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    Last Updated: 01/09/2026

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    MediFind found 26 doctor with experience in X-Linked Myotubular Myopathy near Poitou-Charentes, FR. Of these, 25 are Experienced and 1 are Advanced.

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    26 providers found
      Advanced in X-Linked Myotubular Myopathy

      David Bendahan
      Advanced in X-Linked Myotubular Myopathy

      David Bendahan
      Marseille, FR 

      David Bendahan practices in Marseille, France. Mr. Bendahan is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Cramp-Fasciculation Syndrome, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Gilbert L. Habib
      Experienced in X-Linked Myotubular Myopathy

      Gilbert L. Habib
      Experienced in X-Linked Myotubular Myopathy

      Gilbert L. Habib
      Marseille, FR 

      Gilbert Habib practices in Marseille, France. Mr. Habib is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Infective Endocarditis, Endocarditis, Endocardial Fibroelastosis, Heart Transplant, and Vitrectomy.

      Experienced in X-Linked Myotubular Myopathy

      Sabrina Sacconi
      Experienced in X-Linked Myotubular Myopathy

      Sabrina Sacconi

      CHU Nice

      Nice, FR 

      Sabrina Sacconi practices in Nice, France. Ms. Sacconi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Pompe Disease, Myasthenia Gravis, and Chromosome 18p Deletion.

      Learn about our expert tiers
      Experienced in X-Linked Myotubular Myopathy

      Christophe Vilmen
      Experienced in X-Linked Myotubular Myopathy

      Christophe Vilmen
      Marseille, FR 

      Christophe Vilmen practices in Marseille, France. Mr. Vilmen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Sickle Cell Disease, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Benoit Giannesini
      Experienced in X-Linked Myotubular Myopathy

      Benoit Giannesini
      Marseille, FR 

      Benoit Giannesini practices in Marseille, France. Mr. Giannesini is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Central Core Disease, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Jean P. Pouget
      Experienced in X-Linked Myotubular Myopathy

      Jean P. Pouget
      Marseille, FR 

      Jean Pouget practices in Marseille, France. Ms. Pouget is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Pompe Disease, Cramp-Fasciculation Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and Primary Lateral Sclerosis.

      Experienced in X-Linked Myotubular Myopathy

      Patrick J. Cozzone
      Experienced in X-Linked Myotubular Myopathy

      Patrick J. Cozzone
      Marseille, FR 

      Patrick Cozzone practices in Marseille, France. Mr. Cozzone is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Multiple Sclerosis (MS), Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Monique A. Bernard
      Experienced in X-Linked Myotubular Myopathy

      Monique A. Bernard
      Marseille, FR 

      Monique Bernard practices in Marseille, France. Ms. Bernard is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cardiomyopathy, Endocardial Fibroelastosis, Metabolic Syndrome, and Obesity.

      Experienced in X-Linked Myotubular Myopathy

      Shahram Attarian
      Experienced in X-Linked Myotubular Myopathy

      Shahram Attarian
      Marseille, FR 

      Shahram Attarian practices in Marseille, France. Mr. Attarian is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Pompe Disease, Primary Lateral Sclerosis, Guillain-Barre Syndrome, Bone Marrow Aspiration, and Heart Transplant.

      Experienced in X-Linked Myotubular Myopathy

      Augustin C. Ogier
      Experienced in X-Linked Myotubular Myopathy

      Augustin C. Ogier
      Marseille, FR 

      Augustin Ogier practices in Marseille, France. Mr. Ogier is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Cramp-Fasciculation Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and Bladder Reconstruction.

      Experienced in X-Linked Myotubular Myopathy

      Nicolas Levy
      Experienced in X-Linked Myotubular Myopathy

      Nicolas Levy
      Marseille, FR 

      Nicolas Levy practices in Marseille, France. Mr. Levy is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Progeria, Miyoshi Myopathy, Mandibuloacral Dysplasia, Acrorenal Mandibular Syndrome, and Gamma Knife Radiosurgery.

      Experienced in X-Linked Myotubular Myopathy

      Yann Le Fur
      Experienced in X-Linked Myotubular Myopathy

      Yann Le Fur
      Marseille, FR 

      Yann Le Fur practices in Marseille, France. Mr. Le Fur is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Dominique Branger-Figarella
      Experienced in X-Linked Myotubular Myopathy

      Dominique Branger-Figarella
      Marseille, FR 

      Dominique Branger-Figarella practices in Marseille, France. Branger-Figarella is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Glioma, Gliomatosis Cerebri, Brain Tumor, and Oligodendroglioma.

      Experienced in X-Linked Myotubular Myopathy

      Emilie Pecchi
      Experienced in X-Linked Myotubular Myopathy

      Emilie Pecchi
      Marseille, FR 

      Emilie Pecchi practices in Marseille, France. Ms. Pecchi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Osteoarthritis, Nemaline Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Karine Nguyen
      Experienced in X-Linked Myotubular Myopathy

      Karine Nguyen
      Marseille, FR 

      Karine Nguyen practices in Marseille, France. Ms. Nguyen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Bosma Arhinia Microphthalmia Syndrome, Choanal Atresia, Familial Hypertrophic Cardiomyopathy, and Heart Transplant.

      Experienced in X-Linked Myotubular Myopathy

      Hager Jaouadi
      Experienced in X-Linked Myotubular Myopathy

      Hager Jaouadi
      Marseille, FR 

      Hager Jaouadi practices in Marseille, France. Jaouadi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Deafness Hypogonadism Syndrome, Noonan Syndrome, Dilated Cardiomyopathy (DCM), and Hypertrophic Cardiomyopathy (HCM).

      Experienced in X-Linked Myotubular Myopathy

      Jean-michel M. Arnal
      Experienced in X-Linked Myotubular Myopathy

      Jean-michel M. Arnal
      Toulon, FR 

      Jean-michel Arnal practices in Toulon, France. Mr. Arnal is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Acute Respiratory Distress Syndrome (ARDS), Obesity Hypoventilation Syndrome (OHS), Chronic Obstructive Pulmonary Disease (COPD), and Obstructive Sleep Apnea.

      Experienced in X-Linked Myotubular Myopathy

      Olivier Decaux
      Experienced in X-Linked Myotubular Myopathy

      Olivier Decaux

      CHU Marseille

      Marseille, FR 

      Olivier Decaux practices in Marseille, France. Mr. Decaux is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Multiple Myeloma, Plasmacytoma, Vasculitis, and Cryoglobulinemia.

      Experienced in X-Linked Myotubular Myopathy

      Isabelle Varlet
      Experienced in X-Linked Myotubular Myopathy

      Isabelle Varlet
      Marseille, FR 

      Isabelle Varlet practices in Marseille, France. Ms. Varlet is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Primary Amebic Meningoencephalitis, Endocardial Fibroelastosis, Non-Alcoholic Fatty Liver Disease, and Nemaline Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Jerome Franques
      Experienced in X-Linked Myotubular Myopathy

      Jerome Franques
      Marseille, FR 

      Jerome Franques practices in Marseille, France. Mr. Franques is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Vitamin B12 Deficiency Anemia, Chronic Inflammatory Demyelinating Polyneuropathy, Subacute Combined Degeneration, and Myotonia Congenita.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 26

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank X-Linked Myotubular Myopathy doctors in Poitou-Charentes, FR?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Poitou-Charentes, FR?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Poitou-Charentes, FR?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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