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    Last Updated: 10/30/2025

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    MediFind found 16 doctor with experience in X-Linked Dominant Scapuloperoneal Myopathy near Chicago, IL. Of these, 9 are Experienced and 7 are Advanced.

    Location
    LocationClose
    16 providers found
      Sam Fatoorehchi
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Family Medicine
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Family Medicine

      Advocate Medical Group Primary Care

      Chicago, IL 
       (4.4 miles away)
      Languages Spoken:
      English

      Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Miyoshi Myopathy, Distal Myopathy 2, Oculopharyngeal Muscular Dystrophy, and Emery-Dreifuss Muscular Dystrophy.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      225 E Chicago Ave # 51, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English

      Nancy Kuntz is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Kuntz is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Thymectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Abigail Schwaede is a Neurologist in Chicago, Illinois. Dr. Schwaede is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Spinal Muscular Atrophy Type 2, Dysferlinopathy, Spinal Muscular Atrophy with Arthrogryposis, and X-Linked Infantile Spinal Muscular Atrophy.

      Learn about our expert tiers
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Vamshi Rao is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Rao is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, and Thymectomy.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology

      Rush University Medical Group

      1700 W Van Buren St, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rabia Malik is a Neurologist in Chicago, Illinois. Dr. Malik is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Malik is currently accepting new patients.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy

      The Board Of Trustees Of The University Of Illinois

      912 S Wood St, 
      Chicago, IL 
       (2.2 miles away)
      Languages Spoken:
      English

      Charles Abrams is a Neurologist in Chicago, Illinois. Dr. Abrams is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Hereditary Spastic Paraparesis, Charcot-Marie-Tooth Disease, Monomelic Amyotrophy, and Pelizaeus-Merzbacher Disease.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Heydemann is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Heydemann is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy. Dr. Heydemann is currently accepting new patients in some locations.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy

      Rush University Medical Group

      1700 W Van Buren St, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Madhu Soni is a Neurologist in Chicago, Illinois. Dr. Soni is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Peripheral Neuropathy, Myasthenia Gravis, Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy. Dr. Soni is currently accepting new patients.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy

      Rush University Medical Group

      1653 W Congress Pkwy, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Jacobson is a Neurologist in Chicago, Illinois. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy. Dr. Jacobson is currently accepting new patients in some locations.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy

      The Board Of Trustees Of The University Of Illinois

      1801 W Taylor St, Suite 2, 
      Chicago, IL 
       (2.2 miles away)
      Languages Spoken:
      English

      Diana Mnatsakanova is a Neurologist in Chicago, Illinois. Dr. Mnatsakanova is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Myasthenia Gravis, Multifocal Motor Neuropathy, Primary Lateral Sclerosis, and Chronic Inflammatory Demyelinating Polyneuropathy.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Internal Medicine
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Internal Medicine

      Presence Healthcare Services

      2900 N Lake Shore Dr, 
      Chicago, IL 
       (3.5 miles away)
      Languages Spoken:
      English, Filipino, Spanish, Urdu
      Accepting New Patients
      Offers Telehealth

      Alam Khan is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are End-Stage Renal Disease (ESRD), Generalized Tonic-Clonic Seizure, Type 2 Diabetes (T2D), Gastrostomy, and Ureteroscopy. Dr. Khan is currently accepting new patients.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
       (6.7 miles away)
      Languages Spoken:
      English, Filipino
      Accepting New Patients
      Offers Telehealth

      Betty Soliven is a Neurologist in Chicago, Illinois. Dr. Soliven is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Chronic Inflammatory Demyelinating Polyneuropathy, Thymectomy, and Gastrostomy. Dr. Soliven is currently accepting new patients.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy

      The University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
       (6.7 miles away)
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients
      Offers Telehealth

      Helene Rubeiz is a Neurologist in Chicago, Illinois. Dr. Rubeiz is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Acute Flaccid Myelitis (AFM), Headache, Peripheral Neuropathy, and Migraine. Dr. Rubeiz is currently accepting new patients.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      2211 N Oak Park Ave, 
      Chicago, IL 
       (8.7 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Maria Martinez is a Physiatrist in Chicago, Illinois. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Alternating Hemiplegia of Childhood, Cerebral Palsy, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Martinez is currently accepting new patients.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Physiatry | Pediatrics
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Physiatry | Pediatrics

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
       (10.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Shubhra Mukherjee is a Physiatrist and a Pediatrics provider in Maywood, Illinois. Dr. Mukherjee is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, HNRNPH2-Related Disorder, and Lithotripsy. Dr. Mukherjee is currently accepting new patients.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy

      Endeavor Health Medical Group

      9600 Gross Point Rd, 
      Skokie, IL 
       (13.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Megan Shanks is a Neurologist in Skokie, Illinois. Dr. Shanks is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Peripheral Neuropathy, Foot Drop, Dysgraphia, and Myasthenia Gravis. Dr. Shanks is currently accepting new patients.

      Showing 1-16 of 16

      Last Updated: 10/30/2025

      What is the definition of X-Linked Dominant Scapuloperoneal Myopathy?

      X-linked scapuloperoneal myopathy is an inherited muscular dystrophy characterized by weakness and wasting of the muscles in the lower legs and the area of the shoulder blades. In some individuals, facial muscles may also be affected. Some cases of scapuloperoneal myopathy are caused by genetic changes in the FHL1 gene. These cases are inherited in an X-linked dominant manner.

      When should I see a X-Linked Dominant Scapuloperoneal Myopathy doctor near Chicago, IL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Dominant Scapuloperoneal Myopathy doctor near Chicago, IL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Dominant Scapuloperoneal Myopathy doctors near Chicago, IL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Dominant Scapuloperoneal Myopathy doctors near Chicago, IL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Dominant Scapuloperoneal Myopathy doctor near Chicago, IL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Dominant Scapuloperoneal Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Dominant Scapuloperoneal Myopathy doctor near Chicago, IL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Dominant Scapuloperoneal Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Dominant Scapuloperoneal Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Dominant Scapuloperoneal Myopathy doctors near Chicago, IL?

      Look for the filter feature on the left side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Dominant Scapuloperoneal Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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