The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in newark, NJ

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 11 doctor with experience in X-Linked Myotubular Myopathy near newark, NJ. Of these, 9 are Experienced and 2 are Advanced.

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11 providers found
    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    Rutgers Health Physical Medicine & Rehabilitation

    90 Bergen St # 3100, 
    Newark, NJ 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    John Bach is a Physiatrist practicing medicine in Newark, New Jersey. Dr. Bach is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Gastrostomy, and Splenectomy.

    Experienced in X-Linked Myotubular Myopathy
    Neuromusculoskeletal Medicine | Neurology
    Experienced in X-Linked Myotubular Myopathy
    Neuromusculoskeletal Medicine | Neurology
    Referral may be required

    CUIMC/Neurological Institute Of New York

    710 West 168th Street, 
    New York, NY 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Harms is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in New York, New York. Dr. Harms is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal Muscular Atrophy Type 3. Dr. Harms is board certified in Neurology, Clinical Neurophysiology, and Neuromuscular Medicine. Dr. Harms is currently accepting new patients.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy
    Referral may be required

    CUIMC/Neurological Institute Of New York

    710 W 168th St, 
    New York, NY 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michio Hirano is a Neurologist practicing medicine in New York, New York. Dr. Hirano is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Thymidine Kinase 2 Deficiency (TK2d), Mitochondrial Neurogastrointestinal Encephalopathy Disease, MELAS Syndrome, and Progressive External Ophthalmoplegia. Dr. Hirano is currently accepting new patients.

    Learn about our expert tiers
    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Advanced in X-Linked Myotubular Myopathy
    Pediatric Neurology
    Referral may be required

    Trustees Of Columbia University In The City Of New York

    710 W 168th St, 
    New York, NY 
     (14.3 miles away)
    Languages Spoken:
    English

    Jahannaz Dastgir is a Pediatric Neurologist practicing medicine in New York, New York. Dr. Dastgir is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Nemaline Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    CUIMC/Harkness Pavilion

    180 Fort Washington Avenue, 
    New York, NY 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Akinpelu Beckley is a Physiatrist practicing medicine in New York, New York. Dr. Beckley is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Paraplegia, Hemiplegia, Foot Drop, Syringomyelia, and Gamma Knife Radiosurgery. Dr. Beckley is board certified in Physical Medicine And Rehabilitation. Dr. Beckley is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    Office

    333 E 34th St, 
    New York, NY 
     (10.5 miles away)
    Languages Spoken:
    English

    David Younger is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Younger is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Vasculitis, Lyme Disease, Primary Lateral Sclerosis, and Kidney Transplant.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    Mount Sinai Hospital

    ON, CA 
     (12.3 miles away)

    David Chitayat practices practicing medicine in Canada. Mr. Chitayat is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Fetal Akinesia Sequence, Symphalangism Distal, Cortical Dysplasia, and Congenital Contractures.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required
    Mount Sinai Hospital, 
    ON, CA 
     (12.3 miles away)

    Patrick Shannon practices practicing medicine in Canada. Mr. Shannon is rated as an Experienced expert by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Neu Laxova Syndrome, Fetal Akinesia Sequence, Fetal Edema, and Hydrops Fetalis.

    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Referral may be required
    1 Gustave L Levy Pl, Box 1498, 
    New York, NY 
     (12.3 miles away)
    Languages Spoken:
    English

    Robert Desnick is a Medical Genetics specialist and a Pediatrics provider practicing medicine in New York, New York. Dr. Desnick is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Hereditary Coproporphyria, Fabry Disease, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy
    Referral may be required

    Nyc Health Hospitals / Kings County

    451 Clarkson Ave, 
    Brooklyn,, NY 
     (13.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Yaacov Anziska is a Neurologist practicing medicine in Brooklyn,, New York. Dr. Anziska is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Neuromyelitis Optica, Necrotizing Myopathy (NM), and HTLV-1 Associated Myelopathy. Dr. Anziska is currently accepting new patients.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    CUIMC/Herbert Irving Pavilion

    161 Fort Washington Ave, 
    New York, NY 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Divaya Bhutani is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Bhutani is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Primary Amyloidosis, Relapsed Refractory Multiple Myeloma (RRMM), and Bone Marrow Aspiration. Dr. Bhutani is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor near newark, NJ?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor near newark, NJ?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors near newark, NJ?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near newark, NJ?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near newark, NJ?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near newark, NJ?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near newark, NJ?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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