The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Poitou-Charentes, FR

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 26 doctor with experience in X-Linked Myotubular Myopathy near Poitou-Charentes, FR. Of these, 24 are Experienced and 2 are Advanced.

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26 providers found
    Advanced in X-Linked Myotubular Myopathy

    David Bendahan
    Advanced in X-Linked Myotubular Myopathy

    David Bendahan
    Referral may be required
    Marseille, FR 

    David Bendahan practices practicing medicine in Marseille, France. Mr. Bendahan is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Nemaline Myopathy, Cramp-Fasciculation Syndrome, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in X-Linked Myotubular Myopathy

    Sabrina Sacconi
    Advanced in X-Linked Myotubular Myopathy

    Sabrina Sacconi
    Referral may be required
    Nice, FR 

    Sabrina Sacconi practices practicing medicine in Nice, France. Ms. Sacconi is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Pompe Disease, Myasthenia Gravis, and Cramp-Fasciculation Syndrome.

    Experienced in X-Linked Myotubular Myopathy

    Gilbert Habib
    Experienced in X-Linked Myotubular Myopathy

    Gilbert Habib
    Referral may be required
    Marseille, FR 

    Gilbert Habib practices practicing medicine in Marseille, France. Mr. Habib is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Endocarditis, Infective Endocarditis, Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Vitrectomy.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy

    Christophe Vilmen
    Experienced in X-Linked Myotubular Myopathy

    Christophe Vilmen
    Referral may be required
    Marseille, FR 

    Christophe Vilmen practices practicing medicine in Marseille, France. Mr. Vilmen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Nemaline Myopathy, Sickle Cell Disease, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Benoit Giannesini
    Experienced in X-Linked Myotubular Myopathy

    Benoit Giannesini
    Referral may be required
    Marseille, FR 

    Benoit Giannesini practices practicing medicine in Marseille, France. Mr. Giannesini is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Central Core Disease, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Patrick J. Cozzone
    Experienced in X-Linked Myotubular Myopathy

    Patrick J. Cozzone
    Referral may be required
    Marseille, FR 

    Patrick Cozzone practices practicing medicine in Marseille, France. Mr. Cozzone is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Nemaline Myopathy, Multiple Sclerosis (MS), Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Jean P. Pouget
    Experienced in X-Linked Myotubular Myopathy

    Jean P. Pouget
    Referral may be required
    Marseille, FR 

    Jean Pouget practices practicing medicine in Marseille, France. Ms. Pouget is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cramp-Fasciculation Syndrome, Pompe Disease, Familial Transthyretin Amyloidosis, and Chronic Inflammatory Demyelinating Polyneuropathy.

    Experienced in X-Linked Myotubular Myopathy

    Shahram Attarian
    Experienced in X-Linked Myotubular Myopathy

    Shahram Attarian
    Referral may be required
    Marseille, FR 

    Shahram Attarian practices practicing medicine in Marseille, France. Mr. Attarian is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, Guillain-Barre Syndrome, and Bone Marrow Aspiration.

    Experienced in X-Linked Myotubular Myopathy

    Monique P. Bernard
    Experienced in X-Linked Myotubular Myopathy

    Monique P. Bernard
    Referral may be required
    Marseille, FR 

    Monique Bernard practices practicing medicine in Marseille, France. Ms. Bernard is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Metabolic Acidosis, Endocardial Fibroelastosis, Cardiomyopathy, and Nemaline Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Augustin C. Ogier
    Experienced in X-Linked Myotubular Myopathy

    Augustin C. Ogier
    Referral may be required
    Marseille, FR 

    Augustin Ogier practices practicing medicine in Marseille, France. Mr. Ogier is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Nemaline Myopathy, Cramp-Fasciculation Syndrome, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Bladder Reconstruction.

    Experienced in X-Linked Myotubular Myopathy

    Yann Le Fur
    Experienced in X-Linked Myotubular Myopathy

    Yann Le Fur
    Referral may be required
    Marseille, FR 

    Yann Le Fur practices practicing medicine in Marseille, France. Mr. Le Fur is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Nemaline Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Luisa Villa
    Experienced in X-Linked Myotubular Myopathy

    Luisa Villa
    Referral may be required
    Nice, FR 

    Luisa Villa practices practicing medicine in Nice, France. Ms. Villa is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Lipogranulomatosis, Primary Lateral Sclerosis, and Chronic Inflammatory Demyelinating Polyneuropathy.

    Experienced in X-Linked Myotubular Myopathy

    Karine Nguyen
    Experienced in X-Linked Myotubular Myopathy

    Karine Nguyen
    Referral may be required
    Aix-en-provence, FR 

    Karine Nguyen practices practicing medicine in Aix-en-provence, France. Ms. Nguyen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Bosma Arhinia Microphthalmia Syndrome, Choanal Atresia, Familial Hypertrophic Cardiomyopathy, and Heart Transplant.

    Experienced in X-Linked Myotubular Myopathy

    Emilie Pecchi
    Experienced in X-Linked Myotubular Myopathy

    Emilie Pecchi
    Referral may be required
    Marseille, FR 

    Emilie Pecchi practices practicing medicine in Marseille, France. Ms. Pecchi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses Nemaline Myopathy, Osteoarthritis, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Boglarka Zambo
    Experienced in X-Linked Myotubular Myopathy

    Boglarka Zambo
    Referral may be required
    Nice, FR 

    Boglarka Zambo practices practicing medicine in Nice, France. Zambo is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Down Syndrome.

    Experienced in X-Linked Myotubular Myopathy

    Hager Jaouadi
    Experienced in X-Linked Myotubular Myopathy

    Hager Jaouadi
    Referral may be required
    Marseille, FR 

    Hager Jaouadi practices practicing medicine in Marseille, France. Jaouadi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Deafness Hypogonadism Syndrome, Noonan Syndrome, Dilated Cardiomyopathy (DCM), and Pectus Excavatum.

    Experienced in X-Linked Myotubular Myopathy

    Jean-michel M. Arnal
    Experienced in X-Linked Myotubular Myopathy

    Jean-michel M. Arnal
    Referral may be required
    Dr. Arnal Is Affiliated With Service De Réanimation Polyvalente Et Unité De Ventilation À Domicile, 
    Toulon, FR 

    Jean-michel Arnal practices practicing medicine in Toulon, France. Mr. Arnal is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Acute Respiratory Distress Syndrome (ARDS), Obesity Hypoventilation Syndrome (OHS), Chronic Obstructive Pulmonary Disease (COPD), and Respiratory Acidosis.

    Experienced in X-Linked Myotubular Myopathy

    Isabelle Varlet
    Experienced in X-Linked Myotubular Myopathy

    Isabelle Varlet
    Referral may be required
    Marseille, FR 

    Isabelle Varlet practices practicing medicine in Marseille, France. Ms. Varlet is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses Primary Amebic Meningoencephalitis, Endocardial Fibroelastosis, Nemaline Myopathy, and Non-Alcoholic Fatty Liver Disease.

    Experienced in X-Linked Myotubular Myopathy

    Olivier Decaux
    Experienced in X-Linked Myotubular Myopathy

    Olivier Decaux
    Referral may be required

    CHU Marseille

    Marseille, FR 

    Olivier Decaux practices practicing medicine in Marseille, France. Mr. Decaux is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Plasmacytoma, Vasculitis, and Monoclonal Gammopathy of Undetermined Significance (MGUS).

    Experienced in X-Linked Myotubular Myopathy

    Stephane Zaffran
    Experienced in X-Linked Myotubular Myopathy

    Stephane Zaffran
    Referral may be required
    Marseille, FR 

    Stephane Zaffran practices practicing medicine in Marseille, France. Ms. Zaffran is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Bicuspid Aortic Valve, Noonan Syndrome, Mitral Valve Prolapse, and Dilated Cardiomyopathy (DCM).

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 06/30/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Myotubular Myopathy doctors in Poitou-Charentes, FR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Poitou-Charentes, FR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Poitou-Charentes, FR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Poitou-Charentes, FR?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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