The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Houston, TX

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 14 doctor with experience in X-Linked Myotubular Myopathy near Houston, TX. Of these, 14 are Experienced.

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14 providers found
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics

    Baylor College Of Medicine - Molec & Human Gen

    6701 Fannin St, Cc1610, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    In my clinical practice, I see adult patients with diagnosed or suspected genetic disease. This includes both chromosomal abnormalities, as well as single gene disorders. I see patients with a variety of disorders, including Tuberous Sclerosis, Neurofibromatosis, connective tissue disease including Ehlers-Danlos syndrome and Marfan syndrome, and familial cancer syndromes. I have a particular clinical interest in patients with cardiopulmonary disease. As a physician-scientist, I have a research focus on postural orthostatic hypotension (POTS) and pulmonary artery hypertension (PAH). Dr. Posey is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Hypotonia, Achalasia Microcephaly Syndrome, Microcephaly, and Cortical Dysplasia. Dr. Posey is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Neuromusculoskeletal Medicine | Neurology
    Experienced in X-Linked Myotubular Myopathy
    Neuromusculoskeletal Medicine | Neurology

    Baylor College Of Medicine - Neurology

    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Charenya Anandan, MD, is dedicated to delivering high-quality, compassionate care to Houston and nearby communities. Charenya Anandan specializes in Neurology (Brain and Spine) and works at BCM Neurology. To make an appointment, please call (713) 798-2273. To review all accepted insurance carriers, please visit: https://www.stlukeshealth.org/patients-visitors/patients/billing-insurance/insurances-accepted. Dr. Anandan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Benign Essential Blepharospasm, Restless Legs Syndrome, Centronuclear Myopathy, and Movement Disorders. Dr. Anandan is board certified in Electromyography From American Board Of Electrodiagnostic Medicine;Neuromuscular Medicine From American Board Of Psychiatry And Neurology;Neurology From American Board Of Psychiatry And Neurology;Clinical Neuromuscular Pathology From The United Council For Neurologic Subspecialties; American Academy Of Neurology; American Association Of Neuromuscular & Electrodiagnostic Medicine;Movement Disorders Society; Houston Area Parkinson's Society. Dr. Anandan is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    UT Health Science Center-Pediatric Pulmonary

    6410 Fannin St Ste 500, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Pedro Mancias is a Neurologist practicing medicine in Houston, Texas. Dr. Mancias is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Centronuclear Myopathy, and Arthrogryposis Multiplex Congenita.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    Baylor College Of Medicine

    1 Baylor Plz, 
    Houston, TX 
     (3.8 miles away)
    Languages Spoken:
    English

    Daniel Calame is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Calame is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Spasticity, Hereditary Spastic Paraparesis, Hypotonia, and Spastic Paraplegia Type 7.

    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics

    Texas Childrens Physician Group

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Brendan Lee is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Houston, Texas. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Osteogenesis Imperfecta, and Spondyloepimetaphyseal Dysplasia Strudwick Type. Dr. Lee is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    6701 Fannin St, Suite 1560, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Lindsay Burrage is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Houston, Texas. Dr. Burrage is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Urea Cycle Disorders (UCD), Hypotonia, Argininosuccinic Aciduria, and Achalasia Microcephaly Syndrome. Dr. Burrage is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    6701 Fannin St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English, Urdu
    Accepting New Patients

    Seema Lalani is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Houston, Texas. Dr. Lalani is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses GABA-Transaminase Deficiency, Hypotonia, VACTERL Association, and 1p36 Deletion Syndrome. Dr. Lalani is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Farida Abid is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Abid is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Dysferlinopathy, Amyotonia Congenita, Congenital Myasthenic Syndrome, and Duchenne Muscular Dystrophy.

    Experienced in X-Linked Myotubular Myopathy
    Pediatrics | Medical Genetics
    Experienced in X-Linked Myotubular Myopathy
    Pediatrics | Medical Genetics

    Texas Childrens Physician Group

    6701 Fannin St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ronit Marom is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Marom is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Osteogenesis Imperfecta, Micrognathia, Citrullinemia, and Urea Cycle Disorders (UCD). Dr. Marom is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    Office

    6701 Fannin St Ste 1250, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Davut Pehlivan is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Pehlivan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Microcephaly, Achalasia Microcephaly Syndrome, and Craniectomy.

    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Experienced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    Office

    6701 Fannin St Ste 950, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Timothy Lotze is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Lotze is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Spinal Muscular Atrophy Type 2, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy Type 3.

    Experienced in X-Linked Myotubular Myopathy
    Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Pediatrics

    Office

    6701 Fannin St Ste 1560, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    James Lupski is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Lupski is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Potocki-Lupski Syndrome, Hypotonia, Achalasia Microcephaly Syndrome, and Microcephaly.

    Experienced in X-Linked Myotubular Myopathy
    Neurology
    Experienced in X-Linked Myotubular Myopathy
    Neurology

    Baylor College Of Medicine

    6550 Fannin St Ste 1801, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Cecile Phan is a Neurologist practicing medicine in Houston, Texas. Dr. Phan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myoclonic Epilepsy Associated With Ragged Red Fibers, and Pseudobulbar Affect.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Office

    4000 Essex Ln Apt 5311, 
    Houston, TX 
     (4.8 miles away)
    Languages Spoken:
    English

    Benjamin Ellezam practices practicing medicine in Houston, Texas. Dr. Ellezam is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myositis, Necrotizing Myopathy (NM), Gliomatosis Cerebri, and Glioma.

    Showing 1-14 of 14

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor near Houston, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor near Houston, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors near Houston, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near Houston, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near Houston, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near Houston, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near Houston, TX?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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