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    Last Updated: 10/30/2025

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    MediFind found 19 doctor with experience in X-Linked Myotubular Myopathy near Illinois, US. Of these, 17 are Experienced, 1 are Advanced and 1 are Elite.

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    LocationClose
    19 providers found
      Elite in X-Linked Myotubular Myopathy
      Pediatric Neurology | Neurology
      Elite in X-Linked Myotubular Myopathy
      Pediatric Neurology | Neurology
      225 E Chicago Ave # 51, 
      Chicago, IL 
      Languages Spoken:
      English

      Nancy Kuntz is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Kuntz is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Thymectomy.

      David P. Randall
      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Advocate Medical Group Neurology

      1875 Dempster St, Ste 625/660, 
      Park Ridge, IL 
      Languages Spoken:
      English

      David Randall is a Neurologist in Park Ridge, Illinois. Dr. Randall is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Peripheral Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Myasthenia Gravis.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in X-Linked Myotubular Myopathy
      Neurology | Neuroradiology
      Advanced in X-Linked Myotubular Myopathy
      Neurology | Neuroradiology

      Osf Multi-Specialty Group

      8600 State Route 91, Suite 130, 
      Peoria, IL 
      Languages Spoken:
      English

      Sankar Bandyopadhyay is a Neurologist and a Neuroradiologist in Peoria, Illinois. Dr. Bandyopadhyay is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myasthenia Gravis, Nemaline Myopathy, Congenital Fiber-Type Disproportion, and Rigid Spine Syndrome.

      Learn about our expert tiers
      Experienced in X-Linked Myotubular Myopathy
      Internal Medicine
      Experienced in X-Linked Myotubular Myopathy
      Internal Medicine

      Genesis Health System

      801 Illini Dr, 
      Silvis, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Brian Cady is a primary care provider, practicing in Internal Medicine in Silvis, Illinois. Dr. Cady is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are High Cholesterol, Anemia, Infant Hyperglycemia, and Glucocorticoid-Remediable Aldosteronism. Dr. Cady is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Filipino
      Accepting New Patients
      Offers Telehealth

      Betty Soliven is a Neurologist in Chicago, Illinois. Dr. Soliven is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Chronic Inflammatory Demyelinating Polyneuropathy, Thymectomy, and Gastrostomy. Dr. Soliven is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      800 N. 1st Street, 
      Springfield, IL 
      Languages Spoken:
      English
      Accepting New Patients

      David Gelber is a Neurologist in Springfield, Illinois. Dr. Gelber is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Myasthenia Gravis, Post Polio Syndrome, and Gastrostomy. Dr. Gelber is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      5801 S Cass Ave, 
      Westmont, IL 
      Experience:
      16+ years
      Languages Spoken:
      English

      Melissa Xenidis is a Physiatrist in Westmont, Illinois. Dr. Xenidis has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Muscular Dystrophy Type 1A, Nemaline Myopathy, Central Core Disease, and Benign Autosomal Dominant Myopathy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      The University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kourosh Rezania is a Neurologist in Chicago, Illinois. Dr. Rezania is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Chronic Inflammatory Demyelinating Polyneuropathy, and Gastrostomy. Dr. Rezania is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Adventist Health Partners, Inc.

      396 Remington Blvd, 
      Bolingbrook, IL 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Boyd is a Neurologist in Bolingbrook, Illinois. Dr. Boyd has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Hydrocephalus, Seizures, Stroke, and Movement Disorders. Dr. Boyd is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Medical Services Ric

      355 E Erie St, 
      Chicago, IL 
      Languages Spoken:
      English

      James Sliwa is a Physiatrist in Chicago, Illinois. Dr. Sliwa is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Post Polio Syndrome, Poliomyelitis, and Foot Drop.

      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      966 W 21st St, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Elena Lopez is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Lopez is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Cerebral Hypoxia. Dr. Lopez is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Rush Medical Group

      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Octavia Kincaid is a Neurologist in Chicago, Illinois. Dr. Kincaid is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Familial Dysautonomia, Myasthenia Gravis, Peripheral Neuropathy, and Spinal Muscular Atrophy (SMA). Dr. Kincaid is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      Experienced in X-Linked Myotubular Myopathy
      Family Medicine

      Rajiv Kandala M D S C

      7531 S Stony Island Ave, Suite 164, 
      Chicago, IL 
      Languages Spoken:
      English

      Rajiv Kandala is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Kandala is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Necrosis, Anemia, Pneumonia, Gastrostomy, and Endoscopy.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Osf Multi-Specialty Group

      8600 State Route 91, Suite 130, 
      Peoria, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Zallek is a Neurologist in Peoria, Illinois. Dr. Zallek is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Zallek is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      The Board Of Trustees Of The University Of Illinois

      912 S Wood St, 
      Chicago, IL 
      Languages Spoken:
      English

      Charles Abrams is a Neurologist in Chicago, Illinois. Dr. Abrams is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Hereditary Spastic Paraparesis, Charcot-Marie-Tooth Disease, Monomelic Amyotrophy, and Pelizaeus-Merzbacher Disease.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Select Rehabilitation LLC

      2600 Compass Rd, 
      Glenview, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Alexandru Olaru is a Neurologist in Glenview, Illinois. Dr. Olaru is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Epilepsy, Familial Porencephaly, Choroid Plexus Cyst, and Seizures. Dr. Olaru is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Sarah Bush Lincoln Health Center

      1006 Central Ave, 
      Wilmette, IL 
      Languages Spoken:
      English, Farsi, French, German
      Accepting New Patients
      Offers Telehealth

      Behzad Elahi is a Neurologist in Wilmette, Illinois. Dr. Elahi is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Movement Disorders, Parkinson's Disease, Stroke, Hereditary Ataxia, and Deep Brain Stimulation. Dr. Elahi is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Advocate Medical Group Neurology

      11824 Southwest Hwy, Ste 100, 
      Palos Heights, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Mohammad Alsharabati is a Neurologist in Palos Heights, Illinois. Dr. Alsharabati is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Peripheral Neuropathy.

      Experienced in X-Linked Myotubular Myopathy
      Pediatrics | Internal Medicine
      Experienced in X-Linked Myotubular Myopathy
      Pediatrics | Internal Medicine

      Springfield Clinic, Llp

      250 W Kenwood Ave, 
      Decatur, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Melissa Cox is a primary care provider, practicing in Pediatrics and Internal Medicine in Decatur, Illinois. Dr. Cox is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Peripheral Neuropathy, Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, and Familial Hypertension. Dr. Cox is currently accepting new patients.

      Showing 1-19 of 19

      Last Updated: 10/30/2025

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Myotubular Myopathy doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Illinois, US?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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