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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in X-Linked Myotubular Myopathy near Berlin, DE. Of these, 16 are Experienced and 2 are Advanced.

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    18 providers found
      Advanced in X-Linked Myotubular Myopathy

      Hans H. Goebel
      Advanced in X-Linked Myotubular Myopathy

      Hans H. Goebel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Hans Goebel practices in Berlin, Germany. Mr. Goebel is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Werner P. Stenzel
      Advanced in X-Linked Myotubular Myopathy

      Werner P. Stenzel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Werner Stenzel practices in Berlin, Germany. Mr. Stenzel is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

      Volker Haucke
      Experienced in X-Linked Myotubular Myopathy

      Volker Haucke
      Experienced in X-Linked Myotubular Myopathy

      Volker Haucke
      Robert Roessle Str. 10, 
      Berlin, BE, DE 

      Volker Haucke practices in Berlin, Germany. Mr. Haucke is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cohen Syndrome, Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, and Microcephaly.

      Learn about our expert tiers
      Dietmar Schlembach
      Experienced in X-Linked Myotubular Myopathy

      Dietmar Schlembach
      Experienced in X-Linked Myotubular Myopathy

      Dietmar Schlembach
      Berlin, BE, DE 

      Dietmar Schlembach practices in Berlin, Germany. Mr. Schlembach is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Preeclampsia, Intrauterine Growth Restriction, HELLP Syndrome, and Placental Insufficiency.

      Experienced in X-Linked Myotubular Myopathy

      Hans-hilmar H. Goebel
      Experienced in X-Linked Myotubular Myopathy

      Hans-hilmar H. Goebel
      Berlin, BE, DE 

      Hans-hilmar Goebel practices in Berlin, Germany. Goebel is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Myositis, Necrotizing Myopathy (NM), Inclusion Body Myositis, and Dermatomyositis.

      Experienced in X-Linked Myotubular Myopathy

      Carsten Dittmayer
      Experienced in X-Linked Myotubular Myopathy

      Carsten Dittmayer
      Berlin, BE, DE 

      Carsten Dittmayer practices in Berlin, Germany. Mr. Dittmayer is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Myositis, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      York Posor
      Experienced in X-Linked Myotubular Myopathy

      York Posor
      Berlin, BE, DE 

      York Posor practices in Berlin, Germany. Mr. Posor is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Craniometaphyseal Dysplasia, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Markus Schuelke
      Experienced in X-Linked Myotubular Myopathy

      Markus Schuelke
      Berlin, BE, DE 

      Markus Schuelke practices in Berlin, Germany. Mr. Schuelke is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Maternally Inherited Leigh Syndrome, Allan-Herndon-Dudley Syndrome, Leigh Syndrome, and Triple A Syndrome.

      Experienced in X-Linked Myotubular Myopathy

      Jan L. Rinnenthal
      Experienced in X-Linked Myotubular Myopathy

      Jan L. Rinnenthal
      Berlin, BE, DE 

      Jan Rinnenthal practices in Berlin, Germany. Rinnenthal is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Spinocerebellar Ataxia Type 14, Tomaculous Neuropathy, Primary Lateral Sclerosis, and Spinal Muscular Atrophy with Arthrogryposis.

      Experienced in X-Linked Myotubular Myopathy

      Michael Krauss
      Experienced in X-Linked Myotubular Myopathy

      Michael Krauss
      Berlin, BE, DE 

      Michael Krauss practices in Berlin, Germany. Mr. Krauss is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Wen-ting Lo
      Experienced in X-Linked Myotubular Myopathy

      Wen-ting Lo
      Berlin, BE, DE 

      Wen-ting Lo practices in Berlin, Germany. Lo is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Marc Nazare
      Experienced in X-Linked Myotubular Myopathy

      Marc Nazare
      Leibniz Forschungsinstitut Für Molekulare Pharmakologie, Robert Roessle Str. 10, 
      Berlin, BE, DE 

      Marc Nazare practices in Berlin, Germany. Mr. Nazare is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cerebral Hypoxia, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Rabih Chaoui
      Experienced in X-Linked Myotubular Myopathy

      Rabih Chaoui
      Berlin, BE, DE 

      Rabih Chaoui practices in Berlin, Germany. Mr. Chaoui is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Corpus Callosum Agenesis, Holoprosencephaly, Double Aortic Arch, and Microphthalmia.

      Experienced in X-Linked Myotubular Myopathy

      Dmytro Puchkov
      Experienced in X-Linked Myotubular Myopathy

      Dmytro Puchkov
      Berlin, BE, DE 

      Dmytro Puchkov practices in Berlin, Germany. Mr. Puchkov is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Insulinoma, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Corinna J. Preusse
      Experienced in X-Linked Myotubular Myopathy

      Corinna J. Preusse
      Berlin, BE, DE 

      Corinna Preusse practices in Berlin, Germany. Ms. Preusse is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Myositis, Necrotizing Myopathy (NM), Polymyositis, and Inclusion Body Myositis.

      Experienced in X-Linked Myotubular Myopathy

      Kerstin Irlbacher
      Experienced in X-Linked Myotubular Myopathy

      Kerstin Irlbacher
      Berlin, BE, DE 

      Kerstin Irlbacher practices in Berlin, Germany. Ms. Irlbacher is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Rainer Rossi
      Experienced in X-Linked Myotubular Myopathy

      Rainer Rossi
      Neukolln, BE, DE 

      Rainer Rossi practices in Neukolln, Germany. Mr. Rossi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Neurocutaneous Melanosis, Mumps, Bronchopulmonary Dysplasia, and Necrotizing Enterocolitis.

      Experienced in X-Linked Myotubular Myopathy

      Philipp A. Koch
      Experienced in X-Linked Myotubular Myopathy

      Philipp A. Koch
      Berlin, BE, DE 

      Philipp Koch practices in Berlin, Germany. Mr. Koch is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Berlin, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Berlin, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in Berlin, DE?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank X-Linked Myotubular Myopathy doctors in Berlin, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Berlin, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Berlin, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Berlin, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Berlin, DE?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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