The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Gelderland, NL

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 24 doctor with experience in X-Linked Myotubular Myopathy near Gelderland, NL. Of these, 14 are Experienced, 7 are Advanced, 2 are Distinguished and 1 are Elite.

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24 providers found
    Elite in X-Linked Myotubular Myopathy

    Nicol C. Voermans
    Elite in X-Linked Myotubular Myopathy

    Nicol C. Voermans
    Referral may be required
    Nijmegen, GE, NL 

    Nicol Voermans practices practicing medicine in Nijmegen, Netherlands. Ms. Voermans is rated as an Elite expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Rhabdomyolysis, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in X-Linked Myotubular Myopathy

    Esmee B. Van Kleef
    Distinguished in X-Linked Myotubular Myopathy

    Esmee B. Van Kleef
    Referral may be required
    Nijmegen, GE, NL 

    Esmee Van Kleef practices practicing medicine in Nijmegen, Netherlands. Ms. Van Kleef is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in X-Linked Myotubular Myopathy

    Erik-jan J. Kamsteeg
    Distinguished in X-Linked Myotubular Myopathy

    Erik-jan J. Kamsteeg
    Referral may be required

    Radboud UMC

    Nijmegen, GE, NL 

    Erik-jan Kamsteeg practices practicing medicine in Nijmegen, Netherlands. Kamsteeg is rated as a Distinguished expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 40 other conditions, according to our data. Their clinical expertise encompasses Spastic Paraplegia Type 7, Spasticity, Paraplegia, and Rhabdomyolysis.

    Learn about our expert tiers
    Advanced in X-Linked Myotubular Myopathy

    Benno Kusters
    Advanced in X-Linked Myotubular Myopathy

    Benno Kusters
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Benno Kusters practices practicing medicine in Nijmegen, Netherlands. Mr. Kusters is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Pheochromocytoma, Nemaline Myopathy, X-Linked Myotubular Myopathy, Bone Marrow Aspiration, and Gastrostomy.

    Advanced in X-Linked Myotubular Myopathy

    Jonne Doorduin
    Advanced in X-Linked Myotubular Myopathy

    Jonne Doorduin
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Jonne Doorduin practices practicing medicine in Nijmegen, Netherlands. Ms. Doorduin is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cramp-Fasciculation Syndrome, Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and Deep Brain Stimulation.

    Advanced in X-Linked Myotubular Myopathy

    Karlijn Bouman
    Advanced in X-Linked Myotubular Myopathy

    Karlijn Bouman
    Referral may be required
    Nijmegen, GE, NL 

    Karlijn Bouman practices practicing medicine in Nijmegen, Netherlands. Bouman is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Rigid Spine Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in X-Linked Myotubular Myopathy

    Baziel M. Van Engelen
    Advanced in X-Linked Myotubular Myopathy

    Baziel M. Van Engelen
    Referral may be required
    Nijmegen, GE, NL 

    Baziel Van Engelen practices practicing medicine in Nijmegen, Netherlands. Van Engelen is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 22 other conditions, according to our data. Their clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Oculopharyngeal Muscular Dystrophy, Paramyotonia Congenita, and Myotonic Dystrophy.

    Advanced in X-Linked Myotubular Myopathy

    Corrie E. Erasmus
    Advanced in X-Linked Myotubular Myopathy

    Corrie E. Erasmus
    Referral may be required
    Nijmegen, GE, NL 

    Corrie Erasmus practices practicing medicine in Nijmegen, Netherlands. Ms. Erasmus is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Rigid Spine Syndrome, Dysarthria, and Cerebral Palsy.

    Advanced in X-Linked Myotubular Myopathy

    Stacha I. Reumers
    Advanced in X-Linked Myotubular Myopathy

    Stacha I. Reumers
    Referral may be required
    Nijmegen, GE, NL 

    Stacha Reumers practices practicing medicine in Nijmegen, Netherlands. Ms. Reumers is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Dysarthria.

    Advanced in X-Linked Myotubular Myopathy

    Meyke I. Schouten
    Advanced in X-Linked Myotubular Myopathy

    Meyke I. Schouten
    Referral may be required

    Radboudumc

    Nijmegen, GE, NL 

    Meyke Schouten practices practicing medicine in Nijmegen, Netherlands. Schouten is rated as an Advanced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Rhabdomyolysis, Ring Chromosome 6, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Wija J. Oortwijn
    Experienced in X-Linked Myotubular Myopathy

    Wija J. Oortwijn
    Referral may be required
    Nijmegen, GE, NL 

    Wija Oortwijn practices practicing medicine in Nijmegen, Netherlands. Ms. Oortwijn is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cramp-Fasciculation Syndrome, Facioscapulohumeral Muscular Dystrophy (FSHD), X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Experienced in X-Linked Myotubular Myopathy

    Maartje Pennings
    Experienced in X-Linked Myotubular Myopathy

    Maartje Pennings
    Referral may be required
    Nijmegen, GE, NL 

    Maartje Pennings practices practicing medicine in Nijmegen, Netherlands. Pennings is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Spastic Paraplegia Type 4, Acute Cerebellar Ataxia, Dopamine Beta-Hydroxylase Deficiency, and Paraplegia.

    Experienced in X-Linked Myotubular Myopathy

    Baziel G. Van Engelen
    Experienced in X-Linked Myotubular Myopathy

    Baziel G. Van Engelen
    Referral may be required
    Nijmegen, GE, NL 

    Baziel Van Engelen practices practicing medicine in Nijmegen, Netherlands. Van Engelen is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

    Experienced in X-Linked Myotubular Myopathy

    Jan T. Groothuis
    Experienced in X-Linked Myotubular Myopathy

    Jan T. Groothuis
    Referral may be required
    Nijmegen, GE, NL 

    Jan Groothuis practices practicing medicine in Nijmegen, Netherlands. Groothuis is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Hereditary Neuralgic Amyotrophy, Brachial Plexopathy, Cramp-Fasciculation Syndrome, and Rigid Spine Syndrome.

    Experienced in X-Linked Myotubular Myopathy

    Jeroen M. Van Doorn
    Experienced in X-Linked Myotubular Myopathy

    Jeroen M. Van Doorn
    Referral may be required
    Nijmegen, GE, NL 

    Jeroen Van Doorn practices practicing medicine in Nijmegen, Netherlands. Mr. Van Doorn is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. His clinical expertise encompasses Cramp-Fasciculation Syndrome, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy

    Marlies E. Kempers
    Experienced in X-Linked Myotubular Myopathy

    Marlies E. Kempers
    Referral may be required
    Nijmegen, GE, NL 

    Marlies Kempers practices practicing medicine in Nijmegen, Netherlands. Ms. Kempers is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Turner Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), and Intersex.

    Experienced in X-Linked Myotubular Myopathy

    Carlo M. Marcelis
    Experienced in X-Linked Myotubular Myopathy

    Carlo M. Marcelis
    Referral may be required
    Nijmegen, GE, NL 

    Carlo Marcelis practices practicing medicine in Nijmegen, Netherlands. Mr. Marcelis is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses VACTERL Association, Imperforate Anus, Townes-Brocks Syndrome, Coffin-Siris Syndrome, and Reconstructive Urology Surgery.

    Experienced in X-Linked Myotubular Myopathy

    Bregje M. Van Bon
    Experienced in X-Linked Myotubular Myopathy

    Bregje M. Van Bon
    Referral may be required
    Nijmegen, GE, NL 

    Bregje Van Bon practices practicing medicine in Nijmegen, Netherlands. Van Bon is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Genital Dwarfism, Robinow Syndrome, Hallermann-Streiff Syndrome, and KBG Syndrome.

    Experienced in X-Linked Myotubular Myopathy

    Bas Vroling
    Experienced in X-Linked Myotubular Myopathy

    Bas Vroling
    Referral may be required
    Nijmegen, GE, NL 

    Bas Vroling practices practicing medicine in Nijmegen, Netherlands. Ms. Vroling is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. Her clinical expertise encompasses Stormorken Syndrome, Congenital Myasthenic Syndrome, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy

    Joery P. Molenaar
    Experienced in X-Linked Myotubular Myopathy

    Joery P. Molenaar
    Referral may be required
    Nijmegen, GE, NL 

    Joery Molenaar practices practicing medicine in Nijmegen, Netherlands. Molenaar is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Amyotonia Congenita, Myotonia Congenita, Paramyotonia Congenita, and Nemaline Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 24

    Last Updated: 06/30/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Gelderland, NL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Gelderland, NL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor in Gelderland, NL?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Myotubular Myopathy doctors in Gelderland, NL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Gelderland, NL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Gelderland, NL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Gelderland, NL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Gelderland, NL?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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