The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in North Rhine-Westphalia, DE

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 58 doctor with experience in X-Linked Myotubular Myopathy near North Rhine-Westphalia, DE. Of these, 46 are Experienced and 12 are Advanced.

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58 providers found
    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Essen, NW, DE 

    Ulrike Schmidt-Schara practices practicing medicine in Essen, Germany. Ms. Schmidt-Schara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Dieter Furst practices practicing medicine in Bonn, Germany. Mr. Furst is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Limb-Girdle Muscular Dystrophy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Peter Van Der Ven practices practicing medicine in Bonn, Germany. Mr. Van Der Ven is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Cardiomyopathy.

    Learn about our expert tiers
    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Haicui Wang practices practicing medicine in Koeln, Germany. Wang is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and High Arch.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    St Josef Hospital, 
    Bochum, NW, DE 

    Raphael Schneider practices practicing medicine in Bochum, Germany. Mr. Schneider is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Michael Hesse practices practicing medicine in Bonn, Germany. Mr. Hesse is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Bernd Fleischmann practices practicing medicine in Bonn, Germany. Mr. Fleischmann is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Vasoconstriction, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Duisburg, NW, DE 

    Ulrike Schara practices practicing medicine in Duisburg, Germany. Ms. Schara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Cramp-Fasciculation Syndrome, Gastrostomy, and Thymectomy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    BG University Hospital Bergmannsheil Bochum, 
    Bochum, NW, DE 

    Matthias Vorgerd practices practicing medicine in Bochum, Germany. Mr. Vorgerd is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Limb-Girdle Muscular Dystrophy, Cytoplasmic Body Myopathy, and Myositis.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy

    St. Marien Hospital Borken

    Borken, NW, DE 

    Rudolf Kley practices practicing medicine in Borken, Germany. Mr. Kley is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cytoplasmic Body Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Kerpener Str. 34, 
    Koeln, NW, DE 

    Sebahattin Cirak practices practicing medicine in Koeln, Germany. Cirak is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 26 other conditions, according to our data. Their clinical expertise encompasses Marden-Walker Syndrome, Arthrogryposis Multiplex Congenita Neurogenic Type, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Deep Brain Stimulation.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Joseph Stelzmann Str. 26, 
    Koeln, NW, DE 

    Christoph Clemen practices practicing medicine in Koeln, Germany. Mr. Clemen is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, Paget's Disease of Bone, Emery-Dreifuss Muscular Dystrophy, and Primary Lateral Sclerosis.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Kerpener Str 62, 
    Koeln, NW, DE 

    Holger Thiele practices practicing medicine in Koeln, Germany. Mr. Thiele is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 82 other conditions, according to our data. His clinical expertise encompasses Heart Attack, Cardiogenic Shock, Tricuspid Regurgitation, Percutaneous Coronary Intervention (PCI), and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Ulrich Haberland Str. 61a, 
    Bonn, NW, DE 

    Julia Schuld practices practicing medicine in Bonn, Germany. Ms. Schuld is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Myofibrillar Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Essen, NW, DE 

    Frederik Braun practices practicing medicine in Essen, Germany. Mr. Braun is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Troyer Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Otto Hahn Str. 6b, 
    Dortmund, NW, DE 

    Andreas Roos practices practicing medicine in Dortmund, Germany. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, and Spinal Muscular Atrophy (SMA).

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Bonn, NW, DE 

    Martin Wiemann practices practicing medicine in Bonn, Germany. Mr. Wiemann is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Necrosis, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Essen, NW, DE 

    Andrea Gangfuss practices practicing medicine in Essen, Germany. Ms. Gangfuss is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Infantile Axonal Neuropathy, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Giant Axonal Neuropathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Koeln, NW, DE 

    Carolin Berwanger practices practicing medicine in Koeln, Germany. Ms. Berwanger is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Robert Koch Str. 21, 
    Koeln, NW, DE 

    Hulya-sevcan Daimaguler practices practicing medicine in Koeln, Germany. Daimaguler is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their clinical expertise encompasses Dysarthria, Congenital Contractures, Arthrogryposis Multiplex Congenita, and Primary Lateral Sclerosis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 58

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.