The 20 Best X-Linked Myotubular Myopathy Doctors in Germany

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 183 doctor with experience in X-Linked Myotubular Myopathy near Germany. Of these, 159 are Experienced, 20 are Advanced, 3 are Distinguished and 1 are Elite.

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183 providers found
    Elite in X-Linked Myotubular Myopathy

    Wolfgang Felber-Muller
    Elite in X-Linked Myotubular Myopathy

    Wolfgang Felber-Muller
    Munich, BY, DE 

    Wolfgang Felber-Muller practices practicing medicine in Munich, Germany. Mr. Felber-Muller is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Spinal Muscular Atrophy (SMA), and Thymectomy.

    Distinguished in X-Linked Myotubular Myopathy

    Astrid Blaschek
    Distinguished in X-Linked Myotubular Myopathy

    Astrid Blaschek
    Dr Von Haunersches Children's Hospital, 
    Munich, BY, DE 

    Astrid Blaschek practices practicing medicine in Munich, Germany. Ms. Blaschek is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Spinal Muscular Atrophy (SMA).

    Distinguished in X-Linked Myotubular Myopathy

    Hans H. Goebel
    Distinguished in X-Linked Myotubular Myopathy

    Hans H. Goebel

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Hans Goebel practices practicing medicine in Berlin, Germany. Mr. Goebel is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Centronuclear Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Learn about our expert tiers
    Distinguished in X-Linked Myotubular Myopathy

    Benedikt H. Schoser
    Distinguished in X-Linked Myotubular Myopathy

    Benedikt H. Schoser
    Munich, BY, DE 

    Benedikt Schoser practices practicing medicine in Munich, Germany. Mr. Schoser is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

    Advanced in X-Linked Myotubular Myopathy

    Volker Haucke
    Advanced in X-Linked Myotubular Myopathy

    Volker Haucke
    Robert Roessle Str. 10, Königin Luise Str. 2+4, 
    Berlin, BE, DE 

    Volker Haucke practices practicing medicine in Berlin, Germany. Mr. Haucke is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Cohen Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, and X-Linked Myotubular Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Werner P. Stenzel
    Advanced in X-Linked Myotubular Myopathy

    Werner P. Stenzel

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Werner Stenzel practices practicing medicine in Berlin, Germany. Mr. Stenzel is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

    Advanced in X-Linked Myotubular Myopathy

    Rolf J. Schroder
    Advanced in X-Linked Myotubular Myopathy

    Rolf J. Schroder
    Erlangen, BY, DE 

    Rolf Schroder practices practicing medicine in Erlangen, Germany. Mr. Schroder is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Ulrike Schmidt-Schara
    Advanced in X-Linked Myotubular Myopathy

    Ulrike Schmidt-Schara
    Essen, NW, DE 

    Ulrike Schmidt-Schara practices practicing medicine in Essen, Germany. Ms. Schmidt-Schara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Advanced in X-Linked Myotubular Myopathy

    Dieter O. Furst
    Advanced in X-Linked Myotubular Myopathy

    Dieter O. Furst
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Dieter Furst practices practicing medicine in Bonn, Germany. Mr. Furst is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Limb-Girdle Muscular Dystrophy.

    Advanced in X-Linked Myotubular Myopathy

    Peter M. Van Der Ven
    Advanced in X-Linked Myotubular Myopathy

    Peter M. Van Der Ven
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Peter Van Der Ven practices practicing medicine in Bonn, Germany. Mr. Van Der Ven is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Cardiomyopathy.

    Advanced in X-Linked Myotubular Myopathy

    Haicui Wang
    Advanced in X-Linked Myotubular Myopathy

    Haicui Wang
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Haicui Wang practices practicing medicine in Koeln, Germany. Wang is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and High Arch.

    Advanced in X-Linked Myotubular Myopathy

    Raphael J. Schneider
    Advanced in X-Linked Myotubular Myopathy

    Raphael J. Schneider
    St Josef Hospital, 
    Bochum, NW, DE 

    Raphael Schneider practices practicing medicine in Bochum, Germany. Mr. Schneider is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Frederic Chevessier
    Advanced in X-Linked Myotubular Myopathy

    Frederic Chevessier
    Tuebingen, BW, DE 

    Frederic Chevessier practices practicing medicine in Tuebingen, Germany. Mr. Chevessier is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Michael Hesse
    Advanced in X-Linked Myotubular Myopathy

    Michael Hesse
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Michael Hesse practices practicing medicine in Bonn, Germany. Mr. Hesse is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Wolfram Kress
    Advanced in X-Linked Myotubular Myopathy

    Wolfram Kress
    Wuerzburg, BY, DE 

    Wolfram Kress practices practicing medicine in Wuerzburg, Germany. Mr. Kress is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Miyoshi Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Bernd K. Fleischmann
    Advanced in X-Linked Myotubular Myopathy

    Bernd K. Fleischmann
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Bernd Fleischmann practices practicing medicine in Bonn, Germany. Mr. Fleischmann is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Vasoconstriction, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy

    Ulrike Schara
    Advanced in X-Linked Myotubular Myopathy

    Ulrike Schara
    Duisburg, NW, DE 

    Ulrike Schara practices practicing medicine in Duisburg, Germany. Ms. Schara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Cramp-Fasciculation Syndrome, Gastrostomy, and Thymectomy.

    Advanced in X-Linked Myotubular Myopathy

    Matthias Vorgerd
    Advanced in X-Linked Myotubular Myopathy

    Matthias Vorgerd
    BG University Hospital Bergmannsheil Bochum, 
    Bochum, NW, DE 

    Matthias Vorgerd practices practicing medicine in Bochum, Germany. Mr. Vorgerd is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Limb-Girdle Muscular Dystrophy, Cytoplasmic Body Myopathy, and Myositis.

    Advanced in X-Linked Myotubular Myopathy

    Rudolf A. Kley
    Advanced in X-Linked Myotubular Myopathy

    Rudolf A. Kley

    St. Marien Hospital Borken

    Borken, NW, DE 

    Rudolf Kley practices practicing medicine in Borken, Germany. Mr. Kley is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cytoplasmic Body Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Sebahattin Cirak
    Advanced in X-Linked Myotubular Myopathy

    Sebahattin Cirak
    Kerpener Str. 34, 
    Koeln, NW, DE 

    Sebahattin Cirak practices practicing medicine in Koeln, Germany. Cirak is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 26 other conditions, according to our data. Their clinical expertise encompasses Marden-Walker Syndrome, Arthrogryposis Multiplex Congenita Neurogenic Type, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Deep Brain Stimulation.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 183

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor in Germany?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Myotubular Myopathy doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Germany?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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