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    Last Updated: 01/09/2026

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    MediFind found 661 doctor with experience in X-Linked Dominant Scapuloperoneal Myopathy near The United States. Of these, 505 are Experienced, 133 are Advanced and 23 are Distinguished.

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    661 providers found
      Sam Fatoorehchi
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Family Medicine
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Family Medicine

      Advocate Medical Group Primary Care

      Chicago, IL 
      Languages Spoken:
      English

      Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Miyoshi Myopathy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Fukuyama Type Muscular Dystrophy.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology | Pediatrics | Pediatric Neurology
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology | Pediatrics | Pediatric Neurology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.

      Margherita Milone
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      MN - Neuro

      200 1st St SW, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

      Learn about our expert tiers
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      Penn Neuroscience Center - Neurology

      330 South 9th Street, 3rd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Lauren Elman is a Neurologist in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Elman is currently accepting new patients.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      Office

      355 W 16th St Ste 3200, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Cynthia Bodkin is a Neurologist in Indianapolis, Indiana. Dr. Bodkin is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      University Andrology Lab LLC

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      Geisinger Medical Center

      100 N Academy Ave, 
      Danville, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Scott Friedenberg is a Neurologist in Danville, Pennsylvania. Dr. Friedenberg is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, and Guillain-Barre Syndrome.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology

      University Of Vermont Medical Center Inc

      790 College Pkwy, 
      Colchester, VT 
      Languages Spoken:
      English, Hindi
      Offers Telehealth

      Rup Tandan is a Neurologist in Colchester, Vermont. Dr. Tandan is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      222 Piedmont Ave, Suite 3200, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      John Quinlan is a Neurologist in Cincinnati, Ohio. Dr. Quinlan is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Myasthenia Gravis, Inclusion Body Myositis, Distal Myopathy 2, and Miyoshi Myopathy. Dr. Quinlan is currently accepting new patients.

      Anthony A. Amato
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Vern Juel
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neurology

      Private Diagnostic Clinic PLLC

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.

      Paul T. Twydell
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
      Experience:
      26+ years
      Languages Spoken:
      English
      Accepting New Patients

      Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.

      Daniel Menkes
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy
      Advanced in X-Linked Dominant Scapuloperoneal Myopathy

      Daniel Menkes MD

      3555 W 13 Mile Rd Ste N120, 
      Royal Oak, MI 
      Experience:
      38+ years
      Languages Spoken:
      English

      Daniel Menkes is a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Family Medicine
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Family Medicine
      15812 E Indiana Ave, 
      Spokane Valley, WA 
      Languages Spoken:
      English, Dutch, Filipino, Korean
      Accepting New Patients
      Offers Telehealth

      Jordan Espiritu is a primary care provider, practicing in Family Medicine in Spokane Valley, Washington. Dr. Espiritu is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Type 2 Diabetes (T2D). Dr. Espiritu is currently accepting new patients.

      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      Experienced in X-Linked Dominant Scapuloperoneal Myopathy
      3300 Main Street, 3rd Floor Suite C&d, 
      Springfield, MA 
      Languages Spoken:
      English

      Meghan Hickey is a Neurologist in Springfield, Massachusetts. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Seizures, Migraine, Autosomal Dominant Partial Epilepsy with Auditory Features, and Tension Headache.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      Office

      622 W 168th St # 1564, 
      New York, NY 
      Languages Spoken:
      English

      Tanji Kurenai is a Neurologist in New York, New York. Dr. Kurenai is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Leigh Syndrome, and Progressive External Ophthalmoplegia.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are Cerebral Palsy, Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, and Walker-Warburg Syndrome. Dr. Gettings is currently accepting new patients.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Randal Richardson is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Richardson is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. His top areas of expertise are Emery-Dreifuss Muscular Dystrophy, Miyoshi Myopathy, Fukuyama Type Muscular Dystrophy, and Oculopharyngeal Muscular Dystrophy. Dr. Richardson is currently accepting new patients.

      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      Distinguished in X-Linked Dominant Scapuloperoneal Myopathy
      Pediatric Neurology | Neurology
      710 W 168th St, 
      New York, NY 
      Languages Spoken:
      English

      Valentina Emmanuele is a Pediatric Neurologist and a Neurologist in New York, New York. Dr. Emmanuele is rated as a Distinguished provider by MediFind in the treatment of X-Linked Dominant Scapuloperoneal Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, MELAS Syndrome, Emery-Dreifuss Muscular Dystrophy, and Leigh Syndrome.

      Showing 1-20 of 661

      Last Updated: 01/09/2026

      What is the definition of X-Linked Dominant Scapuloperoneal Myopathy?

      X-linked scapuloperoneal myopathy is an inherited muscular dystrophy characterized by weakness and wasting of the muscles in the lower legs and the area of the shoulder blades. In some individuals, facial muscles may also be affected. Some cases of scapuloperoneal myopathy are caused by genetic changes in the FHL1 gene. These cases are inherited in an X-linked dominant manner.

      When should I see a X-Linked Dominant Scapuloperoneal Myopathy doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Dominant Scapuloperoneal Myopathy doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Dominant Scapuloperoneal Myopathy doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Dominant Scapuloperoneal Myopathy doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Dominant Scapuloperoneal Myopathy doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Dominant Scapuloperoneal Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Dominant Scapuloperoneal Myopathy doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Dominant Scapuloperoneal Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Dominant Scapuloperoneal Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Dominant Scapuloperoneal Myopathy doctors in The United States?

      Look for the filter feature on the left side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Dominant Scapuloperoneal Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Dominant Scapuloperoneal Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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