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    Last Updated: 01/09/2026

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    MediFind found 63 doctor with experience in X-Linked Myotubular Myopathy near North Rhine-Westphalia, DE. Of these, 52 are Experienced and 11 are Advanced.

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    63 providers found
      Advanced in X-Linked Myotubular Myopathy

      Ulrike Schmidt-Schara
      Advanced in X-Linked Myotubular Myopathy

      Ulrike Schmidt-Schara
      Essen, NW, DE 

      Ulrike Schmidt-Schara practices in Essen, Germany. Ms. Schmidt-Schara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Cramp-Fasciculation Syndrome.

      Advanced in X-Linked Myotubular Myopathy

      Raphael J. Schneider
      Advanced in X-Linked Myotubular Myopathy

      Raphael J. Schneider
      St Josef Hospital, 
      Bochum, NW, DE 

      Raphael Schneider practices in Bochum, Germany. Schneider is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Amyotonia Congenita, Myotonia Congenita, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Haicui Wang
      Advanced in X-Linked Myotubular Myopathy

      Haicui Wang
      Robert Koch Str. 21, 
      Koeln, NW, DE 

      Haicui Wang practices in Koeln, Germany. Wang is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and High Arch.

      Learn about our expert tiers
      Advanced in X-Linked Myotubular Myopathy

      Dieter O. Furst
      Advanced in X-Linked Myotubular Myopathy

      Dieter O. Furst
      Ulrich Haberland Str. 61a, 
      Bonn, NW, DE 

      Dieter Furst practices in Bonn, Germany. Mr. Furst is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Limb-Girdle Muscular Dystrophy.

      Advanced in X-Linked Myotubular Myopathy

      Michael Hesse
      Advanced in X-Linked Myotubular Myopathy

      Michael Hesse
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Michael Hesse practices in Bonn, Germany. Mr. Hesse is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Bernd K. Fleischmann
      Advanced in X-Linked Myotubular Myopathy

      Bernd K. Fleischmann
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Bernd Fleischmann practices in Bonn, Germany. Mr. Fleischmann is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Vasoconstriction, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Ulrike Schara
      Advanced in X-Linked Myotubular Myopathy

      Ulrike Schara
      Duisburg, NW, DE 

      Ulrike Schara practices in Duisburg, Germany. Ms. Schara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Cramp-Fasciculation Syndrome, Gastrostomy, and Thymectomy.

      Advanced in X-Linked Myotubular Myopathy

      Peter M. Van Der Ven
      Advanced in X-Linked Myotubular Myopathy

      Peter M. Van Der Ven
      Ulrich Haberland Str. 61a, 
      Bonn, NW, DE 

      Peter Van Der Ven practices in Bonn, Germany. Mr. Van Der Ven is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Myofibrillar Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Sebahattin Cirak
      Advanced in X-Linked Myotubular Myopathy

      Sebahattin Cirak
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Sebahattin Cirak practices in Koeln, Germany. Cirak is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Arthrogryposis Multiplex Congenita Neurogenic Type, Marden-Walker Syndrome, Horizontal Gaze Palsy with Progressive Scoliosis, Arthrogryposis Multiplex Congenita, and Deep Brain Stimulation.

      Advanced in X-Linked Myotubular Myopathy

      Matthias Vorgerd
      Advanced in X-Linked Myotubular Myopathy

      Matthias Vorgerd
      BG University Hospital Bergmannsheil, 
      Bochum, NW, DE 

      Matthias Vorgerd practices in Bochum, Germany. Mr. Vorgerd is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Pompe Disease, Cytoplasmic Body Myopathy, Limb-Girdle Muscular Dystrophy, and Inclusion Body Myositis.

      Advanced in X-Linked Myotubular Myopathy

      Rudolf A. Kley
      Advanced in X-Linked Myotubular Myopathy

      Rudolf A. Kley

      St. Marien Hospital Borken

      Borken, NW, DE 

      Rudolf Kley practices in Borken, Germany. Mr. Kley is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cytoplasmic Body Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Holger D. Thiele
      Experienced in X-Linked Myotubular Myopathy

      Holger D. Thiele
      Experienced in X-Linked Myotubular Myopathy

      Holger D. Thiele
      Kerpener Str 62, 
      Koeln, NW, DE 

      Holger Thiele practices in Koeln, Germany. Mr. Thiele is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Heart Attack, Cardiogenic Shock, Tricuspid Regurgitation, Percutaneous Coronary Intervention (PCI), and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in X-Linked Myotubular Myopathy

      Frederik Braun
      Experienced in X-Linked Myotubular Myopathy

      Frederik Braun
      Essen, NW, DE 

      Frederik Braun practices in Essen, Germany. Mr. Braun is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Troyer Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Andreas H. Roos
      Experienced in X-Linked Myotubular Myopathy

      Andreas H. Roos
      Otto Hahn Str. 6b, 
      Dortmund, NW, DE 

      Andreas Roos practices in Dortmund, Germany. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Congenital Myasthenic Syndrome, Cramp-Fasciculation Syndrome, Primary Lateral Sclerosis, and Limb-Girdle Muscular Dystrophy.

      Experienced in X-Linked Myotubular Myopathy

      Martin Wiemann
      Experienced in X-Linked Myotubular Myopathy

      Martin Wiemann
      Bonn, NW, DE 

      Martin Wiemann practices in Bonn, Germany. Mr. Wiemann is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Restrictive Cardiomyopathy (RCM), Necrosis, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Christoph S. Clemen
      Experienced in X-Linked Myotubular Myopathy

      Christoph S. Clemen
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Christoph Clemen practices in Koeln, Germany. Mr. Clemen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myofibrillar Myopathy, Paget's Disease of Bone, Emery-Dreifuss Muscular Dystrophy, and Primary Lateral Sclerosis.

      Experienced in X-Linked Myotubular Myopathy

      Andrea Gangfuss
      Experienced in X-Linked Myotubular Myopathy

      Andrea Gangfuss
      Essen, NW, DE 

      Andrea Gangfuss practices in Essen, Germany. Ms. Gangfuss is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Infantile Axonal Neuropathy, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Giant Axonal Neuropathy.

      Experienced in X-Linked Myotubular Myopathy

      Julia Schuld
      Experienced in X-Linked Myotubular Myopathy

      Julia Schuld
      Ulrich Haberland Str. 61a, 
      Bonn, NW, DE 

      Julia Schuld practices in Bonn, Germany. Ms. Schuld is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Myofibrillar Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Katrin Marcus
      Experienced in X-Linked Myotubular Myopathy

      Katrin Marcus
      St. Josef Hospital, 
      Bochum, NW, DE 

      Katrin Marcus practices in Bochum, Germany. Ms. Marcus is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Myofibrillar Myopathy, Cytoplasmic Body Myopathy, Parkinson's Disease, and Movement Disorders.

      Experienced in X-Linked Myotubular Myopathy

      Hulya-sevcan Daimaguler
      Experienced in X-Linked Myotubular Myopathy

      Hulya-sevcan Daimaguler
      Robert Koch Str. 21, 
      Koeln, NW, DE 

      Hulya-sevcan Daimaguler practices in Koeln, Germany. Daimaguler is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Dysarthria, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Primary Lateral Sclerosis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 63

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in North Rhine-Westphalia, DE?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank X-Linked Myotubular Myopathy doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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