The 20 Best X-Linked Myotubular Myopathy Doctors in France

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 328 doctor with experience in X-Linked Myotubular Myopathy near France. Of these, 254 are Experienced, 53 are Advanced, 17 are Distinguished and 4 are Elite.

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328 providers found
    Elite in X-Linked Myotubular Myopathy

    Johann Bohm
    Elite in X-Linked Myotubular Myopathy

    Johann Bohm
    Illkirch-graffenstaden, FR 

    Johann Bohm practices practicing medicine in Illkirch-graffenstaden, France. Bohm is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Stormorken Syndrome.

    Elite in X-Linked Myotubular Myopathy

    Jocelyn F. Laporte
    Elite in X-Linked Myotubular Myopathy

    Jocelyn F. Laporte
    Illkirch-graffenstaden, FR 

    Jocelyn Laporte practices practicing medicine in Illkirch-graffenstaden, France. Ms. Laporte is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Elite in X-Linked Myotubular Myopathy

    Anna Bello-Buj
    Elite in X-Linked Myotubular Myopathy

    Anna Bello-Buj
    1 Bis Rue De L'Internationale, 
    Evry, FR 

    Anna Bello-Buj practices practicing medicine in Evry, France. Ms. Bello-Buj is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

    Learn about our expert tiers
    Elite in X-Linked Myotubular Myopathy

    Belinda S. Cowling
    Elite in X-Linked Myotubular Myopathy

    Belinda S. Cowling
    Illkirch-graffenstaden, FR 

    Belinda Cowling practices practicing medicine in Illkirch-graffenstaden, France. Ms. Cowling is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Charlotte Gineste
    Distinguished in X-Linked Myotubular Myopathy

    Charlotte Gineste
    Illkirch-graffenstaden, FR 

    Charlotte Gineste practices practicing medicine in Illkirch-graffenstaden, France. Ms. Gineste is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Nemaline Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Ana Bello-Buj
    Distinguished in X-Linked Myotubular Myopathy

    Ana Bello-Buj
    Evry, FR 

    Ana Bello-Buj practices practicing medicine in Evry, France. Ms. Bello-Buj is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Primary Lateral Sclerosis.

    Distinguished in X-Linked Myotubular Myopathy

    Marc Bitoun
    Distinguished in X-Linked Myotubular Myopathy

    Marc Bitoun
    Paris, FR 

    Marc Bitoun practices practicing medicine in Paris, France. Mr. Bitoun is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Andreea M. Seferian
    Distinguished in X-Linked Myotubular Myopathy

    Andreea M. Seferian
    Paris, FR 

    Andreea Seferian practices practicing medicine in Paris, France. Ms. Seferian is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Becker Muscular Dystrophy.

    Distinguished in X-Linked Myotubular Myopathy

    Valerie Biancalana
    Distinguished in X-Linked Myotubular Myopathy

    Valerie Biancalana
    Strasbourg, FR 

    Valerie Biancalana practices practicing medicine in Strasbourg, France. Ms. Biancalana is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Alban Vignaud
    Distinguished in X-Linked Myotubular Myopathy

    Alban Vignaud
    Les Ulis, FR 

    Alban Vignaud practices practicing medicine in Les Ulis, France. Mr. Vignaud is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Crigler-Najjar Syndrome.

    Distinguished in X-Linked Myotubular Myopathy

    Christine Kretz
    Distinguished in X-Linked Myotubular Myopathy

    Christine Kretz
    Illkirch-graffenstaden, FR 

    Christine Kretz practices practicing medicine in Illkirch-graffenstaden, France. Ms. Kretz is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Roberto Rojas-Silva
    Distinguished in X-Linked Myotubular Myopathy

    Roberto Rojas-Silva
    Illkirch-graffenstaden, FR 

    Roberto Rojas-Silva practices practicing medicine in Illkirch-graffenstaden, France. Mr. Rojas-Silva is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Stormorken Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Samia Martin
    Distinguished in X-Linked Myotubular Myopathy

    Samia Martin
    Evry, FR 

    Samia Martin practices practicing medicine in Evry, France. Ms. Martin is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Myofibrillar Myopathy, Crigler-Najjar Syndrome, Rotor Syndrome, and Congenital Fiber-Type Disproportion.

    Distinguished in X-Linked Myotubular Myopathy

    John Rendu
    Distinguished in X-Linked Myotubular Myopathy

    John Rendu
    Grenoble, FR 

    John Rendu practices practicing medicine in Grenoble, France. Mr. Rendu is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Central Core Disease, Lowe Syndrome, Centronuclear Myopathy, and Tubular Aggregate Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Nadia Messaddeq
    Distinguished in X-Linked Myotubular Myopathy

    Nadia Messaddeq
    Illkirch-graffenstaden, FR 

    Nadia Messaddeq practices practicing medicine in Illkirch-graffenstaden, France. Ms. Messaddeq is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Spinocerebellar Ataxia Type 7.

    Distinguished in X-Linked Myotubular Myopathy

    Marie Goret
    Distinguished in X-Linked Myotubular Myopathy

    Marie Goret
    Illkirch-graffenstaden, FR 

    Marie Goret practices practicing medicine in Illkirch-graffenstaden, France. Ms. Goret is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Charcot-Marie-Tooth Disease.

    Distinguished in X-Linked Myotubular Myopathy

    Catherine Koch
    Distinguished in X-Linked Myotubular Myopathy

    Catherine Koch
    Illkirch-graffenstaden, FR 

    Catherine Koch practices practicing medicine in Illkirch-graffenstaden, France. Ms. Koch is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    David Reiss
    Distinguished in X-Linked Myotubular Myopathy

    David Reiss
    Illkirch-graffenstaden, FR 

    David Reiss practices practicing medicine in Illkirch-graffenstaden, France. Mr. Reiss is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Neuralgia.

    Distinguished in X-Linked Myotubular Myopathy

    Xenia Munoz-Massana
    Distinguished in X-Linked Myotubular Myopathy

    Xenia Munoz-Massana
    Illkirch-graffenstaden, FR 

    Xenia Munoz-Massana practices practicing medicine in Illkirch-graffenstaden, France. Ms. Munoz-Massana is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Charcot-Marie-Tooth Disease.

    Distinguished in X-Linked Myotubular Myopathy

    Julien C. Faure
    Distinguished in X-Linked Myotubular Myopathy

    Julien C. Faure
    Grenoble, FR 

    Julien Faure practices practicing medicine in Grenoble, France. Mr. Faure is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Distal Arthrogryposis Type 6, Distal Arthrogryposis, Congenital Contractures, and Arthrogryposis Multiplex Congenita.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 328

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor in France?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Myotubular Myopathy doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in France?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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