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    Last Updated: 01/09/2026

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    MediFind found 36 doctor with experience in X-Linked Myotubular Myopathy near Southern Ostrobothnia, FI. Of these, 25 are Experienced, 6 are Distinguished and 5 are Advanced.

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    36 providers found
      Distinguished in X-Linked Myotubular Myopathy

      Vilma-lotta Lehtokari
      Distinguished in X-Linked Myotubular Myopathy

      Vilma-lotta Lehtokari
      Helsinki, FI 

      Vilma-lotta Lehtokari practices in Helsinki, Finland. Lehtokari is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Gastrostomy.

      Distinguished in X-Linked Myotubular Myopathy

      Carina Pettersson-Wallgren
      Distinguished in X-Linked Myotubular Myopathy

      Carina Pettersson-Wallgren
      Helsinki, FI 

      Carina Pettersson-Wallgren practices in Helsinki, Finland. Ms. Pettersson-Wallgren is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Gastrostomy.

      Distinguished in X-Linked Myotubular Myopathy

      Jenni M. Laitila
      Distinguished in X-Linked Myotubular Myopathy

      Jenni M. Laitila
      Helsinki, FI 

      Jenni Laitila practices in Helsinki, Finland. Ms. Laitila is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

      Learn about our expert tiers
      Distinguished in X-Linked Myotubular Myopathy

      Katarina B. Pelin
      Distinguished in X-Linked Myotubular Myopathy

      Katarina B. Pelin
      Helsinki, FI 

      Katarina Pelin practices in Helsinki, Finland. Ms. Pelin is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Nemaline Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Kirsi J. Kiiski
      Distinguished in X-Linked Myotubular Myopathy

      Kirsi J. Kiiski
      Helsinki, FI 

      Kirsi Kiiski practices in Helsinki, Finland. Ms. Kiiski is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Lydia J. Sagath
      Distinguished in X-Linked Myotubular Myopathy

      Lydia J. Sagath
      Helsinki, FI 

      Lydia Sagath practices in Helsinki, Finland. Ms. Sagath is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy

      Marco F. Savarese
      Advanced in X-Linked Myotubular Myopathy

      Marco F. Savarese
      Helsinki, FI 

      Marco Savarese practices in Helsinki, Finland. Mr. Savarese is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Minttu M. Marttila
      Advanced in X-Linked Myotubular Myopathy

      Minttu M. Marttila
      Helsinki, FI 

      Minttu Marttila practices in Helsinki, Finland. Marttila is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Centronuclear Myopathy, Nemaline Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy

      Anna K. Vihola
      Advanced in X-Linked Myotubular Myopathy

      Anna K. Vihola
      Helsinki, FI 

      Anna Vihola practices in Helsinki, Finland. Ms. Vihola is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Mridul Johari
      Advanced in X-Linked Myotubular Myopathy

      Mridul Johari
      Helsinki, FI 

      Mridul Johari practices in Helsinki, Finland. Johari is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Inclusion Body Myositis, Nemaline Myopathy, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Advanced in X-Linked Myotubular Myopathy

      Peter B. Hackman
      Advanced in X-Linked Myotubular Myopathy

      Peter B. Hackman
      Helsinki, FI 

      Peter Hackman practices in Helsinki, Finland. Mr. Hackman is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Anni E. Evila
      Experienced in X-Linked Myotubular Myopathy

      Anni E. Evila
      Helsinki, FI 

      Anni Evila practices in Helsinki, Finland. Ms. Evila is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Primary Lateral Sclerosis, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 1A, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in X-Linked Myotubular Myopathy

      Mari Auranen
      Experienced in X-Linked Myotubular Myopathy

      Mari Auranen
      Helsinki, FI 

      Mari Auranen practices in Helsinki, Finland. Ms. Auranen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Glycogen Storage Disease Type 7, Oculodentodigital Dysplasia, Primary Lateral Sclerosis, and Nemaline Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Olli Tynninen
      Experienced in X-Linked Myotubular Myopathy

      Olli Tynninen
      Helsinki, FI 

      Olli Tynninen practices in Helsinki, Finland. Mr. Tynninen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Pineocytoma, Cerebellum Agenesis Hydrocephaly, Nemaline Myopathy, and Brain Tumor.

      Experienced in X-Linked Myotubular Myopathy

      Johanna Lehtonen
      Experienced in X-Linked Myotubular Myopathy

      Johanna Lehtonen
      Helsinki, FI 

      Johanna Lehtonen practices in Helsinki, Finland. Ms. Lehtonen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Multiple Pterygium Syndrome, Spondylocarpotarsal Synostosis Syndrome, and Anton Syndrome.

      Experienced in X-Linked Myotubular Myopathy

      Pirjo Isohanni
      Experienced in X-Linked Myotubular Myopathy

      Pirjo Isohanni
      Helsinki, FI 

      Pirjo Isohanni practices in Helsinki, Finland. Isohanni is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Progressive External Ophthalmoplegia, Lactic Acidosis, Mitochondrial Complex V Deficiency, and Kearns-Sayre Syndrome.

      Experienced in X-Linked Myotubular Myopathy

      Jaakko Sarparanta
      Experienced in X-Linked Myotubular Myopathy

      Jaakko Sarparanta
      Helsinki, FI 

      Jaakko Sarparanta practices in Helsinki, Finland. Sarparanta is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Cramp-Fasciculation Syndrome, Tubular Aggregate Myopathy, Limb-Girdle Muscular Dystrophy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Anders E. Paetau
      Experienced in X-Linked Myotubular Myopathy

      Anders E. Paetau
      Helsinki, FI 

      Anders Paetau practices in Helsinki, Finland. Mr. Paetau is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cerebral Amyloid Angiopathy, Dementia, Multiple Pterygium Syndrome, and PEHO Syndrome.

      Experienced in X-Linked Myotubular Myopathy

      Sonja Karlsson-Strang
      Experienced in X-Linked Myotubular Myopathy

      Sonja Karlsson-Strang
      Helsinki, FI 

      Sonja Karlsson-Strang practices in Helsinki, Finland. Ms. Karlsson-Strang is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Choanal Atresia, Trichothiodystrophy, Nemaline Myopathy, and Limb-Girdle Muscular Dystrophy.

      Experienced in X-Linked Myotubular Myopathy

      Minna E. Simila
      Experienced in X-Linked Myotubular Myopathy

      Minna E. Simila
      Helsinki, FI 

      Minna Simila practices in Helsinki, Finland. Ms. Simila is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Glycogen Storage Disease Type 7, Nemaline Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 36

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Southern Ostrobothnia, FI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Southern Ostrobothnia, FI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in Southern Ostrobothnia, FI?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank X-Linked Myotubular Myopathy doctors in Southern Ostrobothnia, FI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Southern Ostrobothnia, FI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Southern Ostrobothnia, FI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Southern Ostrobothnia, FI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Southern Ostrobothnia, FI?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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