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    Last Updated: 01/09/2026

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    MediFind found 31 doctor with experience in X-Linked Myotubular Myopathy near Hesse, DE. Of these, 26 are Experienced, 2 are Advanced, 2 are Distinguished and 1 are Elite.

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    31 providers found
      Elite in X-Linked Myotubular Myopathy

      Wolfgang Felber-Muller
      Elite in X-Linked Myotubular Myopathy

      Wolfgang Felber-Muller
      Munich, BY, DE 

      Wolfgang Felber-Muller practices in Munich, Germany. Mr. Felber-Muller is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Distinguished in X-Linked Myotubular Myopathy

      Astrid Blaschek
      Distinguished in X-Linked Myotubular Myopathy

      Astrid Blaschek
      Dr Von Haunersches Children's Hospital, 
      Munich, BY, DE 

      Astrid Blaschek practices in Munich, Germany. Ms. Blaschek is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Spinal Muscular Atrophy (SMA).

      Distinguished in X-Linked Myotubular Myopathy

      Benedikt H. Schoser
      Distinguished in X-Linked Myotubular Myopathy

      Benedikt H. Schoser
      Munich, BY, DE 

      Benedikt Schoser practices in Munich, Germany. Mr. Schoser is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

      Learn about our expert tiers
      Advanced in X-Linked Myotubular Myopathy

      Rolf J. Schroder
      Advanced in X-Linked Myotubular Myopathy

      Rolf J. Schroder
      Erlangen, BY, DE 

      Rolf Schroder practices in Erlangen, Germany. Mr. Schroder is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dominant Dystrophic Epidermolysis Bullosa, Dowling-Meara Epidermolysis Bullosa Simplex, and Tubular Aggregate Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Wolfram Kress
      Advanced in X-Linked Myotubular Myopathy

      Wolfram Kress
      Wuerzburg, BY, DE 

      Wolfram Kress practices in Wuerzburg, Germany. Mr. Kress is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Miyoshi Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Joachim Schessl
      Experienced in X-Linked Myotubular Myopathy

      Joachim Schessl
      Munich, BY, DE 

      Joachim Schessl practices in Munich, Germany. Mr. Schessl is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Dermatomyositis, Polymyositis, Myositis, and X-Linked Dominant Scapuloperoneal Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Ursula Schrehardt-Schlotzer
      Experienced in X-Linked Myotubular Myopathy

      Ursula Schrehardt-Schlotzer
      Erlangen, BY, DE 

      Ursula Schrehardt-Schlotzer practices in Erlangen, Germany. Ms. Schrehardt-Schlotzer is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, Glaucoma, Corneal Transplant, and Cataract Removal.

      Experienced in X-Linked Myotubular Myopathy

      Christian T. Thiel
      Experienced in X-Linked Myotubular Myopathy

      Christian T. Thiel
      Erlangen, BY, DE 

      Christian Thiel practices in Erlangen, Germany. Mr. Thiel is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Short Stature (Growth Disorders), Lenz Microphthalmia Syndrome, Idiopathic Short Stature (ISS), and Myofibrillar Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Marcus Deschauer
      Experienced in X-Linked Myotubular Myopathy

      Marcus Deschauer
      Ismaninger Str. 22, 
      Munich, BY, DE 

      Marcus Deschauer practices in Munich, Germany. Mr. Deschauer is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Carnitine Palmitoyltransferase 2 Deficiency, Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, and Spinal Muscular Atrophy (SMA).

      Experienced in X-Linked Myotubular Myopathy

      Angela Abicht
      Experienced in X-Linked Myotubular Myopathy

      Angela Abicht
      Munich, BY, DE 

      Angela Abicht practices in Munich, Germany. Ms. Abicht is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Myasthenic Syndrome, Pontocerebellar Hypoplasia, Myotonia Congenita, Amyotonia Congenita, and Thymectomy.

      Experienced in X-Linked Myotubular Myopathy

      Federica Montagnese
      Experienced in X-Linked Myotubular Myopathy

      Federica Montagnese
      Munich, BY, DE 

      Federica Montagnese practices in Munich, Germany. Ms. Montagnese is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Pompe Disease.

      Experienced in X-Linked Myotubular Myopathy

      Hellen C. Ankerhold-Ishikawa
      Experienced in X-Linked Myotubular Myopathy

      Hellen C. Ankerhold-Ishikawa
      Munich, BY, DE 

      Hellen Ankerhold-Ishikawa practices in Munich, Germany. Ms. Ankerhold-Ishikawa is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Matthias Turk
      Experienced in X-Linked Myotubular Myopathy

      Matthias Turk
      Erlangen, BY, DE 

      Matthias Turk practices in Erlangen, Germany. Mr. Turk is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), SRD5A3-CDG, and Limb-Girdle Muscular Dystrophy.

      Experienced in X-Linked Myotubular Myopathy

      Ulrich A. Schatz
      Experienced in X-Linked Myotubular Myopathy

      Ulrich A. Schatz
      Munich, BY, DE 

      Ulrich Schatz practices in Munich, Germany. Mr. Schatz is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Ichthyosis Vulgaris, Yellow Nail Syndrome, Congenital Contractures, and Arthrogryposis Multiplex Congenita.

      Experienced in X-Linked Myotubular Myopathy

      Frank Horn-Lehmann
      Experienced in X-Linked Myotubular Myopathy

      Frank Horn-Lehmann
      Oberduerrbacher Str. 6, 
      Wuerzburg, BY, DE 

      Frank Horn-Lehmann practices in Wuerzburg, Germany. Mr. Horn-Lehmann is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, Myotonia Congenita, and Amyotonia Congenita.

      Experienced in X-Linked Myotubular Myopathy

      Erdmute Kunstmann
      Experienced in X-Linked Myotubular Myopathy

      Erdmute Kunstmann
      Wuerzburg, BY, DE 

      Erdmute Kunstmann practices in Wuerzburg, Germany. Kunstmann is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Short Stature (Growth Disorders), Nevoid Basal Cell Carcinoma Syndrome, Russell-Silver Dwarfism, and Macroglossia.

      Experienced in X-Linked Myotubular Myopathy

      Jan Senderek
      Experienced in X-Linked Myotubular Myopathy

      Jan Senderek
      Munich, BY, DE 

      Jan Senderek practices in Munich, Germany. Senderek is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Congenital Myasthenic Syndrome, Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), and Anhidrosis.

      Experienced in X-Linked Myotubular Myopathy

      Uwe Ahting
      Experienced in X-Linked Myotubular Myopathy

      Uwe Ahting
      Munich, BY, DE 

      Uwe Ahting practices in Munich, Germany. Mr. Ahting is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Mitochondrial Complex 1 Deficiency, Myoclonic Epilepsy Associated With Ragged Red Fibers, Sideroblastic Anemia, and Lactic Acidosis.

      Experienced in X-Linked Myotubular Myopathy

      Carola Schon
      Experienced in X-Linked Myotubular Myopathy

      Carola Schon
      Munich, BY, DE 

      Carola Schon practices in Munich, Germany. Ms. Schon is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Pulmonary Alveolar Proteinosis, Primary Lateral Sclerosis, Laryngeal Cleft, Thrush, and Myringotomy.

      Experienced in X-Linked Myotubular Myopathy

      Benjamin U. Englert
      Experienced in X-Linked Myotubular Myopathy

      Benjamin U. Englert
      Hans Kopfermann Str. 1, 
      Garching Bei Munchen, BY, DE 

      Benjamin Englert practices in Garching Bei Munchen, Germany. Mr. Englert is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cerebral Hypoxia, Myositis, Dermatomyositis, and Polymyositis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 31

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Hesse, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Hesse, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in Hesse, DE?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank X-Linked Myotubular Myopathy doctors in Hesse, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Hesse, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Hesse, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Hesse, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Hesse, DE?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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