The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Minnesota, US

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

The 20 Best X-Linked Myotubular Myopathy Doctors in Minnesota, US

Last Updated: 02/22/2026

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MediFind found 18 doctor with experience in X-Linked Myotubular Myopathy near Minnesota, US. Of these, 10 are Experienced, 6 are Advanced and 2 are Distinguished.

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18 providers found
    Margherita Milone
    Distinguished in X-Linked Myotubular Myopathy
    Distinguished in X-Linked Myotubular Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Necrotizing Myopathy (NM), Progressive External Ophthalmoplegia, Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

    Distinguished in X-Linked Myotubular Myopathy
    Neurology
    Distinguished in X-Linked Myotubular Myopathy
    Neurology

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Elie Naddaf is a Neurologist in Rochester, Minnesota. Dr. Naddaf is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myositis, Cytoplasmic Body Myopathy, Nemaline Myopathy, and Myositis.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Martinez is a Neurologist in Rochester, Minnesota. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy
    Neurology
    Experienced in X-Linked Myotubular Myopathy
    Neurology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Peter Kang is a Neurologist in Minneapolis, Minnesota. Dr. Kang is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Cockayne Syndrome, Limb-Girdle Muscular Dystrophy, Cockayne Syndrome Type 1, Mononeuritis Multiplex, and Thymectomy.

    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Duygu Selcen is a Pediatric Neurologist in Rochester, Minnesota. Dr. Selcen is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Congenital Myasthenic Syndrome, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy

    Gillette Childrens Specialty Healthcare

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Cerebral Palsy, Delta-Sarcoglycanopathy, Emery-Dreifuss Muscular Dystrophy, and Miyoshi Myopathy. Dr. Gettings is currently accepting new patients.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Georgios Manousakis is a Neurologist in Minneapolis, Minnesota. Dr. Manousakis is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Advanced in X-Linked Myotubular Myopathy
    Family Medicine
    Advanced in X-Linked Myotubular Myopathy
    Family Medicine

    Family Healthservices Minnesota P.A.

    280 Snelling Ave N, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Denise Long is a primary care provider, practicing in Family Medicine in Saint Paul, Minnesota. Dr. Long is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Tubular Aggregate Myopathy, Centronuclear Myopathy, and Congenital Muscular Dystrophy Type 1A.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy

    Office

    400 E 3rd St, 
    Duluth, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Amber Erickson is a Neurologist in Duluth, Minnesota. Dr. Erickson is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis.

    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Karachunski is a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Karachunski is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Experienced in X-Linked Myotubular Myopathy
    Neuromusculoskeletal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Neuromusculoskeletal Medicine

    Courage Kenny Rehabilitation Associates Minneapolis

    800 E 28th St Ste 1750, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Elizabeth Beck is a Neuromusculoskeletal Medicine provider in Minneapolis, Minnesota. Dr. Beck is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Spastic Paraplegia Type 2, Spastic Paraplegia Type 3A, Spastic Paraplegia Type 4, and L1 Syndrome.

    Experienced in X-Linked Myotubular Myopathy
    Family Medicine
    Experienced in X-Linked Myotubular Myopathy
    Family Medicine

    Mayo Clinic Health System Fairmont

    800 Medical Center Dr, 
    Fairmont, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Green is a primary care provider, practicing in Family Medicine in Fairmont, Minnesota. Dr. Green is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Lung Cancer, Maturity Onset Diabetes of the Young, Hypothyroidism, and Type 2 Diabetes (T2D).

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Priya Dhawan is a Neurologist in Rochester, Minnesota. Dr. Dhawan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Low Blood Pressure, Postural Orthostatic Tachycardia Syndrome (POTS), Familial Dysautonomia, and Orthostatic Hypotension.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Hebatallah Rashed is a Neurologist in Rochester, Minnesota. Dr. Rashed is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Cramp-Fasciculation Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and Gastrostomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Nicolas Madigan is a Psychiatrist in Rochester, Minnesota. Dr. Madigan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Peripheral Neuropathy, and Nerve Decompression.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Michelle Mauermann is a Neurologist in Rochester, Minnesota. Dr. Mauermann is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Transthyretin Amyloidosis, Primary Amyloidosis, and Tissue Biopsy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Nathan Staff is a Neurologist in Rochester, Minnesota. Dr. Staff is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Peripheral Neuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Neurotoxicity Syndromes, and Gastrostomy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Brendan Putko is a Neurologist in Rochester, Minnesota. Dr. Putko is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Fabry Disease, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Centronuclear Myopathy.

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    Last Updated: 02/22/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Minnesota, US?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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