The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in saint louis, MO

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 4 doctor with experience in X-Linked Myotubular Myopathy near saint louis, MO. Of these, 4 are Experienced.

Location
LocationClose
4 providers found
    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
     (3.6 miles away)
    314-362-6981
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Conrad Weihl is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Weihl is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Inclusion Body Myositis, Myositis, and Limb-Girdle Muscular Dystrophy Type 2I. Dr. Weihl is board certified in American Board Of Psychiatry And Neurology Neurology and American Board Of Psychiatry And Neurology Neuromuscular Medicine. Dr. Weihl is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy

    Dr. Keisuke Ueda
    Pediatric Neurology
    Experienced in X-Linked Myotubular Myopathy

    Dr. Keisuke Ueda
    Pediatric Neurology
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    314-454-6120
    Languages Spoken:
    English
    See accepted insurances

    Keisuke Ueda is a Pediatric Neurologist practicing medicine in Saint Louis, Missouri. Dr. Ueda is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Periventricular Leukomalacia, Nemaline Myopathy, Alternating Hemiplegia of Childhood, and X-Linked Myotubular Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    314-454-6120
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Christina Gurnett is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Gurnett is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Distal Arthrogryposis, Distal Arthrogryposis Type 6, Chiari Malformation Type 2, Syringomyelia, and Posterior Fossa Decompression. Dr. Gurnett is currently accepting new patients.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    Barnes-Jewish Hospital

    1 Barnes Jewish Hospital Plz, 
    Saint Louis, MO 
     (3.6 miles away)
    314-362-2999
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Peter Kang is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Kang is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Cockayne Syndrome, Limb-Girdle Muscular Dystrophy, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Thymectomy. Dr. Kang is currently accepting new patients.

    Showing 1-4 of 4

    Last Updated: 09/26/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor near saint louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor near saint louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Myotubular Myopathy doctor near saint louis, MO?

    You can find a X-Linked Myotubular Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

    X-Linked Myotubular Myopathy doctor near New York, NY
    X-Linked Myotubular Myopathy doctor near Los Angeles, CA
    X-Linked Myotubular Myopathy doctor near Chicago, IL
    X-Linked Myotubular Myopathy doctor near Houston, TX
    X-Linked Myotubular Myopathy doctor near Phoenix, AZ
    X-Linked Myotubular Myopathy doctor near Philadelphia, PA
    X-Linked Myotubular Myopathy doctor near Atlanta, GA
    X-Linked Myotubular Myopathy doctor near Boston, MA
    X-Linked Myotubular Myopathy doctor near Dallas, TX
    X-Linked Myotubular Myopathy doctor near San Jose, CA

    How does MediFind rank X-Linked Myotubular Myopathy doctors near saint louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near saint louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near saint louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near saint louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near saint louis, MO?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.