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    Last Updated: 01/09/2026

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    MediFind found 104 doctor with experience in X-Linked Myotubular Myopathy near Canada. Of these, 98 are Experienced, 5 are Advanced and 1 are Distinguished.

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    104 providers found
      Distinguished in X-Linked Myotubular Myopathy
      Distinguished in X-Linked Myotubular Myopathy
      451 Smyth Road, K1H 8 M5, 
      Ottawa, ON, CA 

      Giorgio Tasca practices in Ottawa, Canada. Mr. Tasca is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Hernan Gonorazky practices in Toronto, Canada. Mr. Gonorazky is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Distal Arthrogryposis, Distal Arthrogryposis Type 6, Centronuclear Myopathy, and Primary Lateral Sclerosis.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Nika Maani practices in Toronto, Canada. Ms. Maani is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Learn about our expert tiers
      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Nesrin Sabha practices in Toronto, Canada. Sabha is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Schwannoma.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Jonathan Volpatti practices in Toronto, Canada. Mr. Volpatti is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Cramp-Fasciculation Syndrome.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Barrie, ON, CA 

      Rouslan Kotchetkov practices in Barrie, Canada. Kotchetkov is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Bone Marrow Aspiration, and Tissue Biopsy.

      Abbas F. Sadikot
      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      3801 Rue University, 
      Montreal, QC, CA 

      Abbas Sadikot practices in Montreal, Canada. Mr. Sadikot is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Movement Disorders, Parkinson's Disease, Essential Tremor, Huntington Disease, and Deep Brain Stimulation.

      Gavin Y. Oudit
      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      8440-112 Street, 
      Edmonton, AB, CA 

      Gavin Oudit practices in Edmonton, Canada. Mr. Oudit is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cardiomyopathy, Heart Failure, Dilated Cardiomyopathy (DCM), Heart Failure with Preserved Ejection Fraction (HFpEF), and Heart Transplant.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      150 College Street, M5S 3E2, 
      Toronto, ON, CA 

      Emanuela Pannia practices in Toronto, Canada. Ms. Pannia is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Obesity.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Montreal, QC, CA 

      Bernard Brais practices in Montreal, Canada. Mr. Brais is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Oculopharyngeal Muscular Dystrophy, and Spasticity.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Montreal, QC, CA 

      Marie-josee Dicaire practices in Montreal, Canada. Dicaire is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Olivopontocerebellar Atrophy, and Spinocerebellar Ataxia.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      St. Catharines, ON, CA 

      Val Fajardo practices in St. Catharines, Canada. Fajardo is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Muscle Atrophy, Hyperglycerolemia, Duchenne Muscular Dystrophy, Obesity, and Tenotomy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      1200 Main St. W, 
      Hamilton, ON, CA 

      Mark Tarnopolsky practices in Hamilton, Canada. Mr. Tarnopolsky is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Rhabdomyolysis, Spastic Paraplegia Type 7, Progressive External Ophthalmoplegia, Nerve Decompression, and Tissue Biopsy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      686 Bay Street, 
      Toronto, ON, CA 

      Reshma Amin practices in Toronto, Canada. Ms. Amin is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Central Sleep Apnea, Cramp-Fasciculation Syndrome, Obstructive Sleep Apnea, Adenoidectomy, and Cardiac Ablation.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Ottawa, ON, CA 

      Jodi Chardon-Warman practices in Ottawa, Canada. Ms. Chardon-Warman is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cramp-Fasciculation Syndrome, Oculopharyngeal Muscular Dystrophy, Primary Lateral Sclerosis, Tissue Biopsy, and Thymectomy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Michael Brudno practices in Toronto, Canada. Mr. Brudno is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Sotos Syndrome, Lactose Intolerance, Choroid Plexus Carcinoma, Gallbladder Removal, and Endoscopy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Quebec, QC, CA 

      Josee Lavoie practices in Quebec, Canada. Ms. Lavoie is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      David Maclennan practices in Toronto, Canada. Mr. Maclennan is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Central Core Disease, Hyperthermia, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Binita Kamath practices in Toronto, Canada. Ms. Kamath is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Alagille Syndrome, Cholestasis, Progressive Familial Intrahepatic Cholestasis Type 1, Liver Transplant, and Endoscopy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      Toronto, ON, CA 

      Arun Ramani practices in Toronto, Canada. Mr. Ramani is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Gliomatosis Cerebri, and Tubular Aggregate Myopathy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 104

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Canada?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Canada?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Myotubular Myopathy doctors in Canada?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Canada?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Canada?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Canada?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Canada?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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