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    Last Updated: 01/09/2026

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    MediFind found 22 doctor with experience in X-Linked Myotubular Myopathy near Brittany, FR. Of these, 19 are Experienced and 3 are Advanced.

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    22 providers found
      Advanced in X-Linked Myotubular Myopathy

      Bernard Payrastre
      Advanced in X-Linked Myotubular Myopathy

      Bernard Payrastre
      Toulouse, FR 

      Bernard Payrastre practices in Toulouse, France. Mr. Payrastre is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Thrombectomy, and Hormone Replacement Therapy (HRT).

      Advanced in X-Linked Myotubular Myopathy

      Edith Gabardos-Renaud
      Advanced in X-Linked Myotubular Myopathy

      Edith Gabardos-Renaud
      Toulouse, FR 

      Edith Gabardos-Renaud practices in Toulouse, France. Ms. Gabardos-Renaud is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Cerebral Hypoxia.

      Advanced in X-Linked Myotubular Myopathy

      Karim Hnia
      Advanced in X-Linked Myotubular Myopathy

      Karim Hnia
      Toulouse, FR 

      Karim Hnia practices in Toulouse, France. Mr. Hnia is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myofibrillar Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Learn about our expert tiers
      Experienced in X-Linked Myotubular Myopathy

      Gaetan Chicanne
      Experienced in X-Linked Myotubular Myopathy

      Gaetan Chicanne
      Toulouse, FR 

      Gaetan Chicanne practices in Toulouse, France. Mr. Chicanne is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Lowe Syndrome.

      Experienced in X-Linked Myotubular Myopathy

      Helene Tronchere
      Experienced in X-Linked Myotubular Myopathy

      Helene Tronchere
      Toulouse, FR 

      Helene Tronchere practices in Toulouse, France. Ms. Tronchere is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Rhabdomyosarcoma.

      Experienced in X-Linked Myotubular Myopathy

      Sophie Nicole
      Experienced in X-Linked Myotubular Myopathy

      Sophie Nicole
      Montpellier, FR 

      Sophie Nicole practices in Montpellier, France. Ms. Nicole is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Myasthenic Syndrome, Hemiplegia, Alternating Hemiplegia of Childhood, and Potassium-Aggravated Myotonia.

      Experienced in X-Linked Myotubular Myopathy

      Jean-marie Xuereb
      Experienced in X-Linked Myotubular Myopathy

      Jean-marie Xuereb
      Toulouse, FR 

      Jean-marie Xuereb practices in Toulouse, France. Ms. Xuereb is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Aurore Siegfried
      Experienced in X-Linked Myotubular Myopathy

      Aurore Siegfried
      Toulouse, FR 

      Aurore Siegfried practices in Toulouse, France. Ms. Siegfried is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Brain Tumor, Pediatric Low-Grade Glioma (pLGG), Gliomatosis Cerebri, and Choroid Plexus Papilloma.

      Experienced in X-Linked Myotubular Myopathy

      Henri Pegeot
      Experienced in X-Linked Myotubular Myopathy

      Henri Pegeot
      641 Avenue Du Doyen G. Giraud, 
      Montpellier, FR 

      Henri Pegeot practices in Montpellier, France. Pegeot is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Nemaline Myopathy, Cramp-Fasciculation Syndrome, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Claude Cances
      Experienced in X-Linked Myotubular Myopathy

      Claude Cances
      Toulouse, FR 

      Claude Cances practices in Toulouse, France. Mr. Cances is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Spinal Muscular Atrophy Type 1, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 3, and Gastrostomy.

      Experienced in X-Linked Myotubular Myopathy

      Sonia Severin
      Experienced in X-Linked Myotubular Myopathy

      Sonia Severin
      Toulouse, FR 

      Sonia Severin practices in Toulouse, France. Ms. Severin is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Agnes Ribes
      Experienced in X-Linked Myotubular Myopathy

      Agnes Ribes
      Toulouse, FR 

      Agnes Ribes practices in Toulouse, France. Ms. Ribes is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Thrombocytopenia, Stormorken Syndrome, Blood Clots, and Platelet Storage Pool Deficiency.

      Experienced in X-Linked Myotubular Myopathy

      Marie-pierre P. Gratacap
      Experienced in X-Linked Myotubular Myopathy

      Marie-pierre P. Gratacap
      Toulouse, FR 

      Marie-pierre Gratacap practices in Toulouse, France. Gratacap is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Lowe Syndrome, Thrombocytopenia, Sepsis, and Tubular Aggregate Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Mireille Cossee
      Experienced in X-Linked Myotubular Myopathy

      Mireille Cossee
      Montpellier, FR 

      Mireille Cossee practices in Montpellier, France. Ms. Cossee is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cramp-Fasciculation Syndrome, Acute Cerebellar Ataxia, Mosaicism, and Thyrotoxic Periodic Paralysis.

      Experienced in X-Linked Myotubular Myopathy

      Guillaume Allio
      Experienced in X-Linked Myotubular Myopathy

      Guillaume Allio
      Toulouse, FR 

      Guillaume Allio practices in Toulouse, France. Mr. Allio is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Raul Morales-Juntas
      Experienced in X-Linked Myotubular Myopathy

      Raul Morales-Juntas
      Montpellier, FR 

      Raul Morales-Juntas practices in Montpellier, France. Mr. Morales-Juntas is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Togaviridae Disease, and Glycogen Storage Disease Type 0.

      Experienced in X-Linked Myotubular Myopathy

      Lucie Soia-Combes
      Experienced in X-Linked Myotubular Myopathy

      Lucie Soia-Combes
      Toulouse, FR 

      Lucie Soia-Combes practices in Toulouse, France. Ms. Soia-Combes is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Eloise Baudou
      Experienced in X-Linked Myotubular Myopathy

      Eloise Baudou
      Toulouse, FR 

      Eloise Baudou practices in Toulouse, France. Ms. Baudou is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Posterior Fossa Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Memory Loss.

      Experienced in X-Linked Myotubular Myopathy

      Corinne Theze
      Experienced in X-Linked Myotubular Myopathy

      Corinne Theze
      Montpellier, FR 

      Corinne Theze practices in Montpellier, France. Ms. Theze is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cytoplasmic Body Myopathy, Cystic Fibrosis, Nemaline Myopathy, and Cramp-Fasciculation Syndrome.

      Experienced in X-Linked Myotubular Myopathy

      Melanie Mansat
      Experienced in X-Linked Myotubular Myopathy

      Melanie Mansat
      Toulouse, FR 

      Melanie Mansat practices in Toulouse, France. Ms. Mansat is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 22

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Brittany, FR?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Brittany, FR?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in Brittany, FR?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank X-Linked Myotubular Myopathy doctors in Brittany, FR?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Brittany, FR?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Brittany, FR?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Brittany, FR?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Brittany, FR?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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