The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Boston, MA

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 19 doctor with experience in X-Linked Myotubular Myopathy near Boston, MA. Of these, 14 are Experienced, 4 are Advanced and 1 are Distinguished.

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19 providers found
    Distinguished in X-Linked Myotubular Myopathy
    Distinguished in X-Linked Myotubular Myopathy

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Amato is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is board certified in Neurology, 1991 and Neuromuscular Medicine, 2008.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Hart Lidov is a Pathologist practicing medicine in Boston, Massachusetts. Dr. Lidov is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Sturge-Weber Syndrome, Gliomatosis Cerebri, Mosaicism, and Hypotonia. Dr. Lidov is board certified in Neurology With Special Qualifications In Child Neurology and Neuropathology.

    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Basil Darras is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Darras is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 1, and Gastrostomy.

    Learn about our expert tiers
    Advanced in X-Linked Myotubular Myopathy
    Internal Medicine
    Advanced in X-Linked Myotubular Myopathy
    Internal Medicine

    Massachusetts General Hospital

    151 Everett Ave, 
    Chelsea, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Dean Xerras is a primary care provider, practicing in Internal Medicine in Chelsea, Massachusetts. Dr. Xerras is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Syphilis, Diabetic Neuropathy, Centronuclear Myopathy, and X-Linked Myotubular Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Internal Medicine
    Advanced in X-Linked Myotubular Myopathy
    Internal Medicine

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Elisabeth Wilder is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Wilder is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Lung Metastases, Gallstones, Gallbladder Disease, and Nemaline Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    10+ years
    Languages Spoken:
    English

    Leslie Hayes is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 10 years. Dr. Hayes is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Centronuclear Myopathy, Spinal Muscular Atrophy with Arthrogryposis, X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, and Gastrostomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Shani Kumarasena MD PC

    332 Washington St Ste 260, 
    Wellesley Hills, MA 
    Languages Spoken:
    English

    Chiawen Liang is a Physiatrist practicing medicine in Wellesley Hills, Massachusetts. Dr. Liang is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Distal Median Nerve Dysfunction, Centronuclear Myopathy, Central Core Disease, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Pediatrics | Medical Genetics
    Experienced in X-Linked Myotubular Myopathy
    Pediatrics | Medical Genetics
    300 Longwood Ave, Fegan 10, 
    Boston, MA 
    Languages Spoken:
    English

    Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Alkuraya is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Partha Ghosh is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ghosh is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 65 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Amyotonia Congenita.

    Experienced in X-Linked Myotubular Myopathy
    Neurology | Neuromusculoskeletal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Neurology | Neuromusculoskeletal Medicine

    UMass Memorial Medical Center - University Campus

    55 Lake Avenue North, 
    Worcester, MA 
    Experience:
    11+ years
    Languages Spoken:
    English

    Eleonora D'ambrosio is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Worcester, Massachusetts. She has been practicing medicine for over 11 years. Dr. D'ambrosio is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Nemaline Myopathy. Dr. D'ambrosio is board certified in Neurology and Neuromuscular Medicine.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    CVS Pharmacy

    1575 Blue Hill Ave, 
    Mattapan, MA 
    Languages Spoken:
    English

    Robert Taylor is a primary care provider, practicing in Internal Medicine in Mattapan, Massachusetts. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Progressive External Ophthalmoplegia, MELAS Syndrome, Lactic Acidosis, Cytochrome C Oxidase Deficiency, and Tissue Biopsy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    55 Fruit St, Vbk 915, 
    Boston, MA 
    Languages Spoken:
    English

    Timothy Yu is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Yu is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Periventricular Heterotopia, Schizencephaly, Autism Spectrum Disorder, and Achalasia Microcephaly Syndrome.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Baystate Neurology-Springfield-Main Street

    3300 Main St, 
    Springfield, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Anant Shenoy is a Neurologist practicing medicine in Springfield, Massachusetts. Dr. Shenoy is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Generalized Tonic-Clonic Seizure, and Limb-Girdle Muscular Dystrophy Type 2A.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    MDVIP - Needham, MA

    105 Chestnut St Ste 26, 
    Needham, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacqueline Feuer is a primary care provider, practicing in Internal Medicine in Needham, Massachusetts. Dr. Feuer is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Temporal Arteritis, and Juvenile Temporal Arteritis.

    Experienced in X-Linked Myotubular Myopathy
    Family Medicine
    Experienced in X-Linked Myotubular Myopathy
    Family Medicine

    Inpatient Psychiatric Care At Anna Jaques Hospital

    24 Morrill Pl, 
    Amesbury, MA 
    Languages Spoken:
    English

    Laura Jett is a primary care provider, practicing in Family Medicine in Amesbury, Massachusetts. Dr. Jett is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses Familial Hypocalciuric Hypercalcemia Type 1, Hypercalcemia, Milk-Alkali Syndrome, and Idiopathic Hypercalciuria.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    Mass General Waltham Pharmacy

    52 Second Ave, 
    Waltham, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Gaposchkin is a primary care provider, practicing in Internal Medicine in Waltham, Massachusetts. Dr. Gaposchkin is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Type 2 Diabetes (T2D), Hypothyroidism, Sitosterolemia, and Hypertension.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Doughty is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Doughty is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Hyperkalemic Periodic Paralysis, Stent Placement, and Transmyocardial Revascularization.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    Office

    307 Waverley Oaks Rd Ste 101, 
    Waltham, MA 
    Languages Spoken:
    English

    David Margulies is a primary care provider, practicing in Internal Medicine in Waltham, Massachusetts. Dr. Margulies is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Familial Hypertrophic Cardiomyopathy.

    Experienced in X-Linked Myotubular Myopathy
    Neurology
    Experienced in X-Linked Myotubular Myopathy
    Neurology

    Boston VAMC

    150 S Huntington Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Orly Moshe is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Moshe is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Primary Amyloidosis, Necrotizing Myopathy (NM), Spinal Muscular Atrophy (SMA), and Laminectomy.

    Showing 1-19 of 19

    Last Updated: 04/28/2026

    When should I see a X-Linked Myotubular Myopathy doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near Boston, MA?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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