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    Last Updated: 01/09/2026

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    MediFind found 359 doctor with experience in X-Linked Myotubular Myopathy near Japan. Of these, 339 are Experienced, 15 are Advanced, 4 are Distinguished and 1 are Elite.

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    359 providers found
      Elite in X-Linked Myotubular Myopathy
      Elite in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Ichizo Nishino practices in Tokyo, Japan. Nishino is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Necrotizing Myopathy (NM), Danon Disease, Myositis, Inclusion Body Myositis, and Thrombectomy.

      Distinguished in X-Linked Myotubular Myopathy
      Distinguished in X-Linked Myotubular Myopathy
      Crest, 
      Kawaguchi, JP 

      Naomichi Matsumoto practices in Kawaguchi, Japan. Matsumoto is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are West Syndrome, Coffin-Siris Syndrome, Neuronal Intranuclear Inclusion Disease (NIID), Gastrostomy, and Pancreaticoduodenectomy.

      Distinguished in X-Linked Myotubular Myopathy
      Distinguished in X-Linked Myotubular Myopathy
      JP 

      Satoko Miyatake practices in Japan. Ms. Miyatake is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Acute Cerebellar Ataxia, Nemaline Myopathy, Neuronal Intranuclear Inclusion Disease (NIID), Drug Induced Dyskinesia, and Gastrostomy.

      Learn about our expert tiers
      Distinguished in X-Linked Myotubular Myopathy
      Distinguished in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Satoru Noguchi practices in Tokyo, Japan. Mr. Noguchi is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myopathy 2, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in X-Linked Myotubular Myopathy
      Distinguished in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Yukiko Hayashi practices in Tokyo, Japan. Ms. Hayashi is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Emery-Dreifuss Muscular Dystrophy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Ikuya Nonaka practices in Tokyo, Japan. Nonaka is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Danon Disease, Centronuclear Myopathy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Kodaira, JP 

      Yoshihiko Saito practices in Kodaira, Japan. Mr. Saito is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Heart Failure, Heart Attack, Heart Failure with Preserved Ejection Fraction (HFpEF), Percutaneous Coronary Intervention (PCI), and Angioplasty.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Aritoshi Iida practices in Tokyo, Japan. Iida is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Oculopharyngeal Muscular Dystrophy, Pyle Disease, Schwartz-Jampel Syndrome, and Chondrodystrophy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Yasushi Oya practices in Tokyo, Japan. Oya is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Inclusion Body Myositis, Inclusion Body Myopathy 2, Paramyotonia Congenita, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Jun Shimizu practices in Tokyo, Japan. Mr. Shimizu is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Relapsing Polychondritis, Myositis, Inclusion Body Myositis, Neuronal Intranuclear Inclusion Disease (NIID), and Thymectomy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Kodaira, JP 

      Masashi Ogasawara practices in Kodaira, Japan. Mr. Ogasawara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Oculopharyngeal Muscular Dystrophy, Central Core Disease, Centronuclear Myopathy, and Neuronal Intranuclear Inclusion Disease (NIID).

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Yokohama, JP 

      Eriko Koshimizu practices in Yokohama, Japan. Ms. Koshimizu is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Pontocerebellar Hypoplasia, Mosaicism, Nemaline Myopathy, and Cerebellar Hypoplasia.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      JP 

      Atsuko Nishikawa practices in Japan. Ms. Nishikawa is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Yokohama, JP 

      Masaaki Shiina practices in Yokohama, Japan. Mr. Shiina is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Cerebelloolivary Atrophy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      St. Marianna University School Of Medicine, 2-16-1 Sugao, Miyamae Ku, 
      Kawasaki, JP 

      Satomi Mitsuhashi practices in Kawasaki, Japan. Ms. Mitsuhashi is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Neuronal Intranuclear Inclusion Disease (NIID), Inclusion Body Myopathy 2, and Spasmus Nutans.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Okayama, JP 

      Tetsuya Takeda practices in Okayama, Japan. Mr. Takeda is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Charcot-Marie-Tooth Disease.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Shinichiro Hayashi practices in Tokyo, Japan. Hayashi is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Oculopharyngeal Muscular Dystrophy, Central Core Disease, Limb-Girdle Muscular Dystrophy Type 2B, and Centronuclear Myopathy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Hachioji, JP 

      Yuji Takahashi practices in Hachioji, Japan. Mr. Takahashi is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Acute Cerebellar Ataxia, Spinocerebellar Ataxia Type 31, Spinocerebellar Ataxia, Gastrostomy, and Bone Marrow Transplant.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Tokyo, JP 

      Mariko Okubo practices in Tokyo, Japan. Ms. Okubo is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Dystrophinopathy, Limb-Girdle Muscular Dystrophy Type 2B, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy
      Chiba, JP 

      Shoji Tsuji practices in Chiba, Japan. Mr. Tsuji is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myoclonic Epilepsy, Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Paraplegia, and Bone Marrow Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 359

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Japan?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Japan?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Myotubular Myopathy doctors in Japan?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Japan?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Japan?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Japan?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Japan?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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