The 20 Best X-Linked Myotubular Myopathy Doctors in Canada

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 102 doctor with experience in X-Linked Myotubular Myopathy near Canada. Of these, 95 are Experienced, 6 are Advanced and 1 are Distinguished.

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102 providers found
    Distinguished in X-Linked Myotubular Myopathy

    Giorgio A. Tasca
    Distinguished in X-Linked Myotubular Myopathy

    Giorgio A. Tasca
    Referral may be required
    451 Smyth Road, K1H 8 M5, 
    Ottawa, ON, CA 

    Giorgio Tasca practices practicing medicine in Ottawa, Canada. Mr. Tasca is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy

    Nika Maani
    Advanced in X-Linked Myotubular Myopathy

    Nika Maani
    Referral may be required
    Toronto, ON, CA 

    Nika Maani practices practicing medicine in Toronto, Canada. Ms. Maani is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Nesrin Sabha
    Advanced in X-Linked Myotubular Myopathy

    Nesrin Sabha
    Referral may be required
    Toronto, ON, CA 

    Nesrin Sabha practices practicing medicine in Toronto, Canada. Sabha is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Glioma.

    Learn about our expert tiers
    Advanced in X-Linked Myotubular Myopathy

    Hernan D. Gonorazky
    Advanced in X-Linked Myotubular Myopathy

    Hernan D. Gonorazky
    Referral may be required
    Toronto, ON, CA 

    Hernan Gonorazky practices practicing medicine in Toronto, Canada. Mr. Gonorazky is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Centronuclear Myopathy, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Distal Arthrogryposis.

    Advanced in X-Linked Myotubular Myopathy

    Rouslan Kotchetkov
    Advanced in X-Linked Myotubular Myopathy

    Rouslan Kotchetkov
    Referral may be required
    Barrie, ON, CA 

    Rouslan Kotchetkov practices practicing medicine in Barrie, Canada. Kotchetkov is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Bone Marrow Aspiration, and Tissue Biopsy.

    Advanced in X-Linked Myotubular Myopathy

    Jonathan R. Volpatti
    Advanced in X-Linked Myotubular Myopathy

    Jonathan R. Volpatti
    Referral may be required
    Toronto, ON, CA 

    Jonathan Volpatti practices practicing medicine in Toronto, Canada. Mr. Volpatti is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Cramp-Fasciculation Syndrome.

    Advanced in X-Linked Myotubular Myopathy

    Emanuela Pannia
    Advanced in X-Linked Myotubular Myopathy

    Emanuela Pannia
    Referral may be required
    150 College Street, M5S 3E2, 
    Toronto, ON, CA 

    Emanuela Pannia practices practicing medicine in Toronto, Canada. Ms. Pannia is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Obesity.

    Experienced in X-Linked Myotubular Myopathy

    Gavin Y. Oudit
    Experienced in X-Linked Myotubular Myopathy

    Gavin Y. Oudit
    Referral may be required
    8440-112 Street, 
    Edmonton, AB, CA 

    Gavin Oudit practices practicing medicine in Edmonton, Canada. Mr. Oudit is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Heart Failure, Dilated Cardiomyopathy (DCM), Fabry Disease, and Heart Transplant.

    Experienced in X-Linked Myotubular Myopathy

    Abbas F. Sadikot
    Experienced in X-Linked Myotubular Myopathy

    Abbas F. Sadikot
    Referral may be required
    Montreal, QC, CA 

    Abbas Sadikot practices practicing medicine in Montreal, Canada. Mr. Sadikot is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Movement Disorders, Parkinson's Disease, Huntington Disease, Essential Tremor, and Deep Brain Stimulation.

    Experienced in X-Linked Myotubular Myopathy

    Val A. Fajardo
    Experienced in X-Linked Myotubular Myopathy

    Val A. Fajardo
    Referral may be required
    St. Catharines, ON, CA 

    Val Fajardo practices practicing medicine in St. Catharines, Canada. Fajardo is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Duchenne Muscular Dystrophy, Muscle Atrophy, Hyperglycerolemia, Becker Muscular Dystrophy, and Tenotomy.

    Experienced in X-Linked Myotubular Myopathy

    Bernard C. Brais
    Experienced in X-Linked Myotubular Myopathy

    Bernard C. Brais
    Referral may be required
    Montreal, QC, CA 

    Bernard Brais practices practicing medicine in Montreal, Canada. Mr. Brais is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Oculopharyngeal Muscular Dystrophy, and Spasticity.

    Experienced in X-Linked Myotubular Myopathy

    Marie-josee J. Dicaire
    Experienced in X-Linked Myotubular Myopathy

    Marie-josee J. Dicaire
    Referral may be required
    Montreal, QC, CA 

    Marie-josee Dicaire practices practicing medicine in Montreal, Canada. Dicaire is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Spinocerebellar Ataxia, and Spinocerebellar Ataxia Type 4.

    Experienced in X-Linked Myotubular Myopathy

    Mark A. Tarnopolsky
    Experienced in X-Linked Myotubular Myopathy

    Mark A. Tarnopolsky
    Referral may be required
    1200 Main St. W, 
    Hamilton, ON, CA 

    Mark Tarnopolsky practices practicing medicine in Hamilton, Canada. Mr. Tarnopolsky is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Rhabdomyolysis, Spastic Paraplegia Type 7, Progressive External Ophthalmoplegia, Nerve Decompression, and Tissue Biopsy.

    Experienced in X-Linked Myotubular Myopathy

    Reshma M. Amin
    Experienced in X-Linked Myotubular Myopathy

    Reshma M. Amin
    Referral may be required
    686 Bay Street, 
    Toronto, ON, CA 

    Reshma Amin practices practicing medicine in Toronto, Canada. Ms. Amin is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Central Sleep Apnea, Cramp-Fasciculation Syndrome, Obstructive Sleep Apnea, Adenoidectomy, and Cardiac Ablation.

    Experienced in X-Linked Myotubular Myopathy

    Michael Brudno
    Experienced in X-Linked Myotubular Myopathy

    Michael Brudno
    Referral may be required
    Toronto, ON, CA 

    Michael Brudno practices practicing medicine in Toronto, Canada. Mr. Brudno is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Sotos Syndrome, Choroid Plexus Carcinoma, Cerebral Ventricle Cancer, Gallbladder Removal, and Endoscopy.

    Experienced in X-Linked Myotubular Myopathy

    Josee N. Lavoie
    Experienced in X-Linked Myotubular Myopathy

    Josee N. Lavoie
    Referral may be required
    Quebec, QC, CA 

    Josee Lavoie practices practicing medicine in Quebec, Canada. Ms. Lavoie is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy

    Binita M. Kamath
    Experienced in X-Linked Myotubular Myopathy

    Binita M. Kamath
    Referral may be required
    Toronto, ON, CA 

    Binita Kamath practices practicing medicine in Toronto, Canada. Ms. Kamath is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Alagille Syndrome, Cholestasis, Progressive Familial Intrahepatic Cholestasis Type 1, Liver Transplant, and Endoscopy.

    Experienced in X-Linked Myotubular Myopathy

    Ashish R. Deshwar
    Experienced in X-Linked Myotubular Myopathy

    Ashish R. Deshwar
    Referral may be required
    Toronto, ON, CA 

    Ashish Deshwar practices practicing medicine in Toronto, Canada. Mr. Deshwar is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Chromosome 13q Deletion, Rhizomelic Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

    Experienced in X-Linked Myotubular Myopathy

    Allan M. Innes
    Experienced in X-Linked Myotubular Myopathy

    Allan M. Innes
    Referral may be required
    Calgary, AB, CA 

    Allan Innes practices practicing medicine in Calgary, Canada. Mr. Innes is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Dubowitz Syndrome, SHORT Syndrome, Increased Head Circumference, and Hypotonia.

    Experienced in X-Linked Myotubular Myopathy

    Arun K. Ramani
    Experienced in X-Linked Myotubular Myopathy

    Arun K. Ramani
    Referral may be required
    Toronto, ON, CA 

    Arun Ramani practices practicing medicine in Toronto, Canada. Mr. Ramani is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Gliomatosis Cerebri, and Tubular Aggregate Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 06/30/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Canada?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Canada?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor in Canada?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

    X-Linked Myotubular Myopathy doctor near New York, NY
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    X-Linked Myotubular Myopathy doctor near Boston, MA
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    X-Linked Myotubular Myopathy doctor near San Jose, CA

    How does MediFind rank X-Linked Myotubular Myopathy doctors in Canada?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Canada?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Canada?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Canada?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Canada?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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