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    Last Updated: 01/09/2026

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    MediFind found 76 doctor with experience in X-Linked Myotubular Myopathy near Netherlands. Of these, 65 are Experienced, 7 are Advanced, 3 are Distinguished and 1 are Elite.

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    76 providers found
      Elite in X-Linked Myotubular Myopathy

      Nicol C. Voermans
      Elite in X-Linked Myotubular Myopathy

      Nicol C. Voermans
      Nijmegen, GE, NL 

      Nicol Voermans practices in Nijmegen, Netherlands. Ms. Voermans is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Rhabdomyolysis, Facioscapulohumeral Muscular Dystrophy (FSHD), Ehlers-Danlos Syndrome (EDS), and Congenital Fiber-Type Disproportion.

      Distinguished in X-Linked Myotubular Myopathy

      Josine M. De Winter
      Distinguished in X-Linked Myotubular Myopathy

      Josine M. De Winter

      Amsterdam UMC, Location VUmc

      Amsterdam, NH, NL 

      Josine De Winter practices in Amsterdam, Netherlands. Ms. De Winter is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

      Distinguished in X-Linked Myotubular Myopathy

      Esmee B. Van Kleef
      Distinguished in X-Linked Myotubular Myopathy

      Esmee B. Van Kleef
      Nijmegen, GE, NL 

      Esmee Van Kleef practices in Nijmegen, Netherlands. Ms. Van Kleef is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Learn about our expert tiers
      Distinguished in X-Linked Myotubular Myopathy

      Erik-jan J. Kamsteeg
      Distinguished in X-Linked Myotubular Myopathy

      Erik-jan J. Kamsteeg

      Radboud UMC

      Nijmegen, GE, NL 

      Erik-jan Kamsteeg practices in Nijmegen, Netherlands. Kamsteeg is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Spasticity, Spastic Paraplegia Type 7, Drug Induced Dyskinesia, and Paraplegia.

      Advanced in X-Linked Myotubular Myopathy

      Benno Kusters
      Advanced in X-Linked Myotubular Myopathy

      Benno Kusters

      Radboudumc

      Nijmegen, GE, NL 

      Benno Kusters practices in Nijmegen, Netherlands. Mr. Kusters is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Pheochromocytoma, Myotonia Congenita, Amyotonia Congenita, Bone Marrow Aspiration, and Gastrostomy.

      Advanced in X-Linked Myotubular Myopathy

      Jonne Doorduin
      Advanced in X-Linked Myotubular Myopathy

      Jonne Doorduin
      Nijmegen, GE, NL 

      Jonne Doorduin practices in Nijmegen, Netherlands. Ms. Doorduin is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cramp-Fasciculation Syndrome, Nemaline Myopathy, Tubular Aggregate Myopathy, Hormone Replacement Therapy (HRT), and Deep Brain Stimulation.

      Advanced in X-Linked Myotubular Myopathy

      Karlijn Bouman
      Advanced in X-Linked Myotubular Myopathy

      Karlijn Bouman
      Nijmegen, GE, NL 

      Karlijn Bouman practices in Nijmegen, Netherlands. Bouman is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Rigid Spine Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Advanced in X-Linked Myotubular Myopathy

      Corrie E. Erasmus
      Advanced in X-Linked Myotubular Myopathy

      Corrie E. Erasmus
      Nijmegen, GE, NL 

      Corrie Erasmus practices in Nijmegen, Netherlands. Ms. Erasmus is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Rigid Spine Syndrome, Dysarthria, and Cerebral Palsy.

      Advanced in X-Linked Myotubular Myopathy

      Baziel M. Van Engelen
      Advanced in X-Linked Myotubular Myopathy

      Baziel M. Van Engelen
      Nijmegen, GE, NL 

      Baziel Van Engelen practices in Nijmegen, Netherlands. Van Engelen is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Paramyotonia Congenita.

      Advanced in X-Linked Myotubular Myopathy

      Stacha I. Reumers
      Advanced in X-Linked Myotubular Myopathy

      Stacha I. Reumers
      Nijmegen, GE, NL 

      Stacha Reumers practices in Nijmegen, Netherlands. Ms. Reumers is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Dysarthria.

      Advanced in X-Linked Myotubular Myopathy

      Meyke I. Schouten
      Advanced in X-Linked Myotubular Myopathy

      Meyke I. Schouten
      Nijmegen, GE, NL 

      Meyke Schouten practices in Nijmegen, Netherlands. Schouten is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Rhabdomyolysis, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Wija J. Oortwijn
      Experienced in X-Linked Myotubular Myopathy

      Wija J. Oortwijn
      Experienced in X-Linked Myotubular Myopathy

      Wija J. Oortwijn
      Nijmegen, GE, NL 

      Wija Oortwijn practices in Nijmegen, Netherlands. Ms. Oortwijn is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cramp-Fasciculation Syndrome, Facioscapulohumeral Muscular Dystrophy (FSHD), Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Stephane B. Heymans
      Experienced in X-Linked Myotubular Myopathy

      Stephane B. Heymans
      Experienced in X-Linked Myotubular Myopathy

      Stephane B. Heymans
      Maastricht, LI, NL 

      Stephane Heymans practices in Maastricht, Netherlands. Ms. Heymans is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Myocarditis, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Failure, and Heart Transplant.

      Experienced in X-Linked Myotubular Myopathy

      Ivana Prokic
      Experienced in X-Linked Myotubular Myopathy

      Ivana Prokic

      Erasmus MC

      Rotterdam, ZH, NL 

      Ivana Prokic practices in Rotterdam, Netherlands. Ms. Prokic is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Anneke J. Van Der Kooi-Van Der Lely
      Experienced in X-Linked Myotubular Myopathy

      Anneke J. Van Der Kooi-Van Der Lely

      Erasmus MC

      Rotterdam, ZH, NL 

      Anneke Van Der Kooi-Van Der Lely practices in Rotterdam, Netherlands. Ms. Van Der Kooi-Van Der Lely is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myositis, Pancreaticoduodenectomy, and Hormone Replacement Therapy (HRT).

      Experienced in X-Linked Myotubular Myopathy

      Ger M. Stienen
      Experienced in X-Linked Myotubular Myopathy

      Ger M. Stienen
      Amsterdam, NH, NL 

      Ger Stienen practices in Amsterdam, Netherlands. Mr. Stienen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in X-Linked Myotubular Myopathy

      Maartje Pennings
      Experienced in X-Linked Myotubular Myopathy

      Maartje Pennings
      Nijmegen, GE, NL 

      Maartje Pennings practices in Nijmegen, Netherlands. Pennings is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Spastic Paraplegia Type 4, Acute Cerebellar Ataxia, Dopamine Beta-Hydroxylase Deficiency, and Primary Lateral Sclerosis.

      Experienced in X-Linked Myotubular Myopathy

      Michael A. Gaytant
      Experienced in X-Linked Myotubular Myopathy

      Michael A. Gaytant
      Utrecht, UT, NL 

      Michael Gaytant practices in Utrecht, Netherlands. Mr. Gaytant is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Tubular Aggregate Myopathy.

      Experienced in X-Linked Myotubular Myopathy

      Corien C. Bemelmans-Verschuuren
      Experienced in X-Linked Myotubular Myopathy

      Corien C. Bemelmans-Verschuuren
      Groningen, GR, NL 

      Corien Bemelmans-Verschuuren practices in Groningen, Netherlands. Bemelmans-Verschuuren is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Spinocerebellar Ataxia Type 15, Drug Induced Dyskinesia, Spinocerebellar Ataxia, and Olivopontocerebellar Atrophy.

      Experienced in X-Linked Myotubular Myopathy

      Baziel G. Van Engelen
      Experienced in X-Linked Myotubular Myopathy

      Baziel G. Van Engelen
      Nijmegen, GE, NL 

      Baziel Van Engelen practices in Nijmegen, Netherlands. Van Engelen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Myotonia Congenita, Amyotonia Congenita, and Paramyotonia Congenita.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 76

      Last Updated: 01/09/2026

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best X-Linked Myotubular Myopathy doctor in Netherlands?

      You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

      X-Linked Myotubular Myopathy doctor near New York, NY
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      X-Linked Myotubular Myopathy doctor near Philadelphia, PA
      X-Linked Myotubular Myopathy doctor near Atlanta, GA
      X-Linked Myotubular Myopathy doctor near Boston, MA
      X-Linked Myotubular Myopathy doctor near Dallas, TX
      X-Linked Myotubular Myopathy doctor near San Jose, CA

      How does MediFind rank X-Linked Myotubular Myopathy doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Netherlands?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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