The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Wisconsin, US

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in X-Linked Myotubular Myopathy near Wisconsin, US. Of these, 9 are Experienced and 2 are Advanced.

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11 providers found
    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy

    Neuroscience Center-Specialty Clinics

    900 N 92nd St, 
    Milwaukee, WI 
    Languages Spoken:
    English

    Juan Figueroa is a Neurologist in Milwaukee, Wisconsin. Dr. Figueroa is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myositis, Continuous Muscle Fiber Activity Hereditary, Potassium-Aggravated Myotonia, Isaacs' Syndrome, and Nerve Decompression.

    Advanced in X-Linked Myotubular Myopathy
    Advanced in X-Linked Myotubular Myopathy

    MCHS Hospitals Inc.

    1000 N Oak Ave, 
    Marshfield, WI 
    Languages Spoken:
    English

    Rodney Sorensen is a Neurologist in Marshfield, Wisconsin. Dr. Sorensen is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Central Core Disease, Benign Autosomal Dominant Myopathy, and Nemaline Myopathy.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Stephanie Gardon is a Neurologist in Madison, Wisconsin. Dr. Gardon is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Myasthenia Gravis, Multifocal Motor Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Froedtert And The Medical College Of Wisconsin Froedtert Hospital

    9200 W Wisconsin Ave, 
    Milwaukee, WI 
    Languages Spoken:
    English

    Nanjappareddy Reddy is a Physiatrist in Milwaukee, Wisconsin. Dr. Reddy is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Fibromyalgia, Tubular Aggregate Myopathy, Central Core Disease, and Congenital Fiber-Type Disproportion.

    Experienced in X-Linked Myotubular Myopathy
    Neurology
    Experienced in X-Linked Myotubular Myopathy
    Neurology

    Froedtert Hospital

    900 N 92nd St, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Dominic Fee is a Neurologist in Milwaukee, Wisconsin. Dr. Fee is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    Milwaukee VAMC

    1289 Olympia Fields Dr, 
    Oconomowoc, WI 
    Languages Spoken:
    English

    Kathryn Mulcahey is a primary care provider, practicing in Internal Medicine in Oconomowoc, Wisconsin. Dr. Mulcahey is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Centronuclear Myopathy, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Rigid Spine Syndrome.

    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine
    Experienced in X-Linked Myotubular Myopathy
    Internal Medicine

    UW Health Junction RD Medical Center PPM

    451 Junction Rd, 
    Madison, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Kristin Lewicki is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Lewicki is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Chronic Cough.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    The Neuroscience Group Of Northeast Wisconsin SC

    1305 West American Dr, 
    Neenah, WI 
    Languages Spoken:
    English

    Benjamin Savage is a Neurologist in Neenah, Wisconsin. Dr. Savage is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Cramp-Fasciculation Syndrome, and Memory Loss.

    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics

    The Medical College Of Wisconsin Inc

    8701 Watertown Plank Rd, Room 4041 Mfrc, 
    Milwaukee, WI 
    Languages Spoken:
    English

    Donald Basel is a Medical Genetics specialist and a Pediatrics provider in Milwaukee, Wisconsin. Dr. Basel is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Achondroplasia, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Legius Syndrome.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Frederick Edelman is a Pediatrics provider in Madison, Wisconsin. Dr. Edelman is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myoclonic Epilepsy, West Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Infant Epilepsy with Migrant Focal Crisis.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    University Hospital

    600 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English

    Andrew Waclawik is a Neurologist in Madison, Wisconsin. Dr. Waclawik is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myasthenia Gravis, Guillain-Barre Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Mitochondrial Complex 2 Deficiency.

    Showing 1-11 of 11

    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor in Wisconsin, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor in Wisconsin, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors in Wisconsin, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors in Wisconsin, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor in Wisconsin, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor in Wisconsin, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors in Wisconsin, US?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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