The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Illkirch-graffenstaden, 44

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 53 doctor with experience in X-Linked Myotubular Myopathy near Illkirch-graffenstaden, 44. Of these, 30 are Experienced, 11 are Advanced, 9 are Distinguished and 3 are Elite.

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53 providers found
    Elite in X-Linked Myotubular Myopathy

    Johann Bohm
    Elite in X-Linked Myotubular Myopathy

    Johann Bohm
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Johann Bohm practices in Illkirch-graffenstaden, France. Bohm is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Stormorken Syndrome.

    Elite in X-Linked Myotubular Myopathy

    Jocelyn F. Laporte
    Elite in X-Linked Myotubular Myopathy

    Jocelyn F. Laporte
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Jocelyn Laporte practices in Illkirch-graffenstaden, France. Ms. Laporte is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Elite in X-Linked Myotubular Myopathy

    Belinda S. Cowling
    Elite in X-Linked Myotubular Myopathy

    Belinda S. Cowling
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Belinda Cowling practices in Illkirch-graffenstaden, France. Ms. Cowling is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Learn about our expert tiers
    Distinguished in X-Linked Myotubular Myopathy

    Charlotte Gineste
    Distinguished in X-Linked Myotubular Myopathy

    Charlotte Gineste
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Charlotte Gineste practices in Illkirch-graffenstaden, France. Ms. Gineste is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Nemaline Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Christine Kretz
    Distinguished in X-Linked Myotubular Myopathy

    Christine Kretz
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Christine Kretz practices in Illkirch-graffenstaden, France. Ms. Kretz is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Roberto Rojas-Silva
    Distinguished in X-Linked Myotubular Myopathy

    Roberto Rojas-Silva
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Roberto Rojas-Silva practices in Illkirch-graffenstaden, France. Mr. Rojas-Silva is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Stormorken Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    Nadia Messaddeq
    Distinguished in X-Linked Myotubular Myopathy

    Nadia Messaddeq
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Nadia Messaddeq practices in Illkirch-graffenstaden, France. Ms. Messaddeq is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Spinocerebellar Ataxia Type 7.

    Distinguished in X-Linked Myotubular Myopathy

    Marie Goret
    Distinguished in X-Linked Myotubular Myopathy

    Marie Goret
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Marie Goret practices in Illkirch-graffenstaden, France. Ms. Goret is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Charcot-Marie-Tooth Disease.

    Distinguished in X-Linked Myotubular Myopathy

    Catherine Koch
    Distinguished in X-Linked Myotubular Myopathy

    Catherine Koch
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Catherine Koch practices in Illkirch-graffenstaden, France. Ms. Koch is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

    Distinguished in X-Linked Myotubular Myopathy

    David Reiss
    Distinguished in X-Linked Myotubular Myopathy

    David Reiss
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    David Reiss practices in Illkirch-graffenstaden, France. Mr. Reiss is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Neuralgia.

    Distinguished in X-Linked Myotubular Myopathy

    Xenia Munoz-Massana
    Distinguished in X-Linked Myotubular Myopathy

    Xenia Munoz-Massana
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Xenia Munoz-Massana practices in Illkirch-graffenstaden, France. Ms. Munoz-Massana is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Charcot-Marie-Tooth Disease.

    Distinguished in X-Linked Myotubular Myopathy

    Valerie Biancalana
    Distinguished in X-Linked Myotubular Myopathy

    Valerie Biancalana
    Strasbourg, FR 
     (5.9 km away)

    Valerie Biancalana practices in Strasbourg, France. Ms. Biancalana is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Hichem Tasfaout
    Advanced in X-Linked Myotubular Myopathy

    Hichem Tasfaout
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Hichem Tasfaout practices in Illkirch-graffenstaden, France. Tasfaout is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Becker Muscular Dystrophy.

    Advanced in X-Linked Myotubular Myopathy

    Xaviere Lornage
    Advanced in X-Linked Myotubular Myopathy

    Xaviere Lornage
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Xaviere Lornage practices in Illkirch-graffenstaden, France. Lornage is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Amyotonia Congenita, Myotonia Congenita, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy

    Suzie Buono
    Advanced in X-Linked Myotubular Myopathy

    Suzie Buono
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Suzie Buono practices in Illkirch-graffenstaden, France. Ms. Buono is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Julie D. Thompson
    Advanced in X-Linked Myotubular Myopathy

    Julie D. Thompson
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Julie Thompson practices in Illkirch-graffenstaden, France. Ms. Thompson is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Myotonia Congenita.

    Advanced in X-Linked Myotubular Myopathy

    Nasim Vasli
    Advanced in X-Linked Myotubular Myopathy

    Nasim Vasli
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Nasim Vasli practices in Illkirch-graffenstaden, France. Vasli is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Pascale Koebel
    Advanced in X-Linked Myotubular Myopathy

    Pascale Koebel
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Pascale Koebel practices in Illkirch-graffenstaden, France. Ms. Koebel is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Neuronal Intranuclear Inclusion Disease (NIID).

    Advanced in X-Linked Myotubular Myopathy

    Evelina Edelweiss
    Advanced in X-Linked Myotubular Myopathy

    Evelina Edelweiss
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Evelina Edelweiss practices in Illkirch-graffenstaden, France. Ms. Edelweiss is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Charcot-Marie-Tooth Disease.

    Advanced in X-Linked Myotubular Myopathy

    Nadege Diedhiou
    Advanced in X-Linked Myotubular Myopathy

    Nadege Diedhiou
    Illkirch-graffenstaden, FR 
     (1.0 km away)

    Nadege Diedhiou practices in Illkirch-graffenstaden, France. Ms. Diedhiou is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Hereditary Ataxia.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 53

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Myotubular Myopathy doctors near Illkirch-graffenstaden, 44?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near Illkirch-graffenstaden, 44?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near Illkirch-graffenstaden, 44?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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