dominant manner.

    When should I see a X-Linked Dominant Scapuloperoneal Myopathy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Dominant Scapuloperoneal Myopathy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Dominant Scapuloperoneal Myopathy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Dominant Scapuloperoneal Myopathy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Dominant Scapuloperoneal Myopathy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Dominant Scapuloperoneal Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Dominant Scapuloperoneal Myopathy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Dominant Scapuloperoneal Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Dominant Scapuloperoneal Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Dominant Scapuloperoneal Myopathy doctors near me?

    Look for the filter feature on the left side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Dominant Scapuloperoneal Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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