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    Last Updated: 01/09/2026

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    MediFind found 122 doctor with experience in X-Linked Myotubular Myopathy near Strasbourg, 44. Of these, 96 are Experienced, 19 are Advanced, 5 are Distinguished and 2 are Elite.

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    122 providers found
      Elite in X-Linked Myotubular Myopathy

      Edoardo Malfatti
      Elite in X-Linked Myotubular Myopathy

      Edoardo Malfatti
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Edoardo Malfatti practices in Estonia. Mr. Malfatti is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

      Elite in X-Linked Myotubular Myopathy

      Norma B. Romero
      Elite in X-Linked Myotubular Myopathy

      Norma B. Romero
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Norma Romero practices in Estonia. Ms. Romero is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Nemaline Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Bruno Eymard
      Distinguished in X-Linked Myotubular Myopathy

      Bruno Eymard
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Bruno Eymard practices in Estonia. Mr. Eymard is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Paramyotonia Congenita, Congenital Myasthenic Syndrome, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Thymectomy.

      Learn about our expert tiers
      Distinguished in X-Linked Myotubular Myopathy

      John Vissing
      Distinguished in X-Linked Myotubular Myopathy

      John Vissing
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      John Vissing practices in Estonia. Mr. Vissing is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Myasthenia Gravis, Limb-Girdle Muscular Dystrophy Type 2I, and Myoglobinuria Recurrent.

      Distinguished in X-Linked Myotubular Myopathy

      Marc Bitoun
      Distinguished in X-Linked Myotubular Myopathy

      Marc Bitoun
      Paris, FR 
       (11.1 km away)

      Marc Bitoun practices in Paris, France. Mr. Bitoun is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Andreea M. Seferian
      Distinguished in X-Linked Myotubular Myopathy

      Andreea M. Seferian
      Paris, FR 
       (11.1 km away)

      Andreea Seferian practices in Paris, France. Ms. Seferian is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Becker Muscular Dystrophy.

      Distinguished in X-Linked Myotubular Myopathy

      Michel Fardeau
      Distinguished in X-Linked Myotubular Myopathy

      Michel Fardeau
      Paris, FR 
       (11.1 km away)

      Michel Fardeau practices in Paris, France. Mr. Fardeau is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Stephane Blot
      Experienced in X-Linked Myotubular Myopathy

      Stephane Blot
      University Of Paris Est, 
      Maisons-les-soulaines, FR 
       (7.0 km away)

      Stephane Blot practices in Maisons-les-soulaines, France. Ms. Blot is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy

      Laurent Tiret
      Advanced in X-Linked Myotubular Myopathy

      Laurent Tiret
      University Of Paris Est, 
      Creteil, FR 
       (9.6 km away)

      Laurent Tiret practices in Creteil, France. Mr. Tiret is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Tanya Stojkovic
      Advanced in X-Linked Myotubular Myopathy

      Tanya Stojkovic
      Centre De Référence Maladies Neuromusculaires Paris Est, 
      Paris, FR 
       (10.3 km away)

      Tanya Stojkovic practices in Paris, France. Ms. Stojkovic is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, Limb-Girdle Muscular Dystrophy, Pica, Dysferlinopathy, and Bone Marrow Aspiration.

      Advanced in X-Linked Myotubular Myopathy

      Pascal Laforet
      Advanced in X-Linked Myotubular Myopathy

      Pascal Laforet
      4 Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      Paris, FR 
       (10.3 km away)

      Pascal Laforet practices in Paris, France. Mr. Laforet is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Pompe Disease, Glycogen Storage Disease Type 3, Rhabdomyolysis, Myotonic Dystrophy Type 2, and Thymectomy.

      Advanced in X-Linked Myotubular Myopathy

      Anthony Behin
      Advanced in X-Linked Myotubular Myopathy

      Anthony Behin
      Centre De Référence Maladies Neuromusculaires Paris Est, 
      Paris, FR 
       (10.3 km away)

      Anthony Behin practices in Paris, France. Mr. Behin is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Phosphoglycerate Kinase Deficiency, Inclusion Body Myopathy 2, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Thymectomy.

      Advanced in X-Linked Myotubular Myopathy

      Ana Ferreiro
      Advanced in X-Linked Myotubular Myopathy

      Ana Ferreiro
      Centre De Référence Maladies Neuromusculaires Paris Est, 
      Paris, FR 
       (10.3 km away)

      Ana Ferreiro practices in Paris, France. Ms. Ferreiro is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Rigid Spine Syndrome, Myofibrillar Myopathy, Centronuclear Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Maud Beuvin
      Advanced in X-Linked Myotubular Myopathy

      Maud Beuvin
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 
       (10.4 km away)

      Maud Beuvin practices in Estonia. Ms. Beuvin is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Guy Brochier
      Advanced in X-Linked Myotubular Myopathy

      Guy Brochier
      Paris, FR 
       (11.1 km away)

      Guy Brochier practices in Paris, France. Mr. Brochier is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy

      Emmanuelle Lacene
      Advanced in X-Linked Myotubular Myopathy

      Emmanuelle Lacene
      Paris, FR 
       (11.1 km away)

      Emmanuelle Lacene practices in Paris, France. Ms. Lacene is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Nemaline Myopathy, and Bone Marrow Aspiration.

      Advanced in X-Linked Myotubular Myopathy

      Angeline Madelaine
      Advanced in X-Linked Myotubular Myopathy

      Angeline Madelaine
      Paris, FR 
       (11.1 km away)

      Angeline Madelaine practices in Paris, France. Ms. Madelaine is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Delphine Trochet
      Advanced in X-Linked Myotubular Myopathy

      Delphine Trochet
      Paris, FR 
       (11.1 km away)

      Delphine Trochet practices in Paris, France. Ms. Trochet is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Clemence Labasse
      Advanced in X-Linked Myotubular Myopathy

      Clemence Labasse
      Paris, FR 
       (11.1 km away)

      Clemence Labasse practices in Paris, France. Labasse is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Centronuclear Myopathy, Nemaline Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy

      Teresinha Evangelista
      Advanced in X-Linked Myotubular Myopathy

      Teresinha Evangelista
      Paris, FR 
       (11.1 km away)

      Teresinha Evangelista practices in Paris, France. Evangelista is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Cramp-Fasciculation Syndrome, Congenital Myasthenic Syndrome, Limb-Girdle Muscular Dystrophy, and Bone Marrow Aspiration.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 122

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor near Strasbourg, 44?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor near Strasbourg, 44?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor near Strasbourg, 44?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

      X-Linked Myotubular Myopathy doctor near New York, NY
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      X-Linked Myotubular Myopathy doctor near Phoenix, AZ
      X-Linked Myotubular Myopathy doctor near Philadelphia, PA
      X-Linked Myotubular Myopathy doctor near Atlanta, GA
      X-Linked Myotubular Myopathy doctor near Boston, MA
      X-Linked Myotubular Myopathy doctor near Dallas, TX
      X-Linked Myotubular Myopathy doctor near San Jose, CA

      How does MediFind rank X-Linked Myotubular Myopathy doctors near Strasbourg, 44?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near Strasbourg, 44?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near Strasbourg, 44?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near Strasbourg, 44?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near Strasbourg, 44?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy. 

      15 km has been selected.