The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Tokyo, JP

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 94 doctor with experience in X-Linked Myotubular Myopathy near Tokyo, JP. Of these, 85 are Experienced, 8 are Advanced and 1 are Elite.

Location
LocationClose
94 providers found
    Elite in X-Linked Myotubular Myopathy
    Elite in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Ichizo Nishino practices practicing medicine in Tokyo, Japan. Nishino is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 60 other conditions, according to our data. Their clinical expertise encompasses Necrotizing Myopathy (NM), Danon Disease, Myositis, Inclusion Body Myositis, and Thrombectomy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Satoru Noguchi practices practicing medicine in Tokyo, Japan. Mr. Noguchi is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myopathy 2, Collagen VI-Related Myopathy, Oculopharyngeal Muscular Dystrophy, and X-Linked Myotubular Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Yukiko Hayashi practices practicing medicine in Tokyo, Japan. Ms. Hayashi is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Emery-Dreifuss Muscular Dystrophy, Limb-Girdle Muscular Dystrophy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Learn about our expert tiers
    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Ikuya Nonaka practices practicing medicine in Tokyo, Japan. Nonaka is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Danon Disease, Centronuclear Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Kodaira, JP 

    Aritoshi Iida practices practicing medicine in Kodaira, Japan. Iida is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Oculopharyngeal Muscular Dystrophy, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Pyle Disease.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Yasushi Oya practices practicing medicine in Tokyo, Japan. Oya is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 16 other conditions, according to our data. Their clinical expertise encompasses Inclusion Body Myositis, Inclusion Body Myopathy 2, Paramyotonia Congenita, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Fuchu, JP 

    Jun Shimizu practices practicing medicine in Fuchu, Japan. Mr. Shimizu is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Relapsing Polychondritis, Myositis, Inclusion Body Myositis, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Kodaira, JP 

    Masashi Ogasawara practices practicing medicine in Kodaira, Japan. Mr. Ogasawara is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Oculopharyngeal Muscular Dystrophy, Central Core Disease, Centronuclear Myopathy, and Neuronal Intranuclear Inclusion Disease (NIID).

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Mariko Okubo practices practicing medicine in Tokyo, Japan. Ms. Okubo is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Dystrophinopathy, Limb-Girdle Muscular Dystrophy Type 2B, Limb-Girdle Muscular Dystrophy, and Becker Muscular Dystrophy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Yusuke Yanagi practices practicing medicine in Tokyo, Japan. Mr. Yanagi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Subacute Sclerosing Panencephalitis, Measles, Biliary Atresia, Liver Transplant, and Hepatectomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Hongo, JP 

    Takashi Murayama practices practicing medicine in Hongo, Japan. Mr. Murayama is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Central Core Disease, Hyperthermia, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Michio Inoue practices practicing medicine in Tokyo, Japan. Mr. Inoue is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rigid Spine Syndrome, Myositis, Dermatomyositis, Polymyositis, and Thrombectomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Noriko Miyake practices practicing medicine in Tokyo, Japan. Ms. Miyake is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 84 other conditions, according to our data. Her clinical expertise encompasses Coffin-Siris Syndrome, Kabuki Syndrome, Microcephaly, Thrombectomy, and Fasciotomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Shinichiro Hayashi practices practicing medicine in Tokyo, Japan. Hayashi is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Oculopharyngeal Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 2B, Limb-Girdle Muscular Dystrophy, and Chronic Obstructive Pulmonary Disease (COPD).

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Kazuhiro Ogata practices practicing medicine in Tokyo, Japan. Mr. Ogata is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cerebelloolivary Atrophy, Pontocerebellar Hypoplasia, Focal or Multifocal Malformations in Neuronal Migration, and Syndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH).

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Kodaira, JP 

    Theerawat Kumutpongpanich practices practicing medicine in Kodaira, Japan. Kumutpongpanich is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Oculopharyngeal Muscular Dystrophy, Nemaline Myopathy, Neuronal Intranuclear Inclusion Disease (NIID), and Subacute Combined Degeneration.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Kodaira, JP 

    Hirofumi Komaki practices practicing medicine in Kodaira, Japan. Komaki is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 23 other conditions, according to our data. Their clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Danon Disease, and Walker-Warburg Syndrome.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Akatsuki Kubota practices practicing medicine in Tokyo, Japan. Kubota is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses X-Linked Dominant Scapuloperoneal Myopathy, Myositis, Inclusion Body Myositis, and Polymyositis.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Tadashi Abe practices practicing medicine in Tokyo, Japan. Mr. Abe is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Gastrointestinal Perforation, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Ileostomy, and Small Bowel Resection.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Tokyo, JP 

    Meiko Maeda practices practicing medicine in Tokyo, Japan. Maeda is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Myositis, Adie Syndrome, Nemaline Myopathy, and Necrosis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 94

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Tokyo, JP?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Tokyo, JP?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors in Tokyo, JP?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Tokyo, JP?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Tokyo, JP?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Tokyo, JP?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Tokyo, JP?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy