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    Last Updated: 02/22/2026

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    MediFind found 53 doctor with experience in X-Linked Myotubular Myopathy near Illkirch-graffenstaden, 44. Of these, 31 are Experienced, 11 are Advanced, 8 are Distinguished and 3 are Elite.

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    53 providers found
      Elite in X-Linked Myotubular Myopathy

      Johann Bohm
      Elite in X-Linked Myotubular Myopathy

      Johann Bohm
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Johann Bohm practices in Illkirch-graffenstaden, France. Bohm is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Stormorken Syndrome.

      Elite in X-Linked Myotubular Myopathy

      Belinda S. Cowling
      Elite in X-Linked Myotubular Myopathy

      Belinda S. Cowling
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Belinda Cowling practices in Illkirch-graffenstaden, France. Ms. Cowling is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Elite in X-Linked Myotubular Myopathy

      Jocelyn F. Laporte
      Elite in X-Linked Myotubular Myopathy

      Jocelyn F. Laporte
      Inserm U1258, Cnrs UMR7104, Université De Strasbourg 1 Rue Laurent Fries Illkirch 67404 France Centre De Référence Neuromusculaire Du CHU Hautepierre, 
      Strasbourg, FR 
       (6.9 km away)

      Jocelyn Laporte practices in Strasbourg, France. Ms. Laporte is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Learn about our expert tiers
      Distinguished in X-Linked Myotubular Myopathy

      Charlotte Gineste
      Distinguished in X-Linked Myotubular Myopathy

      Charlotte Gineste
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Charlotte Gineste practices in Illkirch-graffenstaden, France. Ms. Gineste is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Nemaline Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Christine Kretz
      Distinguished in X-Linked Myotubular Myopathy

      Christine Kretz
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Christine Kretz practices in Illkirch-graffenstaden, France. Ms. Kretz is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Roberto Rojas-Silva
      Distinguished in X-Linked Myotubular Myopathy

      Roberto Rojas-Silva
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Roberto Rojas-Silva practices in Illkirch-graffenstaden, France. Mr. Rojas-Silva is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Stormorken Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in X-Linked Myotubular Myopathy

      Nadia Messaddeq
      Distinguished in X-Linked Myotubular Myopathy

      Nadia Messaddeq
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Nadia Messaddeq practices in Illkirch-graffenstaden, France. Ms. Messaddeq is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Spinocerebellar Ataxia Type 7.

      Distinguished in X-Linked Myotubular Myopathy

      Catherine Koch
      Distinguished in X-Linked Myotubular Myopathy

      Catherine Koch
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Catherine Koch practices in Illkirch-graffenstaden, France. Ms. Koch is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      David Reiss
      Distinguished in X-Linked Myotubular Myopathy

      David Reiss
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      David Reiss practices in Illkirch-graffenstaden, France. Mr. Reiss is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Neuralgia.

      Distinguished in X-Linked Myotubular Myopathy

      Xenia Munoz-Massana
      Distinguished in X-Linked Myotubular Myopathy

      Xenia Munoz-Massana
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Xenia Munoz-Massana practices in Illkirch-graffenstaden, France. Ms. Munoz-Massana is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Charcot-Marie-Tooth Disease.

      Distinguished in X-Linked Myotubular Myopathy

      Valerie Biancalana
      Distinguished in X-Linked Myotubular Myopathy

      Valerie Biancalana
      Strasbourg, FR 
       (6.9 km away)

      Valerie Biancalana practices in Strasbourg, France. Ms. Biancalana is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Xaviere Lornage
      Advanced in X-Linked Myotubular Myopathy

      Xaviere Lornage
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Xaviere Lornage practices in Illkirch-graffenstaden, France. Lornage is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Myotonia Congenita, Amyotonia Congenita, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy

      Hichem Tasfaout
      Advanced in X-Linked Myotubular Myopathy

      Hichem Tasfaout
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Hichem Tasfaout practices in Illkirch-graffenstaden, France. Tasfaout is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Becker Muscular Dystrophy.

      Advanced in X-Linked Myotubular Myopathy

      Suzie Buono
      Advanced in X-Linked Myotubular Myopathy

      Suzie Buono
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Suzie Buono practices in Illkirch-graffenstaden, France. Ms. Buono is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Julie D. Thompson
      Advanced in X-Linked Myotubular Myopathy

      Julie D. Thompson
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Julie Thompson practices in Illkirch-graffenstaden, France. Ms. Thompson is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Amyotonia Congenita.

      Advanced in X-Linked Myotubular Myopathy

      Nasim Vasli
      Advanced in X-Linked Myotubular Myopathy

      Nasim Vasli
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Nasim Vasli practices in Illkirch-graffenstaden, France. Vasli is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Centronuclear Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Pascale Koebel
      Advanced in X-Linked Myotubular Myopathy

      Pascale Koebel
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Pascale Koebel practices in Illkirch-graffenstaden, France. Ms. Koebel is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Neuronal Intranuclear Inclusion Disease (NIID).

      Advanced in X-Linked Myotubular Myopathy

      Nadege Diedhiou
      Advanced in X-Linked Myotubular Myopathy

      Nadege Diedhiou
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Nadege Diedhiou practices in Illkirch-graffenstaden, France. Ms. Diedhiou is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Hereditary Ataxia.

      Advanced in X-Linked Myotubular Myopathy

      Evelina Edelweiss
      Advanced in X-Linked Myotubular Myopathy

      Evelina Edelweiss
      Illkirch-graffenstaden, FR 
       (0.8 km away)

      Evelina Edelweiss practices in Illkirch-graffenstaden, France. Ms. Edelweiss is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Charcot-Marie-Tooth Disease.

      Advanced in X-Linked Myotubular Myopathy

      Coralie Spiegelhalter
      Advanced in X-Linked Myotubular Myopathy

      Coralie Spiegelhalter
      Strasbourg, FR 
       (6.9 km away)

      Coralie Spiegelhalter practices in Strasbourg, France. Ms. Spiegelhalter is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Stormorken Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 53

      Last Updated: 02/22/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

      X-Linked Myotubular Myopathy doctor near New York, NY
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      X-Linked Myotubular Myopathy doctor near Boston, MA
      X-Linked Myotubular Myopathy doctor near Dallas, TX
      X-Linked Myotubular Myopathy doctor near San Jose, CA

      How does MediFind rank X-Linked Myotubular Myopathy doctors near Illkirch-graffenstaden, 44?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near Illkirch-graffenstaden, 44?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near Illkirch-graffenstaden, 44?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near Illkirch-graffenstaden, 44?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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