The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in VLG, BE

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 29 doctor with experience in X-Linked Myotubular Myopathy near VLG, BE. Of these, 28 are Experienced and 1 are Advanced.

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29 providers found
    Advanced in X-Linked Myotubular Myopathy

    Kristl G. Claeys
    Advanced in X-Linked Myotubular Myopathy

    Kristl G. Claeys
    Referral may be required
    Leuven, VLG, BE 

    Kristl Claeys practices practicing medicine in Leuven, Belgium. Ms. Claeys is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Cramp-Fasciculation Syndrome, Limb-Girdle Muscular Dystrophy, and Primary Lateral Sclerosis.

    Experienced in X-Linked Myotubular Myopathy

    Jonathan Baets
    Experienced in X-Linked Myotubular Myopathy

    Jonathan Baets
    Referral may be required
    Antwerpen, VLG, BE 

    Jonathan Baets practices practicing medicine in Antwerpen, Belgium. Mr. Baets is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Hajdu-Cheney Syndrome, Hereditary Sensory and Autonomic Neuropathy Type 2, Hereditary Sensory Neuropathy Type 1 (HSN1), and Acute Cerebellar Ataxia.

    Experienced in X-Linked Myotubular Myopathy

    Peter De Jonghe
    Experienced in X-Linked Myotubular Myopathy

    Peter De Jonghe
    Referral may be required
    Antwerpen, VLG, BE 

    Peter De Jonghe practices practicing medicine in Antwerpen, Belgium. Mr. De Jonghe is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Hajdu-Cheney Syndrome, Hereditary Sensory and Autonomic Neuropathy Type 2, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Acute Cerebellar Ataxia.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy

    Dietmar R. Thal
    Experienced in X-Linked Myotubular Myopathy

    Dietmar R. Thal
    Referral may be required

    UZ Leuven

    Leuven, VLG, BE 

    Dietmar Thal practices practicing medicine in Leuven, Belgium. Mr. Thal is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Alzheimer's Disease, Dementia, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    Experienced in X-Linked Myotubular Myopathy

    Laurence Thielemans
    Experienced in X-Linked Myotubular Myopathy

    Laurence Thielemans
    Referral may be required
    Leuven, VLG, BE 

    Laurence Thielemans practices practicing medicine in Leuven, Belgium. Mr. Thielemans is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Transient Familial Hyperbilirubinemia, Glucose-6-Phosphate Dehydrogenase Deficiency, Jaundice, and Hemolytic Disease of the Newborn.

    Experienced in X-Linked Myotubular Myopathy

    Martin Y. Lammens
    Experienced in X-Linked Myotubular Myopathy

    Martin Y. Lammens
    Referral may be required
    Antwerpen, VLG, BE 

    Martin Lammens practices practicing medicine in Antwerpen, Belgium. Mr. Lammens is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Ectopic Cushing's syndrome, Hydranencephaly, Metastatic Pleural Tumor, and Fetal Akinesia Sequence.

    Experienced in X-Linked Myotubular Myopathy

    Jean-jacques A. Martin
    Experienced in X-Linked Myotubular Myopathy

    Jean-jacques A. Martin
    Referral may be required
    Antwerpen, VLG, BE 

    Jean-jacques Martin practices practicing medicine in Antwerpen, Belgium. Mr. Martin is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Dementia, Frontotemporal Dementia, Alzheimer's Disease, and CACH Syndrome.

    Experienced in X-Linked Myotubular Myopathy

    Chantal De Groote-Ceuterick
    Experienced in X-Linked Myotubular Myopathy

    Chantal De Groote-Ceuterick
    Referral may be required
    Antwerpen, VLG, BE 

    Chantal De Groote-Ceuterick practices practicing medicine in Antwerpen, Belgium. Ms. De Groote-Ceuterick is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Progressive Myoclonic Epilepsy, CLN3 Disease, and CLN4 Disease.

    Experienced in X-Linked Myotubular Myopathy

    Ine Vandersmissen
    Experienced in X-Linked Myotubular Myopathy

    Ine Vandersmissen
    Referral may be required
    Beerse, VLG, BE 

    Ine Vandersmissen practices practicing medicine in Beerse, Belgium. Vandersmissen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Delphine Bouhy
    Experienced in X-Linked Myotubular Myopathy

    Delphine Bouhy
    Referral may be required
    Antwerpen, VLG, BE 

    Delphine Bouhy practices practicing medicine in Antwerpen, Belgium. Ms. Bouhy is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses Charcot-Marie-Tooth Disease, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy

    Willem De Ridder
    Experienced in X-Linked Myotubular Myopathy

    Willem De Ridder
    Referral may be required
    Antwerpen, VLG, BE 

    Willem De Ridder practices practicing medicine in Antwerpen, Belgium. Mr. De Ridder is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Cardiomyopathic Lentiginosis, Spastic Paraplegia Type 7, and Rhabdomyolysis.

    Experienced in X-Linked Myotubular Myopathy

    Adriaan M. Kitshoff
    Experienced in X-Linked Myotubular Myopathy

    Adriaan M. Kitshoff
    Referral may be required
    Merelbeke, VLG, BE 

    Adriaan Kitshoff practices practicing medicine in Merelbeke, Belgium. Mr. Kitshoff is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Childhood Volvulus, Congenital Cardiovascular Shunt, Nemaline Myopathy, Oophorectomy, and Hysterectomy.

    Experienced in X-Linked Myotubular Myopathy

    Vicky De Winter
    Experienced in X-Linked Myotubular Myopathy

    Vicky De Winter
    Referral may be required
    Antwerpen, VLG, BE 

    Vicky De Winter practices practicing medicine in Antwerpen, Belgium. Ms. De Winter is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Anhidrosis, and Hereditary Sensory and Autonomic Neuropathy Type 2.

    Experienced in X-Linked Myotubular Myopathy

    Thomas A. Tousseyn
    Experienced in X-Linked Myotubular Myopathy

    Thomas A. Tousseyn
    Referral may be required
    Leuven, VLG, BE 

    Thomas Tousseyn practices practicing medicine in Leuven, Belgium. Mr. Tousseyn is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses B-Cell Lymphoma, Non-Hodgkin Lymphoma, Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), Splenectomy, and Lung Transplant.

    Experienced in X-Linked Myotubular Myopathy

    Valerie Race
    Experienced in X-Linked Myotubular Myopathy

    Valerie Race
    Referral may be required
    Leuven, VLG, BE 

    Valerie Race practices practicing medicine in Leuven, Belgium. Ms. Race is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses ALG1-CDG, Hereditary Spastic Paraparesis, Troyer Syndrome, and DPAGT1-CDG.

    Experienced in X-Linked Myotubular Myopathy

    Manisha Juneja
    Experienced in X-Linked Myotubular Myopathy

    Manisha Juneja
    Referral may be required
    Antwerpen, VLG, BE 

    Manisha Juneja practices practicing medicine in Antwerpen, Belgium. Ms. Juneja is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Charcot-Marie-Tooth Disease, Colorectal Cancer, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Geert Stichele-Vander
    Experienced in X-Linked Myotubular Myopathy

    Geert Stichele-Vander
    Referral may be required
    Merksplas, VLG, BE 

    Geert Stichele-Vander practices practicing medicine in Merksplas, Belgium. Stichele-Vander is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their clinical expertise encompasses Spastic Paraplegia Type 4, Spastic Paraplegia Type 2, Spastic Paraplegia Type 7, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy

    Veerle Goosens
    Experienced in X-Linked Myotubular Myopathy

    Veerle Goosens
    Referral may be required
    Leuven, VLG, BE 

    Veerle Goosens practices practicing medicine in Leuven, Belgium. Goosens is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Stormorken Syndrome, Fibrous Dysplasia, and Menorrhagia.

    Experienced in X-Linked Myotubular Myopathy

    Bob Asselbergh
    Experienced in X-Linked Myotubular Myopathy

    Bob Asselbergh
    Referral may be required
    Antwerpen, VLG, BE 

    Bob Asselbergh practices practicing medicine in Antwerpen, Belgium. Mr. Asselbergh is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Anhidrosis, and Hajdu-Cheney Syndrome.

    Experienced in X-Linked Myotubular Myopathy

    Emeline M. Van Craenenbroeck
    Experienced in X-Linked Myotubular Myopathy

    Emeline M. Van Craenenbroeck
    Referral may be required
    Antwerpen, VLG, BE 

    Emeline Van Craenenbroeck practices practicing medicine in Antwerpen, Belgium. Ms. Van Craenenbroeck is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Jervell Lange-Nielsen Syndrome (JLNS), Heart Transplant, and Kidney Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 29

    Last Updated: 06/30/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in VLG, BE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in VLG, BE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor in VLG, BE?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Myotubular Myopathy doctors in VLG, BE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in VLG, BE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in VLG, BE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in VLG, BE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in VLG, BE?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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