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    Last Updated: 10/30/2025

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    MediFind found 26 doctor with experience in X-Linked Myotubular Myopathy near Texas, US. Of these, 21 are Experienced and 5 are Advanced.

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    26 providers found
      Advanced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Pediatrics | Neurology

      Dell Childrens Medical Group

      1301 Barbara Jordan Blvd, Suite 200, 
      Austin, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Vettaikorumakankav Vedanarayanan is a Pediatric Neurologist and a Pediatrics provider in Austin, Texas. Dr. Vedanarayanan is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myositis, Amyotonia Congenita, Congenital Myasthenic Syndrome, and Dystrophinopathy. Dr. Vedanarayanan is currently accepting new patients.

      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy

      The University Of Texas Health Science Center At San Antonio

      8300 Floyd Curl Dr, 
      San Antonio, TX 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Matthew Wicklund is a Neurologist in San Antonio, Texas. Dr. Wicklund is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Inclusion Body Myositis, Limb-Girdle Muscular Dystrophy Type 2I, and Paramyotonia Congenita. Dr. Wicklund is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in X-Linked Myotubular Myopathy
      Family Medicine
      Advanced in X-Linked Myotubular Myopathy
      Family Medicine
      126 W Nopal St, 
      Uvalde, TX 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      John Preddy is a primary care provider, practicing in Family Medicine in Uvalde, Texas. Dr. Preddy is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, Gastrostomy, and Hip Replacement. Dr. Preddy is currently accepting new patients.

      Learn about our expert tiers
      Advanced in X-Linked Myotubular Myopathy
      Advanced in X-Linked Myotubular Myopathy

      Christus Trinity Clinic

      630 S Fleishel Ave, 
      Tyler, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Erin Phillips is a Neurologist in Tyler, Texas. Dr. Phillips is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Miller-Fisher Syndrome. Dr. Phillips is currently accepting new patients.

      Advanced in X-Linked Myotubular Myopathy
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in X-Linked Myotubular Myopathy
      Neurology | Pediatrics | Pediatric Neurology
      5323 Harry Hines Boulevard, 
      Dallas, TX 
      Languages Spoken:
      English

      Susan Iannaccone is a Neurologist and a Pediatrics provider in Dallas, Texas. Dr. Iannaccone is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Thymectomy, and Gastrostomy.

      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      Experienced in X-Linked Myotubular Myopathy
      Family Medicine

      Together In Community LLC

      1109 Pamela Dr, Suite A, 
      Mission, TX 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Juan Gonzalez is a primary care provider, practicing in Family Medicine in Mission, Texas. Dr. Gonzalez is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are End-Stage Renal Disease (ESRD), Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, and Hypertension. Dr. Gonzalez is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Vanderbilt Neurodiagnostics Lab

      1301 Medical Center Dr, Suite B817, 
      Nashville, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amanda Peltier is a Neurologist in Nashville, Texas. Dr. Peltier is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Familial Dysautonomia, Lambert-Eaton Syndrome, Multiple System Atrophy, Orthostatic Hypotension, and Tissue Biopsy. Dr. Peltier is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Neurology
      Experienced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Neurology
      1 Baylor Plz # Bcm320, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Calame is a Pediatric Neurologist and a Neurologist in Houston, Texas. Dr. Calame is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Spasticity, Hereditary Spastic Paraparesis, Hypotonia, and Spastic Paraplegia Type 7. Dr. Calame is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Pediatrics | Neurology

      Texas Childrens Physician Group

      6651 Main St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Davut Pehlivan is a Pediatric Neurologist and a Pediatrics provider in Houston, Texas. Dr. Pehlivan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, Microcephaly, Achalasia Microcephaly Syndrome, and Craniectomy. Dr. Pehlivan is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in X-Linked Myotubular Myopathy
      Pediatric Neurology | Pediatrics | Neurology
      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Lotze is a Pediatric Neurologist and a Pediatrics provider in Houston, Texas. Dr. Lotze is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Multiple Sclerosis (MS), Duchenne Muscular Dystrophy, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy Type 3. Dr. Lotze is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Pediatrics | Medical Genetics
      Experienced in X-Linked Myotubular Myopathy
      Pediatrics | Medical Genetics
      Houston, TX 
      Languages Spoken:
      English

      Shay Ben-Shachar is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Ben-Shachar is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Viral Gastroenteritis, and Oculofaciocardiodental Syndrome.

      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      Experienced in X-Linked Myotubular Myopathy
      Family Medicine

      Utmb Faculty Group Practice

      2309 W Mulberry St, 
      Angleton, TX 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      James Veselka is a primary care provider, practicing in Family Medicine in Angleton, Texas. Dr. Veselka is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Heart Failure, Pulmonary Edema, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Veselka is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      Experienced in X-Linked Myotubular Myopathy
      Family Medicine

      Tmh Physician Associates PLLC

      16605 Sw Fwy 410, Methodist Diag Card Of Hou, 
      Sugar Land, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Irfan Dadabhoy is a primary care provider, practicing in Family Medicine in Sugar Land, Texas. Dr. Dadabhoy is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Nemaline Myopathy, Central Core Disease, Benign Autosomal Dominant Myopathy, and Tubular Aggregate Myopathy. Dr. Dadabhoy is currently accepting new patients in some locations.

      Experienced in X-Linked Myotubular Myopathy
      Family Medicine
      Experienced in X-Linked Myotubular Myopathy
      Family Medicine

      Dewitt Medical District

      2500 N Esplanade St, Suite 102, 
      Cuero, TX 
      Languages Spoken:
      English
      Accepting New Patients

      David Hill is a primary care provider, practicing in Family Medicine in Cuero, Texas. Dr. Hill is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Maturity Onset Diabetes of the Young. Dr. Hill is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      Baylor College Of Medicine

      7200 Cambridge St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Charenya Anandan is a Neurologist in Houston, Texas. Dr. Anandan is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Benign Essential Blepharospasm, Restless Legs Syndrome, Centronuclear Myopathy, and Movement Disorders. Dr. Anandan is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy
      5323 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Stephen Cannon is a Neurologist in Dallas, Texas. Dr. Cannon is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Familial Periodic Paralysis, Hyperkalemic Periodic Paralysis, Hypokalemic Periodic Paralysis, and Thyrotoxic Periodic Paralysis.

      Experienced in X-Linked Myotubular Myopathy
      Experienced in X-Linked Myotubular Myopathy

      University Of Texas Southwestern Medical Center At Dallas

      5200 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English
      Offers Telehealth

      Jeffrey Elliott is a Neurologist in Dallas, Texas. Dr. Elliott is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Myasthenia Gravis, and Spinal Muscular Atrophy Type 3.

      Experienced in X-Linked Myotubular Myopathy
      Medical Genetics | Pediatrics
      Experienced in X-Linked Myotubular Myopathy
      Medical Genetics | Pediatrics
      6701 Fannin St, Suite 1560, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Lindsay Burrage is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Burrage is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Urea Cycle Disorders (UCD), Hypotonia, Argininosuccinic Aciduria, and Achalasia Microcephaly Syndrome. Dr. Burrage is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Pediatrics | Medical Genetics
      Experienced in X-Linked Myotubular Myopathy
      Pediatrics | Medical Genetics
      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      James Lupski is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Lupski is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Potocki-Lupski Syndrome, Hypotonia, Achalasia Microcephaly Syndrome, and Microcephaly. Dr. Lupski is currently accepting new patients.

      Experienced in X-Linked Myotubular Myopathy
      Medical Genetics | Pediatrics
      Experienced in X-Linked Myotubular Myopathy
      Medical Genetics | Pediatrics

      Texas Childrens Physician Group

      6651 Main St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Brendan Lee is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Osteogenesis Imperfecta, and Spondyloepimetaphyseal Dysplasia Strudwick Type. Dr. Lee is currently accepting new patients.

      Showing 1-20 of 26

      Last Updated: 10/30/2025

      What is the definition of X-Linked Myotubular Myopathy?

      X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

      When should I see a X-Linked Myotubular Myopathy doctor in Texas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Texas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Myotubular Myopathy doctors in Texas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Texas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Texas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Texas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Myotubular Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Texas, US?

      Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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